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Personal trainer for SEPN1 (muscular dystrophy)
hi my 2 daughters both have SEPN1 also known as rigid spine syndrome it comes under muscular dystrophy and is very rare. They are aged 24 and 21 and we are looking for a personal trainer in the south Wales near Caerphilly area. One daughter uses crutches but both girls have weak muscles Thanks for any one that has any…
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Pip payment update
Hi guys quick update, I get backpayed £1,117 tomorrow YAAAY I'm so happy!!!!
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Pip payment
SO pip have said I'm getting £549 pounds is that a back payment? Or I'm a little confused
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Smart metres
Hello everyone, not done a post for a long time, sorry due to health, so my question is, and I apologise in advance , I have a smart meter and have set a budget on it for daily usage, never done it before but due to energy bills going up and me not working at the moment I thought it is a good thing to do, however if I…
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Feeling a bit isolated/not sure where to go
This is a bit of a downer for our first post but we need to get it out. Our name is Circulatory, we’re 22, and we’re disabled in lots of ways. We get a lot of support but some of our problems we don’t have support with because we regularly fall between services (being too high-needs for one and not high-needs enough for…
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My mattress, the topper, and falling out of bed
My orthopaedic mattress, which was quite pricey, is the worst mattress I've had because it slips to one side of the bed. On top of the mattress, I have a lovely orthopaedic topper. That tends to slip to the side of the mattress. On a few occasions, I've ended up on the floor during the night. Is there anything to keep…
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Pip payment
SO apparently I get paid 549 on the 27th October? Is that how long I have to usually wait??? Many people have said they received there's early so I'm a little confused 😕
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I'm currently staying in LS8 and needing a food parcel
Ive been trying to sort food near me I live in LS8 harehills do you know which one I can register with pls thank you
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Smart Watch
I live alone and following quite a serious accident last week I'm thinking of buying a Smart Watch. I'm looking for some that can hold key medical information and from which I can make an emergency call should I not have my phone nearby. Ought I to look for cellular or Wi-Fi plus Bluetooth? I'd prefer Android to Apple…
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Where can I post about health hospital appointments issue please?
Where can I post about health hospital appointments issue please? I'm finding it difficult to get appointments, follow-up appointments at the hospital for my health, and have done all I can emailing them and complaining etc. I have mental health and Autism. Can you please let me know in which category I could post about my…
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Having bad nights.
I am currently struggling at night with sleeping. I am currently unable to wear my ventilator at night when I go to sleep. As a result, I am waking up a lot (sometimes every hour or not even an hour), having a nightmare most times that I fall asleep throughout the night, and I'm waking up with huge headaches (sometimes…
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Personal Wheelchair budget - how much ?
I have had an electric wheelchair from my local NHS team for 6 months now and am totally unimpressed with the support that I get. I have had to call them out twice during this time and each time - they take at least 2 days to even respond - and then at least a week to actually come out and fix the problem. Both times -…
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Life is hectic and is going to get more hectic.
I'm just about to start my second year at college and I'm scared that it is going to stress me out. I will be in college 4 days a week and then 5 once I start work placement. I am also going to have 3 exams in December and January. I will then have lots of coursework from February until June. This means I will have to…
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everyday life
hi how is everyone?
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Help with mattress?
I’m looking for a little advice and hoping someone can help me please 😁. I had my back broken in March this year and I now suffer with neurological issues and constant pain and disabilities. My question is can I get help to buy a mattress that would help my discomfort while sleeping. I struggle to sit down for more than 10…
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Universal credit
Can someone tell me about universal credit and disability I'm on ESA,and full pip
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Meditation and coping strategies
Hello just wanted to say that meditation has helped me throughout my life
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Disability Sports
Hi, everybody, I've contacted Channel 4, Channel 5, the BBC and ITV now, hopefully I'll hear some thing from them. I haven't heard anything from The Last Leg yet, hopefully I will, but it can take a long time for programmes like that to get in touch if they do.
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Hi there
I Cannot Sleep at All so Much Stress & things to Worry About I've found an article about a Woman with lots of bladder infections & they are saying she has bladder cancer which is what I think 🤔 I have still in lots of pain and also in my shoulders now. Amazingblazing62
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TONIGHT September's Harvest Moon - a SUPERMOON - and a partial eclipse!
Look up and watch the Moon rise tonight 🌕️ Back later with some info and pics but feel free to post for me!
