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Research Inquiry
Hello, My name is Nadia (Removed surname) and I have cerebral palsy. I am a masters student at the University of Oxford studying the lives of physically disabled children from 1920 to 1940, specifically examining their identity, representation and agency. I am looking for first-hand accounts of children who may have used…
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Cerebral Palsy Sport launches new Club Finder as the nation returns to play
Cerebral Palsy Sport launches new Club Finder as the nation returns to play As the government eases lockdown restrictions for sport, more people with cerebral palsy will be able to find local sport and activity clubs through a brand-new online club finder. Cerebral Palsy Sport (CP Sport) has launched ‘Club Finder' on its…
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Cerebral palsy study for children aged 10-16
Hello everyone! I'm posting on behalf of our research team in Oxford. We are currently running a research study in Oxford for children aged 10-16 years old with cerebral palsy. The aim of the study is to determine if the combination of a non-invasive brain stimulation technique (called tDCS) and physical therapy can assist…
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Network CP Survey - win £50 for sharing your thoughts.
Network CP is a special interests group for the Cerebral Palsy community and their families in England and Wales which will help Scope shape various strands of its work. We would like to work with you to understand your needs better. This survey will only take 5 minutes of your time and by completing it you influence and…
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Post 16 transitions for young disabled people
Educational Pathways and Work Outcomes of Disabled Young People is a 3-year research project funded by The Leverhulme Trust. We are based in the Department of Sociology at the University of Warwick. Our aim is to explore the factors that lead to disability inequalities in educational and occupational attainment in England.…
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Is cooing a good sign?
I have a 2 months old son that has been diagnosed with quad cp. How can you tell their cognitive functions are not affected please? My baby started cooing a few days ago.
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Writing My Story by Daniel Kay
Writing my own story means I can fill it with the memories I want. I can tell you how colourful the viewIs from my side of the coin.It has a little to do with luck. And everything to do with a mindsetthat lets me see the world for theconstant fireworks show that this life gives. It doesn’t ask for anything in return,and I…
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Thumb splint
Does anyone have any recommendations for thumb splints? I have v mild CP and use one crutch to walk and, of course, the hand I use the crutch with is my worst hand as the little and ring fingers are clawed and the thumb on that hand is now catching and sticking when I bend it. The crutch was recommended to stop falls and…
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Dear Occupational Therapy Community
Georgia Vine is an Occupational Therapy student and ambassador for CP Teens, she also writes the most excellent blog Not So Terrible Palsy. I will let Georgia explain in her own words Now, I know what you’re thinking and yes, this post is a bit late in the month to just be addressing this subject, there is a reason and…
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We Won't Be Forgotten
As part of our We Won’t Be Forgotten Campaign, we are currently trying to reach out to disabled people facing financial worries (employment or welfare-related) as a result of the pandemic. An example might be someone who is worried about returning to the workplace or has been denied furlough, or someone who has had their…
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It's not too late to Spring into Action!
Exciting news! If you haven’t signed up for Spring into Action yet it’s not too late! The programme which we have created specifically for adults with cp will now start on the 19th of April with the deadline for entering closing at 8 pm Friday 16th April. Spring into Action is a 12-week programme designed to get you…
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The Benefits Of Gaming Therapy For Children With Cerebral Palsy
Image of a person gaming on a PC Around 73% of Americans two years and older play video games, accounting for 17% of entertainment and 11% of total time spent on recreation. Gaming has many benefits, including brain stimulation, stress relief, and improvement of problem-solving skills. Among children with cerebral palsy…
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Neuro psychiatrist - help please
We need to access a specialist neuro psychiatrist (not a psychologist) who knows about the nuances of athetoid CP and mental health/emotional control. Does anyone have any suggestions please? GP has supposedly made a referral but that was months ago and I'm not even sure who it was to...someone Manchester or Liverpool.…
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Hi, my name is dabradl! I’m looking for support groups of people living with CP to network
I am a adult male (30 yrs old) with mild Cerebral Palsy. I’m looking for support groups of people living with CP to network, support each other, and talk to people dealing with life with CP. Does anyone know where I can find that?
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Parenting and Cerebral Palsy
Hi, I'm Richard and I live with Cerebral Palsy, Spastic Quadriplegia to be specific. I am the specialist information officer for Cerebral Palsy in the community, but today I will be talking about my experiences of being a parent for Cerebral Palsy (CP) Awareness Month. Richard and his daughter on a holiday Could I really…
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Mixing with people
Hi I have just responded to @JBro post about meeting with other disabled people only, at least that’s how I understood his question. I am curious to know why some disabled people are only happy to connect with their own kind. I find this very strange as if we (the disabled) want to be seen as equal in society, why would we…
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Hi, my name is SonyaKBlackburn! I'm looking for Cancer Support Groups for people with CP
Hello: I live in Oklahoma. I am looking for. Cancer Support Group in my area for individuals with Cerebral Palsy. How do I find one?
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It's never too late
Hi all, I hope that this finds everyone well and I would please like to thank you all for taking the time to read this. As Cerebral Palsy awareness month comes to an end, I would like to share with you what I have been doing this month. As we can all appreciate, living with Cerebral Palsy is not easy and it has an impact…
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Being creative and creating awareness
Poetry or any type of creative task/hobby is a good way for us to look after our mental wellbeing. Over the past year, we have learned how important self-care can be. Daniel Kay is a poet who lives with CP. He has kindly shared one of his poems. You can find out more about Daniel and his work at Home | DK4poetry Love…
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Cerebral Palsy vs Mental Health
"Mental health conditions can be very debilitating, there is much research out there about this subject. But I was surprised at how little there was on mental health within the physically disabled population. As a disabled person myself, I was surprised to find little substantial material on the subject or in any general…
