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I’m fed up of fighting
Hi my name is cplife I’m fed up of fighting for everything I feel forgotten about more so since Covid i also suffer with health anxiety I’ve had since childhood I was born in the 70s hospital visits where horrible back then these visits took me up till I was sixteen and then all care stopped I’ve received a letter to ask…
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All Party Parliamentary Group on Cerebral Palsy First Session
Scope, in partnership with Adult CP Hub, is sponsoring the next two sessions of the All-Party Parliamentary Group on Cerebral Palsy* https://connectpa.co.uk/appg-cerebral-palsy/. There will be two sessions focused specifically on issues affecting adults with cerebral palsy followed by a written report which will make…
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New CP Football Season starts next month
The National CP football league is looking to start next month we would love to hear from any adults that are interested in playing or getting involved. For more information on the league and opportunities to play CP football please drop Rich Kerr an email Richard.kerr@cpsport.org
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I'm struggling with secondary ageing. Anyone know how to disguise your nappys when out in public?
Hi, my name is Ian. I have left side hemipligia from birth. Im 47 years old now. I am deperatly struggling with secondary ageing, sincw my late twenties. i do not work i just try to exist. pins needles numbness, enourmous pain just got to put up with it. severe fatigue as well so mant tablets i take,from baclofen…
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Soft Handel crutches
Does anyone know a company that does soft moulded handle crutches thank you
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Hi, my name is Bob_! I suspect the problems in my left leg could be undiagnosed CP
. I'm new here. At 58 y/o, I'm looking around, reading up on support: I suspect life-long problems I've had with my left leg could be undiagnosed CP. I'm willing to find out, having stumbled on or up pavements no less than five times yesterday :) . I suspect people think I'm drunk.
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Hi, I'm subg and my youngest son has cerebral palsy and am looking for friendly advice
:)
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Carpol tunnel from long term crutch use
Hi I have Cp and gave been using crutches for 20 years they have damaged my hands and need surgery on both hands for carpol tunnel . I am loosing fine motor skills with my hands like writing ,eating dressing etc . I have put this off for years as need my hands to move but I can't let them get worse as what I have lost…
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What can I expect at my neuro rehabilitation phone appointment
Hi guys me again, I’ve just booked myself in For my first neuro rehabilitation appointment. It’s got to be over the phone due to Covid apparently. Never been to rehab before so just wondering what to expect.. thanks in advance.
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New website and new look for CP Sport
National disability sport organisation CP Sport launch its new website and branding today as part of its digital strategy. It is CP Sport's vision that everyone with cerebral palsy is able to access and enjoy being physically active throughout their lives. Approximately 160,000 people have CP in the UK and despite the…
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Hi, I am DepperDip. My 17 month old fosterling is probably going to be diagnosed with CP
I have joined the site as I have recently been told my 17 month old fosterling is most likely to be given a diagnosis of cerebral palsy, it hasn't come as a great surprise to be honest but I am hoping for some guidance and support from others who have more experience than me.
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Hi my name is Hope. I’m struggling with my cerebral palsy
Hey my name is Hope I’m 24 and I have cerebral palsy. Arthritis and epilepsy. I’m struggling with my cerebral palsy at the moment and I seem to be getting no where with the doctors, I’ve spoken to my GP and he has prescribed me diazepam to help with my muscle spasms in the short term however neither my GP or rheumatologist…
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Helping a sibling who's dealing with anger, regret, and frustration
Hello. i hope this finds everyone well at this challenging time. I am new to this forum & asking if any good resources for people with CP dealing with anger, regret and frustration in their mid life (40s). My sibling is really struggling and, living with our parents, directing anger at people closest to them. They have…
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Hi, my name is Lemony! My son has CP and I'm looking for advice
My son has CP and I want to know everything I can about it and about what I can do to be a good mum to him.
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Ear plugs and the startle reflex
I was just wondering if anyone has found ear plugs useful for reducing the startle reflex? I tried some cheap ones from Poundland but found that they made my ears sore wearing them every day & I couldn't get used to speaking at a normal volume with them in. I've been looking at the Calmer ear plugs & the Vibes ear plugs.…
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An Open Letter to My Body with Cerebral Palsy
Content and Trigger Warning// Body Image Rebecca R writes an open letter to her body. Dear Body, Where do I even start with you? Everything in me wants to curse you out right now, but I know that isn’t going to do any good. I hate you most times, but yelling at you won’t change a thing because the things I hate the most…
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Hi, my name is cloe! My daughter has been diagnosed with Cerebral Palsy
Hello, my daughter has been diagnosed with cerebral palsy today and just wanted to reach out to anyone with knowledge on what we can do to help her?
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Bobath surveys on the effect of Covid-19 on adults and children with cerebral palsy
We are a charity for babies, children and adults with Cerebral Palsy and we have recently created 2 surveys to find the impact of the pandemic on people with Cerebral Palsy and other neurological conditions as we believe this was a particularly challenging time for the disabled. First survey investigating the impact on…
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Have a newly qualified SW trying to change a long-standing care package. She has no knowledge of CP
Hello lovely people. I m not sure if this the right forum but I m desperate and don t know where to turn for support/advice. Basically on behalf of my brother (it’s just me next of kin). Suddenly we have a newly qualified SW trying to change a care package that’s been in place for no less than 17 yrs !!!! She clearly has…
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Campaign Promoting Children Disabled Social Services and Reducing Stigma
My name is Joanna, I am a registered adult nurse and I am a mother to 4 children, my oldest and will be 11 this August, has Cerebral Palsy and is severely disabled with complex health needs. Over the years we have had to fight, pretty much for everything to get what she needs. One of these fights was to get a social worker…
