Baclofen- to take or not — Scope | Disability forum
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Baclofen- to take or not

underthestars
underthestars Member Posts: 3 Listener
edited October 12 in Cerebral palsy
I’ve recently seen a Doctor and he would like to prescribe me Baclofen, I’d never heard of it before last week. Does anyone have any experience of taking it. Good and bad.

I don’t have spasms but my legs are tight and heavy. Which is in turn painful.
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Comments

  • underthestars
    underthestars Member Posts: 3 Listener
    Hi 👋 

    I’m Hannah, 30 and I live with my husband and cat. I’m here because I have Cerebral Palsy and over the past few years I’ve noticed things are changing and getting challenging. 
  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,923 Disability Gamechanger
    Hi @underthestars and a warm welcome to the community! How has your weekend been? :)
    Disability Gamechanger - 2019
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,452 Disability Gamechanger
    Hi @underthestars - & welcome to the community. I imagine, as with many disorders & meds that may be prescribed, it can be a bit of 'trial & error' to find what may work for you. Here's some info for patients about Baclofen, where you'll see it's a muscle relaxant that can help with CP: https://www.medicines.org.uk/emc/files/pil.2594.pdf
    I will ask @Richard_Scope Scope's Specialist Information Officer as regards CP if he would advise.
  • Richard_Scope
    Richard_Scope Posts: 2,912

    Scope community team

    Hi @underthestars
    Baclofen is very commonly used for muscle spasms and tightness in people with cerebral palsy (CP). It is a muscle relaxant. It is taken orally but can be delivered in higher and more consistent doses via a pump.
    As with all medications, there can be other effects. It is important to work with your G.P. to find the right dose for you.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Reg
    Reg Member Posts: 56 Pioneering
    Hello @underthestars

    I took baclofen for many years . If you do decide to take it the main thing is to increase the prescription slowly until you and your GP are happy that you have the right dose for you with the maximum benefits.

    I found that baclofen made me very tired but I could certainly walk better on it with less tightness and more flexibility. 

    If you decide to give it a go then good luck 

    If you are not having neuro physio you may want to ask your GP for a referral so you get the maximum benefit out of the baclofen 

    good luck with it 

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