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Join the movement, by signing the petition #freetherapyforCP
Join the movement, by signing the petition #freetherapyforCP In the Bobath Centre’s 65th year, they have launched a petition calling for free specialist therapy for people with cerebral palsy, throughout their lifetime. Cerebral palsy is a neurological condition caused by brain damage around the time of birth. Too many…
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Patella Alta treatment
Having just found out by accident that the horrendous knee pain my teenager is dealing with is cause by Patella Alta. This is causing him to go from walking unaided to totally supported or not at all and other issues. I am now wondering if anyone has had treatment for it i.e. surgery, used knee braces, which ones, gone…
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CP Sport National Athletics Championships
CP Sport National Athletics Championships will be held at the University of Warwick Athletics Track on Saturday 17th September 2022. Entries are now open. Participants can enter a maximum of 3 events. The closing date for this event is 31st August at 11.59pm. Events available are:Track - 60m, 100m, 200m, 400m, 800m, 1500m,…
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Hello
Hello everyone my name is Darcey I have CP I’m looking to meet people with CPif anyone could help me out I’ll really appreciate it! Have a good day Darcey 😁
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Managing Tiredness/Fatigue - Child
My daughter (5 in Oct) has CP and struggles with tiredness, which can affect her mobility, concentration, behaviour etc. she sleeps well generally and eats well. We want to help her manage her energy better as she is about to start school and we want to give her the best experience possible. Does anyone have any tips or…
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CP/ADHD.
Hello. I am a 47 year old female living with CP. I was officially diagnosed as a child and after some hospital investigation and Achilles Tendon lengthening Surgery I was discharged from NHS care at around 7 years old. The Consultant told my mother at the time to take me home and forget all about it. I believe I was…
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How long do people with CP live?
I ask this with tongue in cheek. It was asked on an animated show recently, and the answer came back 'well you never see a grey haired one'. I'm 63 and have CP which affects my left side. Last year I fell and broke my left hip. My right side, which has always taken the strain and has long been overused suddenly couldn't…
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CP Sport Athletics event in Doncaster on Saturday 20th August
CP Sport are hosting an Athletics 'Have A Go Day' in Doncaster on Saturday 20th August. An opportunity for anyone to try throwing, jumping, frame running & more! Free to register! Please came along & share with others that may be interested To register either scan the QR code in the poster, or follow this link
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Hope for a different future - a chat with Lesley about feelings of grief when your child is disabled
Aware Bears is a cerebral palsy (CP) awareness programme supporting people with CP and their families in South Africa. Lesley from Aware Bears has kindly written the following post about experiencing feelings of grief when you have a disabled child. Give it a read, and let us know what you think in the comments! Over to…
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Hi, my name is RachaelK! Does anybody want some trainers/shoes?
Does anybody want some trainers/shoes? My son has right-sided hemiplegia and wears a splint. We have odd pairs sized adult 9-11, larger on the right. Collect or drop off within Leics and surrounding. All box-fresh!
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New APPG on cerebral palsy - Transition to Adulthood
The APPG on Cerebral Palsy is launching a call for evidence for its next two sessions: 1. The transition to adulthood in health and education focussing on the lived experience of young people with Cerebral Palsy (26 April, 11:30am) can be watched here: https://youtu.be/PdCixizNARU</div> 2. Examining the systems involved in…
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teenage friendship worries
My wonderful daughter has CP and is now 17 years old and will soon be starting her final year of sixth form before heading off to university. For all that she is a seemingly happy and content girl, there lies beneath her smiling exterior a lonely, slightly lost, teen. And I just don't know what I can do to help her (hence…
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Hi, my name is floss29!
hi im floss i have a son who is 6 year old with cp we have been offered for him to have sdr surgery is there anyone on the group in the same situation or had the surgery
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Bobath Monthly Adult Meet -Up - Exercising body and mind
Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath neuro-physiotherapist and members of our Bobath team, you can ask us any burning questions, join the discussion and gain some general coping…
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Access, Use and Satisfaction with Physio Services for Adults with CP in the U.K.
The aims of this study were to describe how and why adults with CP living in the UK and Ireland accessed and used physiotherapy services; to describe the type of physiotherapy accessed and satisfaction with physiotherapy services and to examine the associations between relevant factors. Brunel University, Scope, CPAAUK…
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Has anybody been successfully operated on their lumbar vertebrae nerve roots?
Has anybody been successfully operated on regarding leg pain, that has been radiating from their L3 and L4 nerve roots. Perhaps even other nerve roots would be applicable.
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Virtual Reality Research for people with involuntary movements
The PRIME VR Team are inviting potential participants to join a study to evaluate commercially available virtual reality (VR) systems and hand controllers for a project called PRIME-VR2. The team are looking for people (older than 16 years of age) with hyperkinetic movement disorders (dystonia and other involuntary…
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Activities for CP in winchester Southampton area
Hi everyone So looking to move to Hampshire and need activities for CP In Southampton winchester as will need to meet people can able bodied activities is well open to people with a disability. Molly
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Subsidised Places at AAC International Conference in Leeds
Due to successful grant funding, we still have approximately 30 subsidised places available for AAC Users, their accompanying Personal Assistants, and Parents and Family Members of AAC users to attend the Communication Matters International AAC Conference this September in Leeds. Please email the office at…
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Carpol Tunnel Surgery
I have cp and use crutches to walk and about to have carpol tunnel surgery for the 2nd time in a year . I can't walk without crutches and find recovery hard. I have people to help but take away what little independence I have for a few months . I also have permanent nerve damage in hands from crutches. My cp had always…
