-
Bobath Festival of CP 6th October (World CP Day) 2022
You’re invited to join us at The Festival of Cerebral Palsy, to celebrate World Cerebral Palsy Day. On 6th October 2022, in support of the millions of reasons campaign, we will hold an all-day virtual event to celebrate and support those in our CP community. From inspiring stories and dance sessions to interesting panel…
-
Triplegic Cerebral Palsy - Walking
Hello I’m a twin mum with girls just under 2. Bella has hydrocephalus and triplegic cerebral palsy. She is very determined but also very frustrated about Robyn being off walking etc. It got me thinking about how common it is for people with triplegic CP to walk? Out gait trainer has just arrived and it’s freaking me out a…
-
Cerebral palsy and facial movements and expressions
I tend to frown without even trying lol. Or look sad in the face without actually being sad . LOL . I remember a while back I watch YouTube videos relating to people with cerebral Palsy and they were doing the same thing with facial expressions. Obviously there’s some muscles in the face. I know Bell’s palsy relates to…
-
Hi, my name is sarbjeet! I want to know more about CP
Hi, i want know more about CP. could anyone discuss about the lived experience of a person who is unable to communicate. Communication is the key to express ourselves but if someone is not able to communicate due to CP and it’s related comorbidities, how would you discuss his or her lived experience?
-
Bobath Adult Monthly Meet-up for September
Our monthly adult meet-up is back with a brand new focus on nutrition and well-being in CP with Lisa Gatenby, Registered Nutritionist. Register for the event About this event Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at…
-
Hi, my name is butterkist!
Hello I'm new here, I'm a 36 year old female with cerebral palsy, in truth I'm at a loss with everything going on with my condition, Iam in immense pain my mobility has become so poor, used to be able to potter about at home using furniture etc, now that's not even possible, I got my condition through hospital negligence,…
-
Cerebral Palsy Consultants in South Wales
Good afternoon all. My adult daughter has CP and the services from our local hospital are starting to become inadequate to meet her needs. The consultants she sees are specialists in their respective areas but don’t understand the implications having Cerebral Palsy has. Does anybody in South Wales see anybody specialising…
-
CP Sport National Athletics Championships
We hope everyone is having a great bank holiday weekend... Entries for our CP Sport National Athletics Championships close on Wednesday. Events available: 60m, 100m, 200m, 400m, 800m, long jump, discus, javelin & more. If you have any family/friends that may be interested in joining us for a fantastic day, please pass on…
-
Woman with cerebral palsy wins Miss Black Country to raise awareness of the condition
Shannon McNally, Miss Black Country 2022 winner, lives with cerebral palsy and has been working to raise awareness of the condition and its day-to-day impacts. Read the full article in The Metro Alison Kerry, head of communications at disability equality charity Scope says: ‘There are over 14 million disabled people in the…
-
cerebral palsy and "brain fog"
hi all, this may have been covered elsewhere but i have spastic diaplegia and have become increasingly aware of suffering from what i would term "brain fog" i.e. today i made a coffee left it in the kitchen and was 15 minutes into my work day (i work from home) before i realised i had left it in the kitchen. Has anyone…
-
Join the movement, by signing the petition #freetherapyforCP
Join the movement, by signing the petition #freetherapyforCP In the Bobath Centre’s 65th year, they have launched a petition calling for free specialist therapy for people with cerebral palsy, throughout their lifetime. Cerebral palsy is a neurological condition caused by brain damage around the time of birth. Too many…
-
Patella Alta treatment
Having just found out by accident that the horrendous knee pain my teenager is dealing with is cause by Patella Alta. This is causing him to go from walking unaided to totally supported or not at all and other issues. I am now wondering if anyone has had treatment for it i.e. surgery, used knee braces, which ones, gone…
-
CP Sport National Athletics Championships
CP Sport National Athletics Championships will be held at the University of Warwick Athletics Track on Saturday 17th September 2022. Entries are now open. Participants can enter a maximum of 3 events. The closing date for this event is 31st August at 11.59pm. Events available are:Track - 60m, 100m, 200m, 400m, 800m, 1500m,…
-
Hello
Hello everyone my name is Darcey I have CP I’m looking to meet people with CPif anyone could help me out I’ll really appreciate it! Have a good day Darcey 😁
-
Managing Tiredness/Fatigue - Child
My daughter (5 in Oct) has CP and struggles with tiredness, which can affect her mobility, concentration, behaviour etc. she sleeps well generally and eats well. We want to help her manage her energy better as she is about to start school and we want to give her the best experience possible. Does anyone have any tips or…
-
CP/ADHD.
Hello. I am a 47 year old female living with CP. I was officially diagnosed as a child and after some hospital investigation and Achilles Tendon lengthening Surgery I was discharged from NHS care at around 7 years old. The Consultant told my mother at the time to take me home and forget all about it. I believe I was…
-
How long do people with CP live?
I ask this with tongue in cheek. It was asked on an animated show recently, and the answer came back 'well you never see a grey haired one'. I'm 63 and have CP which affects my left side. Last year I fell and broke my left hip. My right side, which has always taken the strain and has long been overused suddenly couldn't…
-
CP Sport Athletics event in Doncaster on Saturday 20th August
CP Sport are hosting an Athletics 'Have A Go Day' in Doncaster on Saturday 20th August. An opportunity for anyone to try throwing, jumping, frame running & more! Free to register! Please came along & share with others that may be interested To register either scan the QR code in the poster, or follow this link
-
Hope for a different future - a chat with Lesley about feelings of grief when your child is disabled
Aware Bears is a cerebral palsy (CP) awareness programme supporting people with CP and their families in South Africa. Lesley from Aware Bears has kindly written the following post about experiencing feelings of grief when you have a disabled child. Give it a read, and let us know what you think in the comments! Over to…
-
Hi, my name is RachaelK! Does anybody want some trainers/shoes?
Does anybody want some trainers/shoes? My son has right-sided hemiplegia and wears a splint. We have odd pairs sized adult 9-11, larger on the right. Collect or drop off within Leics and surrounding. All box-fresh!
