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Voice: Sharing Stories Through Poetry: Exploring Creative Research with Disabled People
Newcastle University is exploring how poetry can be used as a creative way to share experiences and perspectives in healthcare research for people with disabilities or chronic illnesses. Participants will learn about how poetry can be used in research, take part in a simple poetry activity to share their experiences and…
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CP Network Wellbeing Series Feedback
Hi everyone. Myself, @SaraC_Scope and @Lucy_Scope would like to thank everybody who attended the Scope CP Network Wellbeing series hosted by our friends at The Almond Tree Organisation. We would appreciate it if you could leave feedback about the events
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International Day of Persons with Disabilities
Good afternoon Tuesday 3 December 2024 is International day of persons with disabilities. This BBC World Service Episode highlight the ways, people with cerebral palsy are gaining more independence using AI. "I just put my music on and I go." The wheelchair giving independence. Have a good day. @SaraC_Scope Cerebral Palsy…
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England finish fifth as Iran win Cerebral Palsy World Cup
England finished fifth at the Cerebral Palsy World Cup as Iran beat defending champions Ukraine in the final. The Para Lions required a penalty shootout to overcome Argentina following a goalless draw in the play-off for fifth and sixth in Salou, Spain. Iran recorded an emphatic 3-0 victory against Ukraine to avenge their…
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Hi, my name is annawalewska! Surrey care home recommendation
Can anyone recommend a care home in the Surrey area for a verbal cerebral palsy young man, 38 years old, bright and needs stimulation who likes doing activities out side the home and not the usual arts and crafts on offer. Looking for a homely environment ideally not clinical, with similar disabilities and age group for…
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Neurological conditions and access to sport
Sheffield Hallam University Sport and Physical Activity Research Centre is conducting research in playing sports with adults of neurological conditions. Please see the flyer attached for more information about the study: Email: A.Abiodun@shu.ac.uk to participate
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CP Network-We need your ideas for 2025
Hi everyone. We're looking ahead to 2025 and we would love to know if you have any subjects you would like the CP Network to cover in 2025. Put your answers in the comments. Thanks. @SaraC_Scope
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Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
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Cerebral Palsy Cymru's Christmas Market
Cerebral Palsy Cymru are holding a Christmas fair on Saturday 30 November 2024. Starting at 11am until 2pm. If you live in Cardiff or the surrounding area this will be a great Christmas activity, whilst supporting a wonderful organisation. Please click on the link for more information and to register your attendance.…
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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024 at 5pm UK time. “Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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Anyone on this group who has an adult child with severe CP and other issues
Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…
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Direct payments - transition to adult services and needs fall between two services
My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…
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Lower back pain months after lumbar puncture
So a few months ago I've had a lumbar puncture and I can still feel pain around the area where the needle was inserted. The pain is somewhat dull, when I press on the bone around where the needle was inserted I can feel that exact same pain that I felt when the needle was poked in and the pain that remained for a few weeks…
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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Cerebral Palsy Specialist-Cardiff
Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…
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Connecting the dots in an infant’s early development
REGISTER FOR THE WEBINAR Connecting the dots in an infant’s early development - Cerebral Palsy Scotland This webinar will provide Health Visitors and parents with practical ideas to support your baby’s development and milestone achievements. We will discuss strategies to support ongoing gross motor skill progression and…
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Hip problem due to muscle spasm
I would like to know why a person with cerebral palsy can have pain in the hip I have a strange feeling of pain on the left side of my hip Is it because I am more spastic in my legs due to my spastic diplegia What to do I am 49 years old I have not been followed by a neurologist since I was 13 We do not have many resources…
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Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
