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Disability talks
Hi I’m Sally, I am a new online friend, a bit about me, I go round schools where I live and give them talks about my disability which is right sided hemiplegia Cerebral Palsy. I go to Slimming World on a Tuesday morning. I have been invited to a children in need day and give a talk on the 14 November, the kids have asked…
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Student project!
Hi everyone! My name is Ciara and I am currently a 2nd year Undergraduate student at Imperial College London, studying Biomedical Engineering. As part of my degree this year, I am working on a design project with a small group of students on my course to develop a rehabilitation device for children with cerebral palsy. I…
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Low back pain
Hi I was born with mild cp (maybe due to foreceps) on my left side. Giving me a shorter leg about 12mm (1/2 inch) and drop foot and turns in unless I concentrate on it. I can use my left hand ok although fingers not as flexible as right. But, I've been fulltime employed since 16 til I left work last year. I was wondering…
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How many hours of cerebral palsy physiotherapy do you undergo a week?
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Hi, I'm Richard - ask me questions about CP
Hi, my name is Richard and I work for Scope in the role of Specialist Information Officer - Cerebral Palsy. I will be providing specialist support to various aspects of Scope's work including the online community, helpline and information teams. I live with my wife and our daughter. I have spastic quadriplegia and use a…
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Back pain - CP
Hi my daughter got diagnosed with cerebral palsy when she was 18 month old never complained of back pain she is now 13 and complains about back pain but only seems to happen when the weather is cold she's been to gp and the gave her pain relief but they don't seem to be working physio doesn't help either any help would be…
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ankylosing spondylitis
Hi there I've recently been diagnosed with ankylosing spondylitis and scholorosis of the spine . I'm only 27 and havr been on a infusion called infliximab but unfortunately my body rejected the drug and gave me a bad allergic reaction with tightening of the chest and problems breathing. I've now been offered a new drug…
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Painkillers
is it just me or is anybody else clock watching so you can take ur next lot of painkillers ?
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Surgical Options for Adults
Hello Everyone, I was diagnosed with spastic diplegia as a child; I'm now 25. I have an abnormal gait, with my feet rotating inward; this is more prominent in my right leg and foot. I'm fortunate that I'm not in constant pain, however, in the last few months, I have been experiencing more and more pain in my lower back and…
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Could I have cerebral palsy
Hi I'm Lydia and I'm 26 years old. I am partially deaf. As a child I had very many developmental problems. I walked on my toes and I still do. I had very bad balance problems as a young child I struggled to walk in a straight line with one foot in front of the other hadand I never learnt to ride a bike and struggle with…
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Mother of 19 month old girl who has CP. Would like to chat with someone who has CP about their exper
I work at a university and see students who I suspect have CP but I don't feel I can go up to them and directly ask. My daughter, who is 18 months old has CP but it doesn't affect her intellect. I'd like to chat to someone about their experiences of having CP. All of this is new to me. All of I know is that my daughter is…
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My appointee was done behind my back and is now refusing to remove themselves!
Hi! :) I’m new here so I’m not sure what to expect. Basically I’m 24 years old and I live with my mum. I have left sided Cerebral Palsy. For a number of years now, my mum has been my appointee with PIP.(It used to also be ESA but she ended it a few years ago, I was starting a new job at the time.) The appointee was done…
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5 year old diagnosed with spastic diplegia last year can anyone give any advice
Hi everyone, last year my little girl was diagnosed with spastic diplegia she’s affected both sides shown by mri but currently only presenting on her right side, she’s constantly poorly, suffers with tremors, has nerve palsy in her eyes falls over a lot and struggles to keep up with her peers! On some days myself or my…
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Cebral palsy.
Hello. I am a carer, I care for people with spinal injuries. However as from monday I will be caring for someone with Cebral Palsy. I have no clue what to expect other than this gentleman is speech impaired, cant speak at all and he has a keyboard to communicate. What can I expect with someone with cebral palsy? Is there…
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Cerebral Palsy and Behaviour Survey
The survey is to gain information about children with CP and their behaviour from the parents perspective in order to complete our dissertation at York St.John University. The survey will be anonymous and there is no obligation to complete the survey. There are some inclusion criteria which will be asked once the survey is…
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looking to meet people I have things in common with.
Hi All, Currently live in Birmingham, I have CP and am looking to meet people I have things in common with.
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Recent 'diagnosis' of pvl spastic diplegia cerebal palsy
Morning, I have 3.5 year old twin boys, 1 of which has been 'diagnosed' with very mild pvl spastic diplegia cp. He had an MRI at the beginning of September and the consultant rang me to give me the results/diagnosis over the phone just over 2 weeks ago. I'm sure she said a 'report' would be sent to our GP, his physio and…
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GP withdrawing pain meds
Hi , my name is Lynne - I have scoliosis and had spinal fusion surgery about 10 yrs ago. Approx 2 yrs ago I started having severe shoulder and lower back pain and an MRI showed I had trapped nerves in my neck, cysts in the bottom of my spine, and degeneration of the vertebra below the fusion. This won't improve and is…
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World CP Day 6th October 2019. Turn your town green!
World Cerebral Palsy Day is celebrated on Sunday 6th October 2019. Green is the colour that represents CP and this year people have tried to turn their towns and cities green to mark the day. Cities across the world such as Sydney and Paris have illuminated their famous landmarks. Here is my city's contribution. The aim of…
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Hello - and any advice - spastic diplegia - referral to specialist
Hi Everyone I'm new and I'm really hoping you guys might have some advice and words of wisdom for me. I have mild CP affecting my left side - spastic diplegia. I was diagnosed at 23, in 2009 despite have two ops to lengthen my Achilies Tendon when i was young - no one ever put two and two together to come up with CP until…
