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My CP is now effecting my right side
hope you guys can help
thanks
Sam
Comments
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Hi @skenneth (Sam)
Welcome to the community and thanks for posting.
It does sound like overuse of your less affected side. Do you wear AFOs?
Your G.P. should refer you to a multi-disciplinary team that includes neuro-physiotherapy via the Adult CP Care Pathway for the under 25s at University College London HospitalThe importance of movement with CP. Pain, stiffness (more than your normal) and discomfort can be a sign of a lack of movement.
With CP, our nervous system is affected - how is different in every single one of us. Our nervous system, which is our own computer, keeps us alive and gives us the ability to move.
All our bones, joints, tendons & muscles are all connected & rely on signals received from our nervous system.
So the less we move, the less our nervous system is working, the fewer signals are being sent to connecting parts (muscles, tendons etc) the less we use our muscles the tighter they become, (pull an elastic band & this is what a tight muscle looks like, a muscle should look like a non-pulled elastic band ) our joints become stiff as they don’t know what they need to do.
So, imagine you have a laptop, it’s about 10 years old, you turn it on, but it takes an hour to fire up so you can use it. This is what your body is doing the less we use it, and why we get pain.
Strength (resistance) training is the best type you can do, it strengthens the muscles up, especially around affected joints. It makes sure you stay strong & keeps sarcopenia at bay, it helps speed up your metabolism, helps you lose weight, it helps the body with the latter 2 even at rest. (You can use anything as weights from milk bottles filled with rice or water, wine bottles, tins of beans, shampoo bottles, shower gel, washing up liquid etc) this can be done seated or standing.
I hope that is of some help. Let me know how it goes with the podiatrist.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Thanks Richard
I wear a DMO orthotics Lycra sock on my left leg and have a raise in that shoe and an insole in my right shoe for my hammer toe. Also recently discovered that the raise they gave me back in November was a cm to high so that’s also caused me issues. I’ve been working from home for 9 months so I definitely thing this has impacted it too
Funnily enough my left side has been doing good it’s my right side that seems to be fed up with over usage I live in Scotland so I will try find the same department but up here
thanks for the really helpful info and I’ll let you know how podiatry goes -
@skenneth I'd get in contact with our friends at CP Scotland. They should be able to guide you.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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