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Hi, my name is annawalewska! Surrey care home recommendation
Can anyone recommend a care home in the Surrey area for a verbal cerebral palsy young man, 38 years old, bright and needs stimulation who likes doing activities out side the home and not the usual arts and crafts on offer. Looking for a homely environment ideally not clinical, with similar disabilities and age group for…
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Neurological conditions and access to sport
Sheffield Hallam University Sport and Physical Activity Research Centre is conducting research in playing sports with adults of neurological conditions. Please see the flyer attached for more information about the study: Email: A.Abiodun@shu.ac.uk to participate
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CP Network-We need your ideas for 2025
Hi everyone. We're looking ahead to 2025 and we would love to know if you have any subjects you would like the CP Network to cover in 2025. Put your answers in the comments. Thanks. @SaraC_Scope
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Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
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Cerebral Palsy Cymru's Christmas Market
Cerebral Palsy Cymru are holding a Christmas fair on Saturday 30 November 2024. Starting at 11am until 2pm. If you live in Cardiff or the surrounding area this will be a great Christmas activity, whilst supporting a wonderful organisation. Please click on the link for more information and to register your attendance.…
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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024 at 5pm UK time. “Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to…
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Anyone on this group who has an adult child with severe CP and other issues
Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…
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Direct payments - transition to adult services and needs fall between two services
My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…
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Lower back pain months after lumbar puncture
So a few months ago I've had a lumbar puncture and I can still feel pain around the area where the needle was inserted. The pain is somewhat dull, when I press on the bone around where the needle was inserted I can feel that exact same pain that I felt when the needle was poked in and the pain that remained for a few weeks…
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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Cerebral Palsy Specialist-Cardiff
Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…
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Connecting the dots in an infant’s early development
REGISTER FOR THE WEBINAR Connecting the dots in an infant’s early development - Cerebral Palsy Scotland This webinar will provide Health Visitors and parents with practical ideas to support your baby’s development and milestone achievements. We will discuss strategies to support ongoing gross motor skill progression and…
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Hip problem due to muscle spasm
I would like to know why a person with cerebral palsy can have pain in the hip I have a strange feeling of pain on the left side of my hip Is it because I am more spastic in my legs due to my spastic diplegia What to do I am 49 years old I have not been followed by a neurologist since I was 13 We do not have many resources…
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Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
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Man with cerebral palsy who gave up hope of finding work models for Primark
Grace Dean BBC News Rachel Price BBC News A man, Elliot Caswell, is sitting in an electric wheelchair in front of a blue backdrop in a photography studio. He is wearing a grey tracksuit and a black gilet and is smiling at the camera. A woman in a black top is taking his photo with a large camera. Elliot Caswell was…
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I’m Autistic And Have Cerebral Palsy — We Need To Get Menopause Support Right
"The average age for starting menopause is 51, but for people with learning disabilities, it tends to start earlier."By Emma Fraser I’m 43 years old, I’m autistic, and I have cerebral palsy. Now, I’m also navigating perimenopause. There are around 13 million people currently peri- or menopausal in the UK, equivalent to a…
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'In horse riding I don't have to depend on anyone'
Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…
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Discover Your Paralympic Potential events
Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…
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What's Life with Cerebral Palsy Like? My Neuro Survey 2024-2025
What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…
