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Hi, my name is MrsTibtabs! I have a cousin who has Cerebral Palsy
I have a cousin who has cerebral palsy who lives in Basingstoke and needs support with the care package provided by the local social services who are not only very hard to contact but don't seem to care much when you manage to get through. He lives independently with support but the last two companies who have provided his…
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Face to face social group
I am writing because I am interested in setting up a group that are able to meet once a month maybe more depending on the level of interest. The pacific disability I have is cerebral palsy but I want this to be open to everyone no matter what age or ability I want to create a safe space for people to share their…
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Hi, my name is 830bessie! I want to meet others with Cerebral Palsy
Hello, I appreciate an opportunity to meet other people with Cerebral Palsy. I am 57 and newly diagnosed.
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Hydrotherapy Pools
Hi, I live in South East London, Lambeth and want to find a good hydrotherapy pool for my daughter who has CP. She also has extreme bronchopulmonary dysplasia so I am very keen to reduce the risk of her catching a cough or cold as this could result in bronchiolitis. Does anyone know of a good pool where she could have…
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Looking for swim lessons/hydrotherapy for young son with CP
Hi everyone, I hope you’re all good. My wife and I were looking for swim lessons and/or hydrotherapy for our 3 year old son who has spastic diplegic cerebral palsy. He loves swimming and water play (even bath time), and we want to help his development by taking him to sessions so he can exercise and gain confidence while…
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Hi, I'm Agathe. Newly diagnosed mild left hemiplegic spastic cerebral palsy...at 36.
Hi everyone. I'm Agathe. I've just received a diagnosis of mild left hemiplegic spastic cerebral palsy at the age of 36. It certainly explains a lot about my childhood, and my body, and given my neonatal history it's not really a surprise, but it reeeally should have been picked up in childhood. Anyway, as an adult I've…
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New diagnosis
My son has recently been diagnosed with hemiplegic cerebral palsy and we're not being given any help or advice from doctors. He has a fear of loud noise and I wondered if this is just a phobia or if it maybe part of his condition. Any advice please
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Gaining muscle mass on affected limbs
Hi, everyone! Have people been able to gain muscle mass in their affected limbs (i.e, legs, given spastic diplegia) with PT and/or exercise? Is it possible? Thanks!
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My CP is now effecting my right side
Hi there my name is Sam and I am 22 years old I have mild CP on my left side and over the last few months I’ve been experiencing pain in my right leg. I’ve seen a few MSKs and I’m due to see podiatry in about a weeks time, I’ve been diagnosed with early degenerative disc disease on my right disc and I am doing physio for…
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Cerebral Palsy and dating
Dating when you have a disability can certainly be a challenge. However, we too are worthy of love. I found online dating a minefield and always felt the need to ‘announce’ my disability at some point. Not to mention the fact that some people think disabled people cannot date someone who is non-disabled. One major…
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Advice on aspects of the condition
Hi Ive had a left sided hemi paresis/hemiplegia (dependent who you talk to) since shortly after birth in 1974. Ive never really had an official diagnosis, but have a squint, slight facial changes and hold my hand curved up and walk with a limp, and have started to wonder about the way I eat/drink (so am effectively 1…
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Hi, my name is Emmz86 looking for advice on increased pain as a adult
Hi! I'm new here. I have CP and have recently noticed a big decline in my mobility, the trips and falls have increased as has the pain, mostly in my hips and ankles. I recently visited my GP and she has referred my for physiotherapy. I haven't had physio since I was a child and I'm interested to know what others also found…
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Bobath are talking about CP and chronic pain
{Man with CP looking at and using touch screen technology] Our friends at Bobath are hosting a free online meet-up to discuss CP and chronic pain. Wednesday 23rd of June 11:30 am until 13:00 Monthly Adult Meet -Up - Chronic Pain Series Tickets, Wed 23 Jun 2021 at 11:30 | Eventbrite
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Researching experiences of adults with CP through art.
Researching the experiences of adults with CP through art This study proposes to use art to raise awareness and understanding of lived experience under policy for adults with Cerebral Palsy. Here is a link to an explanation and background information (please click download to see the document) The study will be conducted…
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Hi, I'm sidlibby! Are penis issues i.e. premature **** common in males with CP?
I am 33 yrs old and about ten years ago began experiencing numbing of my penis along with premature **** and soft erections. Up until this point I had never had such issues. It was if it happened “overnight” I have spastic diplegic CP. only recently had I (through my own web search) found that this could be caused from…
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REVEAL -CP - Screening Study for People with Cerebral Palsy Symptoms
WHEN YOUR CEREBRAL PALSY SYMPTOMS GO UNEXPLAINED, A RARE GENETIC DISORDER MAY BE THE CAUSE For people diagnosed with cerebral palsy with no known cause or those with CP-like symptoms that look like cerebral palsy with no known reason, please consider this research study that may help identify if there is a rare underlying…
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Study shows when people with cerebral palsy are most likely to break bones
[Image of people using mobility aids with limbs in casts] Throwing out one’s back is a universal, albeit clichéd, sign of middle age. What’s less common is 50-year-old men with the fragile bone strength of men in their 80s. Researchers at Michigan Medicine found a subset of middle-aged men with cerebral palsy are up to 5.6…
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Portable curb rampsbe
Hi all, I wonder if you can help. I am looking for a portable curb ramp that I can carry with me on my mobility scooter. I’ve looked on line, but they are expensive and do not appear to be that portable. I would be very grateful for any advice or ideas. Thanks very much.
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My 8yr old has been diagnosed with hemiplegic cerebral palsy after years of fighting with doctors
My son is newly diagnosed with cerebral palsy and I'm feeling a bit lost
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Aging with Cerebral Palsy
Hello I have mild Cerebral Palsy (Ataxic) which affects my balance and coordination. For the past year I have noticed my balance has become more unsteady, which was mainly down to the whole pandemic as I wasn’t able to get out and do my usual routine/exercise. However I have now been back to a kind of normal now for a good…
