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Pregnant Then Screwed Live - 2 free tickets available!
The lovely Joeli from the campaigning organisation Pregnant then Screwed has 2 free tickets to Pregnant Then Screwed Live - The festival for Motherhood and Work, to give away, specifically for a mum with a disability or parenting a disabled child. They are looking to support mums going back into paid work and to help fight…
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Struggling after the death of my mother
Just saw this group on fb, probably not the right group, but here goes, I am 2years of my mother’s death really not coping she lived with me so I could care for,she was also my best friend. She passed away in my arms at home surrounded by her family and really I guess you could say it was magical, having said that after…
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My carers have walked out on me I have no staff
My carers have walked out on me I have no staff. Social services are not helping very much. I'm having to sleep on the recliner settee as I cant get in and out off bed with out help. I dont know where else to turn
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Need for counselling parents and siblings who have a disabled member of family
Hello, my son is 13 and has CP. We never had counselling as a family, and 2 years ago I had a breakdown. I am now seeing a counsellor who's really helping me. As a result of that, I started studying counselling myself and would like in the future to help parents who have a disabled child and siblings as well. Who thinks it…
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Is there a possibilty my child is gifted or different?
So I know all parents at some point think their child is smarter than average, but I really, honestly am blown away by my 3 month old daughter and her advanced development, to the point where it's actually freaked me out a few times. I'll start from the beginning. Birth - 2 weeks: From the day she was born, my LO has made…
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The menopause Ssssshhhhh?
[post removed following request from user]
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Help for my wife
I had a stroke 2 years ago and my wife has fibromyalgia, chronic fatigue, the last few weeks has been unbearable for her - we attended the doctors the other day and basically she broke down and would not speak to anyone the doctor told me to contact the crisis team as he could not help her? however she would not speak to…
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I need a carer - dont know where to go for support
Hiya, I'm banging my head against a wall at the moment. Social worker came out to access me for a carer (on a good day) n told me I don't need any help. I've just spent 5 days in bed struggling with no help. I don't know what to do or where to go for support
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Advice
Hi,I'm a kinship carer for my grandson. I have now had him for over 2yrs now..lost my husband in 2015 and was giving my grandson I'm may 2016..having to try and work a fulltime job of 14yrs..eventually had to give my job up as my weight went down to 5 stone 3.i have osteo perosis and was diagnosed with osteoarthritis in my…
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Ataxia
: ATAXIA : (my story) What's is that you may ask we take our legs for granted we walk, we run they are there to stand up on when ever we need them, but 6 years or more ago my legs took on a mind of there own, family, friends would ask me what is wrong why am I walking funny have I been drinking, walking in a drunken state,…
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My son returned from UCLA like he’s someone else
My son returned from UCLA like he’s someone else. I don’t recognize who he is anymore. First it was his looks, so I shrugged it off. My wife and I said maybe he’s just trying to fit in. Then more changes occured like him demanding gluten free kale salad for dinner or something equivalent to that. I can barely keep up. I…
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His care and support is being cut
Hello, I am lipreader for my client and palm alphabet his palm. GB his Sevier blind deaf, mute. epilepsy internal problems liquidise food wheelchair. GB his taken out to mix with his friends at the deaf-blind sensory community hall. 4 hrs Mon - Thur the social service knows GB needs 24hr care but due to the cuts GB cannot…
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Struggling to come to terms with my daughter's diagnosis
Just in need of a bit of support. Thanks in advance
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Young Carers
So as a young carer myself, I want to know parent's opinions on them !
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Concerned about the effect chemo has had on my daughter
Hello everyone. I have joined as I am needing some support. My daughter who is now 16 had Leukaemia when she was 3. In the last 3 years I have noticed some changes with her learning and memory. We were recently told the chemo has damaged her brain. This is what is causing the learning and memory difficulties. She had an…
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Carer's assessment and universal credit
Hi, My 21 year old daughter lives with us and has chronic fatigue. Her PIP claim and MR have been rejected, so we're waiting for a tribunal, and we've taken advice from the Citizens Advice who say she should qualify for PIP. Is it also worthwhile applying for universal credit and a carer's assessment? I do everything for…
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Help with my 8 year old
Completely new on here. My daughter is 8 almost 9 and we are just waiting to see if the ehcp is going to be accepted. We think she has attachment issues, she was adopted at 14mnths. She has learning difficulties..score 1 out of 100 for combative and 1 out of something else with educational psychologist. I get no money or…
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Our daughter isn't getting the help she needs
Hi, I'm a RAF Disabled Veteran with severe & complex PTSD & physical injuries/disabilities including chronic & severe pain. My wife had to give up her career as a RSCN. We have 2Daughters, both with different & complex disabilities themselves unfortunately ours youngest we noticed at an early age had learning difficulties…
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Down's syndrome
I have a 19 year old daughter with Down's syndrome. She also had a heart defect at birth. I'm happy to talk if anyone wants to know about my experiences and have a friendly chat with anyone in the same.e or similar boat.
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I'm a full-time OAP unpaid carer
Hello, I`m a full-time OAP unpaid carer, tending to the caring needs of a friend and have been doing this since my friend first became disabled, in 2006, through being attacked at work and shortly after having a massive allergic reaction to a pneumonia injection. The effects of these incidents resulted in my friend being…
