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Three-year outcomes of repeated botulinum neurotoxin in Children
This study aimed to evaluate the effectiveness of repeated botulinum neurotoxin A (BoNT-A) injections on gross motor function over 3 years in ambulant children with spastic cerebral palsy (CP). Results indicated that repeated BoNT-A injections over 3 years were not associated with improvements in gross motor function or…
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Weight Issues in People with Cerebral Palsy: Understanding Sarcopenia
By Stephen A. Dantzig, Psy. D., Education and Outreach Program Manager, United Cerebral Palsy Association of Hawai’i Weight concerns are a significant public health issue in the United States. The Centres for Disease Control and Prevention reports that from 2017-2020, 41.9% of adults were living with obesity, and 9.2% with…
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Anyone been to the Peto Institute?
Hi I was looking to get advise from anyone who has taken their child/grandchild to the Peto Institute in Hungary? My grandson has cerebral palsy diplegia and I’m looking to do the best for the poor little sole, hopefully to help him walk.
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Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
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Rosie Jones says she carried ‘a lot of guilt’ in her twenties
Holly Bishop | Wednesday 26 November 2025 08:26 GMT Rosie Jones has shared a message to ableists as she reflects on her personal journey of learning to own her disability. Appearing on Katherine Ryan’s What’s My Age Again? podcast on Monday (24 November), the 35-year-old comedian said she “carried a lot of guilt” during…
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MyCP Webinar: Inside the Making of the First Adult CP Toolkit
This webinar from the U.S. features CP Research Network co-founder Michele Shusterman and Mary Gannotti, PhD, Jensiné Clark, MD, and Cristina Sarmiento, MD, four leaders from the CP Research Network, discussing the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource…
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CP Network Wales winter meetings moved online. Please join us In One Month.
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
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CP and difficulty coughing
Hi. I have spastic quadriplegia and am a full time power chair user. More recently, I have been having difficulty coughing (particularly when I have a cold) due to spasticity and weak muscles in the chest. I just wondered does anyone else have this problem? If so, what helps? I have briefly looked at using a cough assist…
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Disabled teenager who was left in school during fire takes safety campaign
A teenage boy who was left alone upstairs during a school fire has taken his campaign for stronger safety rules for disabled students to Parliament. Lucas Vezza-O'Brien has cerebral palsy and says he was "terrified" when smoke began to fill the corridor on the first floor of his school in Hyde, Greater Manchester, in…
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What my disability taught me about parenting
What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…
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Spastic Diplegia
Hi, I was diagnosed with Spastic Diplegia at birth? Unfortunately, I was born before the internet. I cope fairly well with the physical side but its the psychological side which has affected me the most. I think I am fully aware of the psychological side now but it has destroyed by life. Anyone else have any experiences on…
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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Second opinion for AFOs
Hi All, My 10-year-old daughter has worn AFOs for many years. She has always been pretty difficult to cast and fit for AFOs as she is so tight. This is becoming an increasing problem as she grows and she is increasingly getting sores on her feet from the pressure of the AFOs. She really needs to use the AFOs for walking as…
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Facebook charity page restored after ban mix-up
Article by Steve Beech and Dan Hunt, BBC Derby. Full Article The founder of a charity that supports teenagers with cerebral palsy has spoken about the "nightmare" of being unable to use its Facebook page for more than a year after it was flagged as having inappropriate content. CP Teens UK, based in Chesterfield,…
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Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
