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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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We want to hear from YOU!
Your insights are crucial for a meaningful study on cervical screening. If you’ve ever had experience with it, we want to know what it's really like from your perspective. It’s quick, easy, and makes a real difference! To get involved - please see the attached poster below *** The above post has been moderated and checked…
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Hi, my name is Rimmy! I was diagnosed with BAM 10 or 12 years ago. It is a living nightmare, ...
I was diagnosed with BAM 10 or 12 years ago. It is a living nightmare, only yesterday I was coming home from the market and got the twinge and knew I would not make it home so had to nip into pub to use toilet. I take eight Imodium a day and two sachets of Colestyramine and even then , sometimes. has no effect. A sip of…
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Pain management clinic
Hi I hope I’m posting in right forum? I’ve waited 10 months for my first appointment . Got a letter saying this will be an hours phone call appointment next month . Is this normal? Included was the questionnaire sheet for anxiety/depression for your scores . It’s a psych Therapist who’s ringing me. I’m bit taking back tbh…
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Incontinence
I have incontinence of bladder die to overactive bladder on drugs and seen urologist over 20 years ago worse since fibromyalgia but as embarrassing as is to say mental health anxiety is causing bowel evacuation have mh imput and in liprimide for it prn as and when, But it's worse prob through self neglect having social…
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Hi, my name is BJB! I had a complete hip replacement 19 months ago. The last two weeks...
II was wondering, I had a complete hip replacement 19 months ago. The last two weeks, I have been experiencing hip pain, groin and but thick pain, also lower back. Could this possibly be Cox Avala? My mental health counselor mentioned it to me, she has it. Haven't gotten a x ray yet. Tomorrow, I am getting the x ray. I am…
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Hi, my name is hicky! do feel abit shy , but , well here i go , had fibro many years , then out...
do feel abit shy , but , well here i go , had fibro many years , then out of the blue, a massive flare up, which has knocked me for six , in my head i know why its happened , so out of the blue is not really true,,, but not had one this bad for a while , i think every possible weird symptoms that ive had over the years…
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Hi, my name is Deb5368! I have recently been diagnosed with Linchen Sclerosis
I have recently been diagnosed and I was wondering what things I should be doing to help living with the condition
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Hi from Matt + advice on ADHD/Autism assessments>
Hi, I am joining the Scope community on advice of a kind call handler I spoke to today. I have fibromyalgia, complex trauma and awaiting further investigation of neurodivergence (on long NHS waiting list). Does anyone have experience of going private for autism or ADHD assessment, and if so which providers/organisations…
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since i was a child ive suffered from insomnia
Since i was a child ive suffered from insomnia., since ive been ill for five years its been bad, who else suffers with this how do you cope. i can sleep well through the day but at night wow
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Hi, my name is Blossom123! I'm either constipated or have a blockage, how can I clear this please...
I'm new to this forum and I wonder if anyone can help me. I'm either constipated or have a blockage, how can I clear this please as it's quite rainfall
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cpod
Has anyone got any methods to improve my respiration functions really struggling with this. meds dont work like they use too
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Hi, my name is Amputation! Does anybody know of a grant that could help with a Prosthetic leg.
Hi. My wife has had a recent amputation of the leg. Does anybody know of a grant that could help with a Prosthetic leg.
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Hi my name is Taj25
So I want to just share my condition that I have with you all. When I was younger, (around 6 or 7) I had an infection of the cerebellum causing me to lose my motor functions which I had to learn again. I am now 33 but still have effects of my illness, most notably it has caused me Cerebellar Ataxia and I find it difficult…
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Diagnosed with HSP7. Looking for stories and information.
Hi everyone, Got diagnosed with HSP7 last October 2024. I'm 41 years old. Recently married with 2 young kids. Living over in Ireland. Taking 5mg Baclofen three times a day. Anyone else in a similar situation? Don't really know what's in my future and would love to hear some stories/information.
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Hearing but no aids
How are people communicating on the phone with hearing loss? I don’t wear hearing aid I can hear sound but can’t make out words without facial gesture and lip reading. I’ve tried txt relay in the past but it takes forever, specially so called professionals don’t seem to understand the words email or text
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Chronic Fatigue, Osteoarthritis (and more) and abilities
Hi! I will be getting my UC50 form through in the next couple of weeks. I have been looking online at the type of questions asked in regards to abilities, how conditions affect you etc for wca and pip. One concern I have is this. If I can't do something, I'm in too much pain, stiffness, fatigue etc it simply doesn't get…
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Hi, my name is jefficity1959! adhesive on the stoma bag failing. Anyone else had this issue?
Hi I'm Jeff, a 65 yo who's had a stoma for almost 6 years now. I adjusted to life with a stoma quite well but lately I've been having a few issues with the adhesive on the bag failing, which I'm sure most people who have experienced this, is disastrous. I've been in touch with my stoma nurse, who is fantastic, and I've…
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Hi everyone new here scoliosis and just looking for advice as to whether to seek a specialist ...
I'm new to this community even though I've been disabled for over some 30 odd years. Multiple issues over the years and adding to them as i age. Latest include scoliosis and just looking for advice as to whether to seek a specialist for this, as i gather they only treat it in the young.
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Hi, my name is aurorab! i have had post herpetic neuralgia for the past 4 months ...
i have had post herpetic neuralgia for the past 4 months following an extensive bout of shingles on my back and front torso. the relentless nature of the pain has been difficult to handle mentally, i have been on gabapenting for months, it does not work completely, it has helped with the spasmodic pain which is now just…
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Bicep Tendonitis
I have this extremely painful condition - to start with, everybody assumed that I had revolver cuff problems but after 3 years (misdiagnosed by consultants etc) - it was finally correctly diagnosed as arthritis of both shoulders - with associated bicep tendonitis - which is caused by the tendons swelling up and catching on…
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Pmdd
Question for ladies especially with ADHD do you or did you suffer horrendously with monthly cycles like two weeks before period crying raging bad thoughts ? Pmmd is linked with adhd and alot of young girls suffer from this I had from 12 till 50 hell on earth it's a histamine issue still don't understand fully if you have a…
