Cerebral Palsy
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Hi, when will my son receive the Covid-19 vaccination

patsyannepatsyanne Member Posts: 4 Listener
edited February 22 in Cerebral Palsy
Hi my Son is Spastic Quadriplegic CP from birth non verbal and has Autism... he needs all care .. he sits in a moulded wheelchair and can use a joystick and one finger to find his way round the internet ... what is troubling me is we never got a shielding letter for him and can’t make out why his CP friends have had there vaccine already any Sam ( he is 35) hasn’t.. I myself have early stage Parkinsons.. and arthritis... he also has carers come in and one of them has refused the vaccine.. 
sorry just wanted to offload .. thanks for reading this any suggestions greatly appreciated...... 👍🏻👍🏻👍🏻

Replies

  • janer1967janer1967 Member Posts: 9,068 Disability Gamechanger
    Hi and welcome 

    I'm no specialist regarding this but I have seen it mentioned that CP people are in group 6 and they are getting their vaccines now 

    Have you contacted himself go regarding this and about shielding? Was he notified to shield first lockdown 

    I will tag in our CP adviser who can probably help more 

    @Richard_Scope can you help here 
  • patsyannepatsyanne Member Posts: 4 Listener
    I have a feeling he has been forgotten about ... I will phone Gp tomorrow morning ... any advice is greatly received I am getting more and more upset ... we had a Covid19 death in the family and I think it has heightened tension... ... 
  • janer1967janer1967 Member Posts: 9,068 Disability Gamechanger
    Of course you will be upset by it having seeing the consequences in your family 

    I hope you get some answers I have heard a lot of gp surgeries are a bit unhelpful when enquiring about the vaccine . No doubt endless enquiries not helping 

    There is a sort of calculator on internet where you put details in and it tells you when to expect to get vaccine.  If you search covid vaccine when will I get mine (,sorry I dont know exact site ) 
  • patsyannepatsyanne Member Posts: 4 Listener
    Have tried the calculator but it keeps changing his dates ... 
  • janer1967janer1967 Member Posts: 9,068 Disability Gamechanger
    It is just an estimate and will change due to numbers that gave had it and numbers still waiting 
  • Richard_ScopeRichard_Scope Posts: 2,720

    Scope community team

    Hi @patsyanne
    People living with CP like your son and me are in category 6 for receiving the vaccine. CP itself is not clinically extremely vulnerable. I would suggest calling your son's G.P. just to make sure they are aware of him.
    Scope
    Specialist Information Officer - Cerebral Palsy

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  • patsyannepatsyanne Member Posts: 4 Listener
    Hi thank you I did just that .. the coordinator said she will phone in about 2 weeks time hopefully.. but a least I have hi lighted him .., thank you for all the lovely support I have had ... as I was getting concerned as all his friends who’s CP is milder have already been done ... 👍🏻👍🏻👍🏻
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