-
World CP Day 2022
World Cerebral Palsy Day #worldcpday, was created to raise the profile and increase awareness of cerebral palsy (CP). Since launching in 2012, has come a long way. In 2020 alone, we reached over 26 million people with the support of hundreds of organisations from around the world dedicated to supporting the cerebral palsy…
-
I am trying to find out how many people/children have CP in the East Midlands
Hi I work for CP Sport and we are currently looking into setting up regional hubs with the support of some regional partners. We are interested to find out what activities are currently being accessed and what families really need to help them access physical activity? The more feedback we can get the better plus we will…
-
Members-only event: register now and get a free snack box!
Posted on behalf of @Giovanni_Scope Hello everyone, I’m excited to invite you to the first Scope Members Social event, which will take place online on Monday 14 November 2022, from 6.30pm to 8pm. Scope Members Social events are an occasion for our members to meet each other, share their lived experience of disability and…
-
Hi, I'm vickylbarnes! My 1yo has CP. Where can I access funding?
Hi all. I am looking for some advice after recently moving back to the UK with my 1 year old son who hasCP and developmental delays. I am being knocked back by what feels like every service and told the waiting times for anything NHS is about 6 months. Is this really the case? Is there any way to get funding from anywhere…
-
How is Mental Health Support for people with CP Funded
I have had a lot of questions about how accessing mental health support with Disability Plus is funded. I thought I'd share a post that hopefully explains how it works. Funding your Adult Cerebral Palsy Mental Health Sessions DisabilityPlus deliver counselling for adults with conditions including Cerebral Palsy, Spina…
-
Cerebral palsy: The Movement Centre provides free care
Archie, from Market Drayton in Shropshire, has cerebral palsy and is now being treated at The Movement Centre in Oswestry. Where previously families would have had to pay £2,000, the charity is now in a position to provide free care. Cerebral palsy: The Movement Centre provides free care - BBC News
-
“People need educating - my dream is to stop people with cerebral palsy being spoken down to."
“People need educating - my dream is to stop people with cerebral palsy being spoken down to."Beautiful drag queen and Drag Race UK contestant Elektra Fence was recently invited to speak to the All Party Parliamentary Group (APPG) on Cerebral Palsy. Elektra's parents, Ann and Ian Riley, both have Cerebral Palsy and…
-
CP Network Meeting Thursday 17th November 2022 - 6pm-7pm
Hello All - I hope you are well. I just wanted to check in and see how you are all doing. Our next meeting is on: Thursday 17th November 6pm-7pm - if you have any topics you want to raise, please put them here and Richard and I will schedule time. Also just to remind you all the CP Survey will be closing on 1st November…
-
Mild CP and Ageing
Hi Everyone, I am 44 and had my diagnosis of Hemiplegic CP at the age of 5. I had tendon lengthening op followed by at least 11 years of physio. Recently I have been experiencing increased pain / cramps / muscle spasms. Feeling of fatigue and overbalancing. Is this normal as I am struggling?
-
Interviewees Needed for study into Ageing and CP
ALTHEA Study Living Healthy Lives: Exploring the effects of growing older with cerebral palsy and use of healthcare services across the life course Invitation We would like to invite you to take part in our research study. Please read the following information about the purpose of the research, how the findings will be…
-
Botox injection for tight muscles
Does anyone know anyone who can do Botox injection for tight muscles?
-
Hi, my name is JNawaz! CP and SDR Surgery?
Hi folks. I'm the parent of a 4 Yr old boy who has PVL grade 3 Cerebral Palsy. Lower legs effected so doesn't have flat feet and doesn't walk without aid of his kayewalker. We have had botox injections which helped very little. We have now been offered SDR surgery in Nottingham. Would be great to speak to people in similar…
-
Cerebral Palsy more than a physical impairment
There is a large focus on the physical symptoms of cerebral palsy, and therefore mental health needs often get overlooked. Behaviours displayed may be attributed to your cerebral palsy rather than a mental health problem. Medical teams may be more concerned about improving mobility so that you become self-sufficient before…
-
Physio
if if you have. Cerebral palsy in the uk and need physio you are very little lucky if you get any help especially when you come home from hospital.
-
Parent experiences of wheelchair provision: Cerebral Palsy focused
You are invited to take part in our research study. Before you
decide, it is important to understand what involvement in the project will mean
for you and why the study is being done. If you wish, you may discuss the study
with others. Ask us if you need more information or if you are not clear about
anything and take time…
-
Any groups that may be of support?
Hi all! I'm working with someone with Cerebral Palsy and was hoping to find any groups out there that may be of support.
-
Trikes/Bikes/Getting Around
Hi, My daughter is five and has mild CP. She is a reluctant walker and can manage around 10 mins before getting tired - once tired, she struggles to walk and then trips up, scuffs her feet, becomes upset. We’ve been managing this by pushing her around on a toddler trike. She is now too big for this though and she’s still…
-
Action CP If in Doubt Check it Out Campaign
@scope fully supports this #IfInDoubtCheckItOut public awareness campaign by@action_cp to improve the life chances for children with or at risk of cerebral palsy.
-
Adult Cerebral Palsy Reviews. Bobath Monthly Zoom
Have you ever wanted to discuss your cerebral palsy with someone who understands? A clinical review between an adult with cerebral palsy and a healthcare professional is recommended by NICE guidelines on an annual basis. This review incorporates discussing common concerns, physical symptoms, mental health, pain, nutrition…
-
Fatigue, Sleep and Napping
The more I read about CP and fatigue, the more I realize it's "normal" for us to need more than 8 hours of sleep. I'm less concerned about the amount of sleep I seem to need -- sometimes I can go for 10 hours. I would love to hear from other people. How many hours do you need to feel well-rested? How much do you need to…
