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Wrexham Meet Up with CP Network and Cerebral Palsy Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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diagnosed with a cervical spine condition
Dear Scope Online Community, I am reaching out with a heavy heart but also with hope to share my current health situation and seek advice, support and available resources. Recently, i was diagnosed with a cervical spine condition following persistent neck pain. My MRI report indicated a posterior disc - osteophyte complex…
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Rheumatoid arthritis
hello Well yesterday I was newly diagnosed with rheumatoid arthritis. I was in crippling pain couldn’t walk get out the chair or even brush my own hair hoisptal as put me on 6 weeks of steroids till I start a once A week tablet and one daily tablet waiting for nurse to send me appointment it’s all very new to me and…
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Colesevlam for Bile Acid Malabsorption
This is a bit of a long shot but....has anybody been prescribed Colesevlam for BAM but 'off licence' after a negative SeHcat scan, and if so, how have you got on with it? Or even prescribed it on-licence ? has it worked or any side effects? My SeHcat scan was negative in 2024 but my consultant gastroenterologist thought in…
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Heart attack stents my fear
Had h attack two week ago and two stents one week ago Am home but terrified .…on own Anybody just to talk to and reassure me please
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Hi, my name is MM12! I would like to ask anyone who has a baby with hemiplegia how they manage ...
I would like to ask anyone who has a baby with hemiplegia how they manage their babies night time sleep. My grandson is awake most of the night. He has melatonin to and is 16 months old. Any suggestions would be most gratefully accepted. Thank you
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Severe hearing loss - BSL
I suffer from severe hearing loss and also Dupytren’s contracture in both hands . I would love to learn BSL language I’m not sure if it’s possible especially when contracture's start, anyone in a similar situation? Joany
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Hi, my name is Gartozi! I would like to speak to people who have had hip replacement surgery.
Hello everyone I have recently been put on waiting lists for a hip replacement on my right hip. I suffer from Arthritis, CFS,Fibromyalgia and would like to speak with people who are in the same boat or similar who might have experienced the operation. There is much for me to learn and I have to start somewhere. Any…
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Cane training and albinism
Wondering if anyone could help me I have albinism and severe hearing loss I'm registered blind but only just on the borderline if that makes sense I've considered starting cane training but I'm having really bad imposter syndrome I struggle with unfamiliar and bright environments but have always to got on with it nobody…
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Spina Bifida and just had a stroke.
Hello all, I am looking to connect with anyone born with Spina Bifida who's also had a stroke. I had my stroke 2 months ago and I feel like I'm experiencing some after affects that are completely unique and would like to chat to anyone in the same boat. 😊
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Hi, my name is floss66! Husband is in a wheelchair after a stroke.
hello! My husband is now wheelchair reliant due to a severe stroke 7 months ago . We are struggling to find people in similar situation to talk to . It is very isolating and we would love to hear similar stories and how you overcame the challenges.
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hi my name is paul. I have HNPP with tip toe walking
hi everyone im paul and i have HNPP with tip toe walking. iv had this for around 3 years and i must say things can be difficult with my balance and the odd trip up, i can hardly stand without burning on my feet and the neuropathic pain is getting worse bit by bit i have got enhanced on both pip elements but dont get out…
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partial hearing loss
Hello, I'm asking for your help, I can't describe everything because my problem goes back 5 years. The point is that my current GP doesn't allow clinical tests, because then there's no need to make a diagnosis. He constantly accuses me of ""I'm just exploiting the system"" or sanctions me with the medicine I'm constantly…
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Shingles
Hi I am sue and new on here I got shingles on January 1st 2025 this is my second time of having this I am 64 now still have a lot of pain and itching which drives me mad also I am numb across my left shoulder blade and armpit still after 7 months tried most pain killers nothing helps also pain across my breast bone so…
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Has anyone got Multiple Scerocis
I am Vivman i have got Multiplr Scerocis. Has anyone in Scope online community got Multiple Sclerosis?
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Hi, my name is PatriciaAnn! BP meds changed. Fingernails have gone black.
About 5 weeks ago a locum GP in Spain changed my BP meds to Olmesartan/Amlodipino/Hidroclorotiazida 40mg/5mg/12.5mg as my other med was not controlling my blood pressure. Since then I have gradually felt very unwell with breathing problems, dry cough, palpitations, pains in chest, headaches, dizziness, feeling weak, nausea…
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Hi, my name is ClaireS! I think I may have EDS, but can’t get the GP to take me seriously
hi, I’m new to the forum so not sure what to say really, but im looking for some advice on something but not sure where to start really. thanks
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Knee scooters
Good evening everybody 🙂 My mobility is very poor, indoors and out. My condition in generalised, affecting most on my body. Over the years, I've failed to use almost everything mobility - related from crutches to disability scooter. I can manage a rollater walker for short distances but it's getting harder. I'm wondering…
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**** weeks of waiting since my Spinal Surgery referral.
I would normally consider myself as a patient person. After 4 years of waiting to even get a referral for spinal surgery for my scoliosis, I was referred to The Royal Devon and Exeter Hospital to see a surgeon. That was in March 2024. After the longest wait, I saw a consultant in November 2024. I wasn’t examined, and no…
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Hi, my name is Barrington! I don't really know much about Crohn's, does anyone have any info?
Hi, i've just received a diagnosis I have Crohn's. It has completely confused me, I was having tests for something else, pleased it has been picked up in those tests. I don't really know much about Crohn's apart from reading online. Any advice or thoughts, would much be appriciated. Thanks x
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Sudden Hearing Loss, Tinnitus Worse
Hi everyone. I’m new here. I’m looking for a bit of reassurance if possible. Flew back from holiday at the weekend with a cold which meant that my ears didn’t pop and were very sore and deaf after landing. I saw an audiologist yesterday who has diagnosed retracted ear drums in both ears with the right being worse and he…
