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Having problems with the culture due to my disability
I was born with Cerebral Palsy in 1984 not severely so, just with my hamstrings being so tight I can not stand unaided or for very long, I can just about make it to and from the car on crutches or my frame. I am living with my mum in swanscombe between Dartford and Gravesend in Kent and and am on the local council list for…
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Mild CP - trying to understand my cp.
Hello everyone, I have been told since I was a child that I have mild CP. It's so mild that many people would not notice anything unless I told them and I really don't know or understand much about my diagnosis as it wasn't really talked about at home. I was just taken from one physio or doctors appointment to another. My…
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Hi, my name is Welshjayne2021! Does anyone have advice on dealing with Post-Impairment Syndrome?
Hi, I’m Jayne and I live in sunny South Wales, with my youngest daughter and my husband. My eldest daughter and son live with their partners. I have had CP from birth and basically just got on with life until recently. Over the last couple of years, my mobility has been in decline, not to mention the muscle stiffness, the…
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"I am a woman who wants"
Cerebral palsy made my body a country of error and pain. It took me years to accept the part of me that craves intimacy by Molly McCully Brown he autumn I was 19, I entered my college dining hall in California just in time to overhear a boy telling a table of mutual acquaintances that he thought I was very nice, but he…
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Advice on electric wheelchair batteries not holding charge
My electric wheelchair batteries not,holding charge I appreciate your advice
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Videos for managing your CP
The National Hospital for Neurology and Neurosurgery (NHNN), University College Hospitals London's (UCLH) Spasticity Team and Brain Appeal have put together some advice videos for people living with Cerebral Palsy (cp) and their families and friends. Episode 1. Spasticity Overview and Management…
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Search for Yorkshire Accents
Yorkshire accents wanted to replace 'generic' speech aid voice A man whose speech aid makes him sound "American" is looking for volunteers to help him speak in his native Yorkshire accent. Richie Cottingham, who has cerebral palsy, says his speaking aid's generic voice does not represent his identity. "I want to sound like…
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Mark CP Awareness Month with CP Sport
#LetsTalkCerebralPalsy Cerebral Palsy Awareness MonthMarch 2021 Regular participation in physical activity can make a big difference to people with cerebral palsy. Read on 'Twenty Miles This March' fundraiser for CP Sport Join in Celebrating 20 Years of CP Sport - Saturday 27th March Register now Cerebral Palsy Sport…
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Lockdown, homeworking and CP
I’ve not written much on here since I was first diagnosed with mild CP at 44. However, I’m after some further advice/reassurance please! I’ve been homeworking now since April and although at the beginning and during the time between when I was furloughed I did go on regular walks with my partner. However, I’ve now seen an…
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#StampOutTheGap with Adult CP Hub and Scope
Adult CP Hub has launched a campaign during Cerebral Palsy Awareness month to create equality in healthcare for people living with CP. The ‘stamps’ have been launched to raise awareness of how adults with CP are treated like ‘Second Class Citizens’ when it comes to healthcare. Charity Adult CP Hub is asking the Government…
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Free Events with Bobath
Join Bobath for a moth of virtual events marking Cerebral Palsy Awareness month. To book the free events visit www.bobath.org.uk/EVENTS #letstalkcerebralpalsy
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Nerve damage/CRPS?
Hi everyone Hoping someone can help with the current hell I find myself living in. 20 months ago I had my second child via c section. The spinal anaesthesia was administered incorrectly (hospital words not mine) and at 3 days postpartum I was admitted with severe burning in the right leg, no bladder function and a…
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Disabled Actors Needed!
Validation (A Rap Musical) by David Thorpe ZOOM READINGIncludes minimal rehearsals and ONE Zoom Table Read that will be Ticketed. All actors will have their script open on their desktop for the reading. SYNOPSIS When attending the Edinburgh festival, journalist Owen, who has cerebral palsy, is doubly amazed when for the…
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Painful ‘knot’ in weaker leg
Hello! I’m just wondering if anyone has either had a similar experience to this or any remedies... I have CP which affects my left side predominantly. Every few weeks I get a ‘knot’ in my weaker leg’s calf that makes it painful to walk and it feels like my muscles are really clenched. Has anyone else with CP experienced…
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Events week of 22 Feb with CP Midlands
Hello everyone – here we are set up for another week of online activities on zoom and Facebook. Here are all the links below. Cerebral Palsy Midlands 2021 Up and coming online activity plans – Week 8 Monday 22nd February 12pm Catch up on Zoom https://us02web.zoom.us/j/82770538958 2pm Music with Matt live on the CPM…
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Hi, when will my son receive the Covid-19 vaccination
Hi my Son is Spastic Quadriplegic CP from birth non verbal and has Autism... he needs all care .. he sits in a moulded wheelchair and can use a joystick and one finger to find his way round the internet ... what is troubling me is we never got a shielding letter for him and can’t make out why his CP friends have had there…
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Medical notes
Hi all! My daughter has been recently diagnosed with cerebral palsy, specifically hemiplegia. She was also born earlier. We have now started physiotherapy but I would like to have all the medical notes of my antenatal care and labour (with details). Has anyone done this before? Do you know how to obtain this information?…
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My son has Cerebral Palsy and is dependant on a wheelchair
My son has cerebal palsy and is dependant on a wheelchair. For quality of life I am thinking amputation of below knee and prosthetics for him as his upper legs and waist are strong has anybody had this please. He is 21
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Hip Replacement
Hi I was diagnosed with coxa valga back in January 2020, and have finally been given a date for my first replacement of 25 February, but I'm really anxious. Not about the surgery itself so much as the aftercare and being told that hip replacement surgery hasn't been performed on anyone in North Devon or even most of Devon.…
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Eternal Healthcare: Women and girls speak. The final film
As some of you might be aware Scope, The University of Birmingham and The Burdett Trust for Nursing are carrying out research into the experiences of women and girls dealing with reproductive healthcare at different stages of life. As a part of the ongoing research, some interviews were filmed. Here are their experiences…
