If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
PVL

mombicky
Member Posts: 4
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!?
Thanks!
Thanks!
Comments
-
PVL occurs as a result of damage to the ventricles of the brain and the circulation of the cerebral spinal fluid (CSF). It normally occurs in pregnancy and can lead to cerebral palsy and other conditions so it is not specifically CP or a type of CP. Scope has a really useful information sheet on PVL - http://www.scope.org.uk/support/families/diagnosis/pvl
-
Hi mombicky,
My daughter has PVL and CP. If you need to talk I'm here.
-
Thanks for getting in touch rvl100. How old is your daughter? My son's diagnosis is being questioned by his Physio atm. Could you tell me what your daughter is like at school especially with respect to her concentration? Thanks
-
Hey mombicky, i was wondering if i could ask you some questions about your daughter and her PVL and CP as my son was diagnosed with PVL at 4 weeks and now at 5 months old (8weeks corrected) i am starting to notice some signs compared to his twin sister.
many thanks
Natalie -
Hi. My son (lol unisex name) wasn't diagnosed until he was 4 and his isn't a straight forward diagnosis, but I'd be more than happy to try to answer any questions - if I can....
Brightness
Categories
- 55.5K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 161 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 845 Work and employment
- 602 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 305 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.4K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.9K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 711 Chronic pain and pain management
- 720 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 954 Mental health and wellbeing
- 315 Sensory impairments
Complete our feedback form and tell us how we can make the community better.