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Best Invention/ part of CP for people in poem form
I'll start - Glory be to the blue badge, indeed, my help anytime or at least 3 hours mine. With cerebral palsy, walking's tough,But parking close is needed enough.Those double yellows, A stress removed, a welcome start to journey success. Lets get out, no need to dread,Leaving boring parkers instead.
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Given increasing evidence of a genetic component to some cerebral palsy cases would you test?
https://www.medicine.net/news/Pediatrics/Study-supports-genetic-testing-for-people-with-cerebral-palsy.html
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Creating Awareness
hey ya, I’m fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- I’m based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scary…
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Leaders/colleagues view on disabilities
Hi, My son has cerebral palsy with spasticity and dystonia and is a manual wheelchair user and works full time. He loves and enjoys his job. He works in Customer Service and does a lot of pushing in his wheelchair to support customers resulting to getting calisis on his hands and tired. His leader says to the team “keep on…
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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Hi, my name is jang!
My sister has mildish cerebral palsy but as she us now well into 50s is experiencing decreased mobility issues.Does anyone know if there are specialist followup facilities in the NHS for people with CP?
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Yeovil Man to Run the London Marathon
Connor Hyde who has epilepsy and cerebral palsy ran the London Marathon 2025. BBC News
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Any advice Improving Balance
Should probably go to the GP but recently by balance has decreased significantly. I used to be ok walking short distances unassisted but now even slight inclines of the real world (which sadly isnt flat, make me tense up unable to move) To return to my old baseline I have been doing my classic throw myself on the floor and…
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Wrexham Cerebral Palsy Get Together-CP Network and CP Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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Struggling with employers
This discussion was created from comments split from: Erection Help & Advice Wanted.
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New member
My daughter has CP is hypotonic, has a learning disability and is on the autistic spectrum. I would like her to be able to join here with her own account. Is this possible. She could do with making some friends outside her very small circle of existing ones.
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Functional Electrical Stimulation (FES)
Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more scuffing of toes & the ability to walk outdoors with more confidence even if I still have to use my sticks or rollator.
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For people with cerebral palsy, sympathy is slightly strange
From The Business Standard For people fighting cerebral palsy, sympathy may feel like underestimation; even when it stems from goodwill When I was 12, my classmates were assigned a task in geography where they had to colour the globe they drew. But I was excluded. One of my classmates pointed it out: "Why isn't Onira…
