-
PIP isn't a luxury. It allows me to work and contribute to society
As the government proposes changes to disability benefits like PIP, writer Jennifer McShane, 37, shares how cuts could impact her life with Cerebral Palsy I use my PIP payment to live and work, I'm terrified of the DWP taking it away
-
Expansion of CP Network in North Wales
Hi everyone. The CP Network and Cerebral Palsy Adult Advice UK group, are looking at expanding our network meet ups in the North Wales area, allowing more people the opportunity to attend sessions. Please could members in North Wales state which area they live in the comments below. We can then pinpoint suitable locations.…
-
Carmarthenshire CP Network
Good afternoon. After the success of our joint Scope and Cerebral Palsy Adult Advice UK Wrexham meet up, I'm working with a small group of people to create a Carmarthenshire CP group. Are there any members local to Carmarthenshire who would be interested in being part of this network? Please comment below or reach out to…
-
Should I start maybe thinking of finding a boyfriend online through another community?
Hi currently I'm limbo or rather feel as i am, I've been trying wirh the idea for ages now about joining another online disabled community, but I'm feeling like I can't because I'm too scared of what my family will think and tell me to get off it! Or do I don't for me and **** the consequences. @pooleemily29
-
Interested in More Touch and Affection in Your Life? 💛
Are you disabled? Are you non-disabled? Either way—you’re invited to join us in creating something special.We’re building inclusive, welcoming workshops for: People with physical disabilities Neurodivergent people Their friends, allies & curious peers All focused on affectionate touch, consent, and connection.Join Us for…
-
Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
-
Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
-
CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
-
Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
-
Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
-
Best Invention/ part of CP for people in poem form
I'll start - Glory be to the blue badge, indeed, my help anytime or at least 3 hours mine. With cerebral palsy, walking's tough,But parking close is needed enough.Those double yellows, A stress removed, a welcome start to journey success. Lets get out, no need to dread,Leaving boring parkers instead.
-
Given increasing evidence of a genetic component to some cerebral palsy cases would you test?
https://www.medicine.net/news/Pediatrics/Study-supports-genetic-testing-for-people-with-cerebral-palsy.html
-
Creating Awareness
hey ya, I’m fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- I’m based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scary…
-
Leaders/colleagues view on disabilities
Hi, My son has cerebral palsy with spasticity and dystonia and is a manual wheelchair user and works full time. He loves and enjoys his job. He works in Customer Service and does a lot of pushing in his wheelchair to support customers resulting to getting calisis on his hands and tired. His leader says to the team “keep on…
-
British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
-
Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
-
Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
-
CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
-
New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
-
Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
