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I’m Autistic And Have Cerebral Palsy — We Need To Get Menopause Support Right
"The average age for starting menopause is 51, but for people with learning disabilities, it tends to start earlier."By Emma Fraser I’m 43 years old, I’m autistic, and I have cerebral palsy. Now, I’m also navigating perimenopause. There are around 13 million people currently peri- or menopausal in the UK, equivalent to a…
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'In horse riding I don't have to depend on anyone'
Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…
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Discover Your Paralympic Potential events
Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…
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What's Life with Cerebral Palsy Like? My Neuro Survey 2024-2025
What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…
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Communicating with cerebral palsy: How Maddy found her voice
Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX
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Mum writes play about her battle for son's cerebral palsy support
Mumfighter-Swansea play review. Powerful play explores life bringing up a disabled child. Wales Online Mumfighter play review
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The Art and science of Living with Cerebral Palsy
For those of us that were not up and about at 4 am. Here is the recording of the webinar. This webinar was hosted by My CP Guide and presented by a lived experience panel in an open discussion facilitated by Stacey Cleary of CP-Achieve. This webinar explores individual experiences with medication. Each person from this…
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My CP Webinar Series: Update on Dystonia and CP
On Wednesday, October 30 at 8 pm ET, Midnight UK time, our MyCP webinar will provide a broad overview of all the progress toward addressing the issues raised by the community including the development of new educational materials, improvements in dystonia diagnosis and plans to study the effectiveness of common treatments…
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Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you!
Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you! The Department for Education has recently launched a Curriculum and Assessment Review and we would like to hear about your experiences and to know what you think needs to be changed in the current curriculum, its delivery and assessment to…
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Hello to SDR Progression!
SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…
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The Importance of Taking a break an listening to your body
[The image says: A gentle reminder If you don't schedule a break, Your body will take one for you, and it probably won't be at a convenient time.] This quote will resonate with many in the cerebral palsy community and the broader disabled community, and it certainly resonates with me! Just like many of you, I’m sure you’ve…
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My experience of having cerebral palsy.
I have had cerebral palsy ever since I was born. Growing up, I had to use a range of equipment to help me manage living with CP such as; a Kaywalker, standing frame, splints and crutches. On the educational side of things, I went to an mainstream Primary school, high school, college and university. On the social side of…
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World record for the fastest marathon by an athlete with hemiplegia
Marathon runner secures world record after completing global challenge. A runner who took on a prestigious global race series has broken the world record for the fastest marathon by an athlete with hemiplegia. Andrew Tomlinson, who has paralysis on his left side, finished the London Marathon in April in a time of 3:58:53 -…
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Tune in to The One Show on BBC One tonight at 7pm to catch Emily's incredible story!
Emily and the BBC Children in Need Challenge Squad Home > News > Emily and the BBC Children in Need Challenge Squad The One Show welcomes back the epic fundraising challenge, The Challenge Squad for BBC Children in Need, and we’re so excited to announce that Emily – a long-standing CPotential friend and service user – is…
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The joy of accesible sport and CP
Paul McAuley Community reporter for Liverpool Echo Ellis Palmer is now working alongside British Power Hockey Association.(Image: Ellis Palmer ) A man is doing the “unimaginable” after “giving up” when he was a teenager. Ellis Palmer, from Birkenhead, has been a wheelchair user for most of his life, having been diagnosed…
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NIHR Imperial Biomedical Research Centre awarded over £1m for vital research equipment
The National Institute for Health and Care Research (NIHR) Imperial Biomedical Research Centre (BRC) has been awarded more than £1 million by the NIHR for cutting edge equipment that will support vital translational research across the BRC partnership. This funding is in addition to more than £100m awarded since 2022 to…
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Power hockey taster session
The British Power Hockey Association is having a taster day on 2nd November between 11AM - 14PM For more information go to British Power Hockey Association Website Image description: Full shot of a poster promoting a "Power Hockey Taster Day." The top portion of the poster features three images, each showing multiple…
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Sex Education star on living with lifelong condition and Netflix success
The actor stressed the importance of disability representation within the creative industry. By Ayaan Ali of The Express You might recognise Keron Day from Sex Education and Kirkmoor, but his path to success has been anything but easy. Keron has shared his experience of living with a lifelong condition, cerebral palsy,…
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World Menopause Day: Early Menopause and cerebral palsy
For many women with cerebral palsy, the journey through ageing presents a unique set of challenges, especially when it comes to managing menopause. “Often, they feel unprepared for the changes their bodies undergo during this time, facing both physical and emotional hurdles.” As Friday, 18th October 2024, marks World…
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
