Monoplegia — Scope | Disability forum
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Monoplegia

Annabelle6
Annabelle6 Community member Posts: 9 Listener
edited December 2021 in Cerebral palsy
Hi, is it unusual to be affected in just one limb? My daughter has spasticity in her leg. She’s 5 and it hasn’t been diagnosed yet, I’m wondering what the chances of it being CP are or something like HSP. Thanks 

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Hello @Annabelle6

    Thanks for posting about your daughter's situation, is she in the process of getting a diagnosis? I am unsure of how common or not it is to be effected in just one limb, but I hope that you and your daughter will be able to get some answers soon.

    I have tagged your discussion as unanswered, and hopefully others will be able to reply to you.
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  • chiarieds
    chiarieds Community member Posts: 15,858 Disability Gamechanger
    Hi @Annabelle6 - & welcome to the community. Monoplegia certainly can be a form of CP I know, as I used to treat children with CP working as a physio. If you have concerns, I'd discuss it with your GP & ask for her to see a paediatrician. It would also be worthwhile getting her assessed by a physio (preferably a neurophysio, or one that specialises in seeing children).
    I'm sure you'd like some answers, & physio would help her too.
  • Annabelle6
    Annabelle6 Community member Posts: 9 Listener
    Thanks @chiarieds - yes we are awaiting consultant apps but I guess it depends how good they are at diagnosis as it sounds complicated. So did you see many children with monoplegia? Any with just one leg affected by spasticity? Do you know if it then progressed more than standard CP does? Thanks so much 
  • chiarieds
    chiarieds Community member Posts: 15,858 Disability Gamechanger
    Hi @Annabelle6 - yes I saw several children with monoplegia, but, if memory serves me right (& it was a long time ago), it was mainly their upper limb that was involved. It's good that you're waiting to see a consultant as it really helps to get a diagnosis; it can take time, as her consultant will need to observe & continue to assess her. Every child is different if they have CP; you definitely can't presume your daughter would be more adversely affected than another child with CP, if she has this.
    Kindly let us know how you get on.
  • Richard_Scope
    Richard_Scope Posts: 3,614 Scope online community team
    Hi @Annabelle6
    In comparison to hemiplegia, diplegia and quadriplegia, monoplegia is fairly rare. Diagnosis should be a result of observation over a period of time, as it is with most CP cases. 
    Scope
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