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Feedback on Education Support and Services
Children and young people with cerebral palsy and their families are under-represented in current policy initiatives – both below offer a chance to contribute to the policy dialogues currently happening. Feedback on Education Support and Services: On behalf of the Department for Education, the Council for Disabled…
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PA’s and the social care crisis; the price we pay for independence
Article on We Are All Disabled I think we are all somewhat aware of the ongoing shortages in social care over the past year. More often than not we hear on the news about the drastic lack of staff in care homes and agencies. But what about the thousands of people like me who employ Personal Assistants? Our voices are not…
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The Effect of Progressive Functional Strength Training on Neuromuscular and Motor Function in Child
Research opportunity with the University of Exeter Research Ethics Committee Review OutcomeEthics Application ID: 529822Title: The Effect of Progressive Functional Strength Training on Neuromuscular and Motor Function in Children with Cerebral Palsy: Pilot Study(Version: 1.1)Proposed Project Duration: 3 Apr 2023 - 1 Apr…
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Cerebral Palsy and transitioning from child to adult care - Survey participants needed for MSc study
Hi! I'm Charlotte, an MSc Occupational Therapy student currently completing my dissertation on the transition from child to adult care for people with CP. I'm looking for participants aged 18-30 with Cerebral Palsy in the UK to answer an anonymous 15-minute survey about their experiences with OT and transitioning from…
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Man with cerebral palsy makes history climbing Everest
A man with cerebral palsy made history climbing Everest with the help of a ten-strong team and a horse to carry him some of the way. Five years later, Max Stainton-Parfitt is sharing his adventure in documentary My Everest, showing his mission to undertake the first trek of its kind as he worked through ‘incredible pain’…
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Hello from Vancouver Canada My name is James I'm 45 have CP
Hello, it's nice to meet everyone. I haven't been to the UK in many years but have fond memories as my grandparents lived in Windsor, Berkshire. I'd like to talk with people like myself as I haven't found anything like Scope in Canada
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Parents of Cwmbran girl diagnosed with cerebral palsy reveal impact Taekwon-Do has had
The parents of a girl diagnosed with cerebral palsy have revealed her determination to live life to the full despite the daily challenges she faces. Eirwen Ansell was found to be in the breech position when her mum Cath Ansell was admitted to Royal Gwent Hospital in Newport nine days over her due date. Cath was admitted to…
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Machine offers hope to Portsmouth teen with cerebral palsy
A teenager with cerebral palsy is hoping a machine will help him avoid major surgery to have his hips removed. Sam Deakin, 16, from Portsmouth, has already undergone four operations on his hips which means he is no longer able to walk with a frame. He has been trialling a training machine from Norway called the Innowalk.…
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I have cerebral palsy and fibromyalgia
hi all, i have mild ataxic cerebral palsy. I can walk but have reduced power in my limbs. Have balance issues and also walk with a gait. However I have always worked and have an amazing job working with other young disabled people. However over the past couple of years I found myself becoming very fatigued and aching all…
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Baclofen 10MG cerebral palsy
Hi just a question I’ve been given Baclofen to day off my doctor I’ve been told to take half a 1 3 times a day 1. How do I cut them in half I know I could get a pill cutter but could anyone recommend one that’s easy to use. 2. Anyone on these pills what’s your experience please.
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All-Party Parliamentary Group on Speech and Language Difficulties
On 22 March, Geraint Davies MP, Chair of the All-Party Parliamentary Group on Speech and Language Difficulties, led a debate on the specialist workforce for children and young people with special educational needs and disabilities. In the debate, MPs from all parties highlighted the issues affecting the specialist…
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MP with Cerebral Palsy has been mocked and accused of being drunk, Commons hears
An MP with cerebral palsy has said he regularly receives messages accusing him of being drunk when he speaks in Parliament. Paul Maynard, a Conservative MP and former minister, said that “every time” he speaks in the Commons he receives such messages, despite not being able to drink alcohol because it risks triggering his…
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Disability and Sex a hidden taboo?
Disability and Sex: A Hidden Taboo in Society? Credit: Мария ГисинаDisability and sex are a combination rarely discussed whether that be in mainstream media, healthcare, education or in general society. Too often the assumption is made that people with impairments do not date, enjoy intimacy or have an active sex life, and…
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CP Network Meeting 12th April 6pm-7pm (Zoom)
Hi All, I hope you have all been keeping well. Spring is in sight, so fingers-crossed for an improvement in the weather. Just a gentle reminder about our CP Meeting on Wednesday, 12th April at 6pm. If you have anything that you would like to be discussed, or for you to share, please do let us know so we can book time for…
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Look Inside the Therapy Room with Chrissie Henson
As part of Cerebral Palsy Awareness month, I am talking with Chrissie Henson. Chrissie is a person-centred therapist and author who lives with cerebral palsy (CP). Chrissie lives in Leicestershire and is a keen advocate for disabled people’s independence and autonomy. [Chrissie is kneeling on the decking on the edge of a…
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Celebrating Cerebral Palsy Awareness Month
We are excited to hold a member's social event celebrating Cerebral Palsy (CP) month. You will be able to meet other members, share experiences and have fun. Date: Monday 13 March 2023 Time: 6:30 pm to 8 pm Location: online using Zoom About the event We will be celebrating CP Month together and hearing from amazing…
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Dieplegia CP and Dizzy spells
Hello everyone My name is Tommy, I am 41 years old and have Dieplegic CP which affects my mobility greatly more so now that I am ageing, I am finding I am becoming much more tired more easily, but what is most concerning is, is that I have begun to experience dizzy spells which affects my balance and leaves me disoriented,…
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cerebral palsy groups
Hi I have cerebral palsy and I am looking for cerebral palsy groups in Berkshire that meet up for coffee Mornings
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Botox injection
hello 👋 my son is 24 and has mild form of cp in his legs. He is due to have his first treatment of Botox next week I am praying he finds it positive and works for him. Any advice would be appreciated Thank you.
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What is CP Awareness month?
What is CP Awareness month? March is Cerebral palsy awareness month, which is dedicated to the 17 million people diagnosed with Cerebral palsy around the world. Let’s shed some light on cerebral palsy, shall we? It’s a neurological condition that affects the movements of the limbs and the overall body. It can also affect…
