-
I need a carer - dont know where to go for support
Hiya, I'm banging my head against a wall at the moment. Social worker came out to access me for a carer (on a good day) n told me I don't need any help. I've just spent 5 days in bed struggling with no help. I don't know what to do or where to go for support
-
Advice
Hi,I'm a kinship carer for my grandson. I have now had him for over 2yrs now..lost my husband in 2015 and was giving my grandson I'm may 2016..having to try and work a fulltime job of 14yrs..eventually had to give my job up as my weight went down to 5 stone 3.i have osteo perosis and was diagnosed with osteoarthritis in my…
-
Ataxia
: ATAXIA : (my story) What's is that you may ask we take our legs for granted we walk, we run they are there to stand up on when ever we need them, but 6 years or more ago my legs took on a mind of there own, family, friends would ask me what is wrong why am I walking funny have I been drinking, walking in a drunken state,…
-
My son returned from UCLA like he’s someone else
My son returned from UCLA like he’s someone else. I don’t recognize who he is anymore. First it was his looks, so I shrugged it off. My wife and I said maybe he’s just trying to fit in. Then more changes occured like him demanding gluten free kale salad for dinner or something equivalent to that. I can barely keep up. I…
-
His care and support is being cut
Hello, I am lipreader for my client and palm alphabet his palm. GB his Sevier blind deaf, mute. epilepsy internal problems liquidise food wheelchair. GB his taken out to mix with his friends at the deaf-blind sensory community hall. 4 hrs Mon - Thur the social service knows GB needs 24hr care but due to the cuts GB cannot…
-
Struggling to come to terms with my daughter's diagnosis
Just in need of a bit of support. Thanks in advance
-
Young Carers
So as a young carer myself, I want to know parent's opinions on them !
-
Concerned about the effect chemo has had on my daughter
Hello everyone. I have joined as I am needing some support. My daughter who is now 16 had Leukaemia when she was 3. In the last 3 years I have noticed some changes with her learning and memory. We were recently told the chemo has damaged her brain. This is what is causing the learning and memory difficulties. She had an…
-
Carer's assessment and universal credit
Hi, My 21 year old daughter lives with us and has chronic fatigue. Her PIP claim and MR have been rejected, so we're waiting for a tribunal, and we've taken advice from the Citizens Advice who say she should qualify for PIP. Is it also worthwhile applying for universal credit and a carer's assessment? I do everything for…
-
Help with my 8 year old
Completely new on here. My daughter is 8 almost 9 and we are just waiting to see if the ehcp is going to be accepted. We think she has attachment issues, she was adopted at 14mnths. She has learning difficulties..score 1 out of 100 for combative and 1 out of something else with educational psychologist. I get no money or…
-
Our daughter isn't getting the help she needs
Hi, I'm a RAF Disabled Veteran with severe & complex PTSD & physical injuries/disabilities including chronic & severe pain. My wife had to give up her career as a RSCN. We have 2Daughters, both with different & complex disabilities themselves unfortunately ours youngest we noticed at an early age had learning difficulties…
-
Down's syndrome
I have a 19 year old daughter with Down's syndrome. She also had a heart defect at birth. I'm happy to talk if anyone wants to know about my experiences and have a friendly chat with anyone in the same.e or similar boat.
-
I'm a full-time OAP unpaid carer
Hello, I`m a full-time OAP unpaid carer, tending to the caring needs of a friend and have been doing this since my friend first became disabled, in 2006, through being attacked at work and shortly after having a massive allergic reaction to a pneumonia injection. The effects of these incidents resulted in my friend being…
-
Trouble with teens
My son blames me for his own problems as he's never got money and I can't keep giving it to him I dnt work I've applied for over 100 jobs but I think it's because I'm disabled and my age
-
Disabled Persons Trust & Guardian Role
hi there . I am about to meet with a lawyer to set up a Disabled Person Trust for my son . The charge for setting up a will / the Trust / and Expression of Wishes is £1800 . This is a quality legal company , but I want to find out if this is an appropriate amount or extortionate . Also I want to find out about the role of…
-
Hi, my name is wanderinggal!
Wonder if it's just me probably not . Finding the battle against authority to gain help and support , finding myself worn to a nubb . Other people I know they look happier since they stopped battles against them I've now shut the door . The LA there is no support as myself and my children are not disabled enough is this a…
-
Newbie, parent carer with a disability.
Hi, my name is Rapunzel! I am a parent to a 15yr old daughter who has ADHD and Pathological Demand Avoidance Syndrome, part of the Autistic Spectrum. At the moment I am a full time carer for her but, all that may change when she turns 16. To add to the whirlwind, chaotic but, extremely interesting and 'keeps you on your…
-
Anti-social behaviours
I am a support worker and support a gentleman with severe learning disabilities. He lives with two other gents. My client keeps taking his trousers off and urinates on the floor when he thinks noone is looking. How can i assist him to get out of this behaviour??
-
Need Support but Partner Reluctant
Hi everyone. This is my first post. I am a carer for my partner, although I do have anxiety and fatigue problems of my own. I've been 100% financially supporting him with just my benefits for over 7 years as he struggles to make any money as a self-employed film-maker. His health is seriously holding us back, and is just…
-
Caring for my husband as a disabled person
I have alzhymers arthritis and fibtomialgea and quite a few allergys but my main concern is my wounderfull hubby of 35 years who has terminal lung disease he's sick at the min and may need to go back into hospital I'm worred sick and feel lost, we have 5 children and 11 grandchildren and I have a couple of friends that are…
