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Is it Ataxic CP? - Help!
Hi everyone, We had a traumatic delivery, which resulted in our son beingcooled for a brain injury (HIE). He’sfour and is about two years behind with his motor skills. He’s wobbly on his feet, poorly coordinated,can’t really jump or heel toe walk. Whentired he veers around like he’s drunk or on a boat. We’re based in the…
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3-Day Bobath Life Toolbox program
Whether you're making the move from school to college, starting a new job or simply getting on with life, we're here to support you with practical skills to prepare you for successIf you’re aged 16-21, living with cerebral palsy, or another neurological condition, and would like some practical tips to support your…
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Radial shockwave therapy
Hi my name's Jane, new to the group and would like to know if anyone has tried Radial shockwave therapy. I have mild cerebral palsy.
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Navigating Mental Health and CP with DisabilityPlus
This conversation is dedicated to elucidating the nuanced relationship between mental health and cerebral palsy (CP), challenging prevailing misconceptions, and promoting a comprehensive understanding of the unique challenges and stressors faced by individuals with CP. Through a series of focused sections, we aim to…
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Nicolas Hamilton wants to 'inspire' others with disabilities
The brother of seven-time F1 world champion Lewis Hamilton has said he wants to "inspire" other people who have disabilities as he prepares to race in the British Touring Car Championship again this year. Nicolas Hamilton, who has a form of cerebral palsy, is the first-ever disabled athlete to compete in the motorsport…
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sport
I did sport in para-swimming in 2008 until 2012 I was part of a national para-swimming team in MontrealI participated in several competitionsI was classified s7 sb8 sm7 because of my cerebral palsyI won 12 medals I really like it because I allow my whole body and my heart to work I gave up para-swimming because I injured…
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spastic diplegia
I have been followed by an orthopedist since the age of 2I had surgery at the age of 9 on my right footHe pulled my achile tendon so I could put my foot on the floor But, he couldn't do much to my left arm which is bent 15 degrees and it is shorter than my right arm.He checks my posture and my walkingHe looked at my legs,…
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PVL
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
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CP Sport Hosting a Free Race Runner Have a Go Day!
It is on the 28th of April at Paula Radcliffe Stadium, Loughborough University. There are two time slots available 11 am-1 pm and 2 pm-4 pm. And it is Free! Please find the sign-up link here:
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Scots woman with cerebral palsy aims to make history at London Marathon
Dr Julie McElroy, from Glasgow, is aiming to make history at the marathon by becoming the first female frame runner. [Dr Julie McElroy in her race runner with her coach on a blue athletic race track] A Scots woman with cerebral palsy is aiming to make history at the London Marathon by becoming the first female frame…
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Cerebral Palsy Awareness Month 2024
In March 2024, individuals living with cerebral palsy (CP), along with their family members, friends, and dedicated activists, unite to champion the cerebral palsy community. This month-long initiative is a continuous endeavour to raise awareness about cerebral palsy. To commemorate Cerebral Palsy Awareness Month, we are…
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Brilliant CP Awareness Month, on the Scope Social Event for March
I just want to say thank you to Richard Luke and Abdi Gas, from Scope for arranging 3 brilliant speakers for the online Scope Social evening, on Wednesday, to celebrate CP Awareness Month First we heard from Dr Sonali Shah about her research projects, exploring CP and womens sexual health and reproductive health and…
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World Health Day Special: Join Our CP Network Event on April 10th (6pm to 7pm)
Join us for our CP Network session on April 10th, where we'll be celebrating World Health Day! We're excited to announce that Sam, a highly qualified fitness professional with extensive experience as a group exercise trainer, presenter, and instructor, will be joining us. She'll share her insights on the importance of…
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Looking for residential care tips for my 21-year old son with cerebral palsy and learning needs
I'm the father of three boys, one of whom has cerebral palsy and is profoundly deaf (he has a twin who's able-bodied and severely deaf). The twins were very premature; 24-weekers in fact. But that was 21 years ago and they're now adults, which is what brings me here, I guess. I share care of my son with my ex-wife. As…
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feeding tubes - advice
hi i have a feeding tube all my life. my current tube has been in since 2017. what is the lifespan for a tube in an adult body? - in the 4 years i had infection after infection and sometimes it feels like it get stuck inside, get a growth on the site (I can keep going) but before October 2016 I HAD NONE OF THESE…
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Are You a Disabled Job-Seeker?
Are you #disabled? Are you #neurodivergent? Are you looking for work at the moment, or have changed jobs in the last two years? Can you be available on Thursday 28 March from 1000-1130? If you are disabled and/or neurodivergent and have current or recent experience of jobseeking, then Business in the Community (BITC) wants…
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Lower Back Pain and CP with Bobath
We hope you enjoyed our CP Awareness Month Special Adult Meet-Up with Bobath Ambassador Dr Lin Berwick MBE. If you weren’t able to be there, our next Adult Meet Up will be on Friday 26th April at 3pm. We’re returning to our very popular series on pain management with Bobath therapist Rajkumar Rajan and, next month, he’ll…
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Hi, my name is katandy18! I support my brother who has Cerebral Palsy
Hi all, I support my brother who has Cerebral Palsy. He's now in his early 60s and after years of rather robust health, is experiencing some physical deterioration plus other health issues and I feel it would be useful to touch base with people who might be having similar experiences.
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BLACK COUNTRY BGT STAR UNVEILS HER AUTOBIOGRAPHY : Eva Abley
[Picture off Eva on stage at Britain's Got Talent. Eva has blonde hair has her arms out-stretched and is wearing grey jeans with a white T-shirt and grey jacket] Eva Abley, the 14-year-old Black Country comedian with cerebral palsy, won the hearts of millions when she stormed into the final of Britain’s Got Talent in 2022.…
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How I'm Becoming Proactively Fearless With Cerebral Palsy
By Lydia Flores For me this year, the focus of Cerebral Palsy Awareness Month is the importance of being “proactively fearless.” I define this as being active and especially fearless in my pursuit of understanding and resources, as well as being proactive and fearless in pain management, in facing my emotions and being…