-
Cerebral palsy and ableism: A peer-led research project
This research project supported by Cerebral Palsy Support Network (CPSN), Scope and Deakin University, seeks participants with lived experience of cerebral palsy in Australia and the U.K. Are you an adult with cerebral palsy? Have you experienced ableism? Ableism is a form of discrimination, like racism and sexism. It is…
-
NHS Waiting list
Had a text confirming i was on list 22nd may but not heard anything else which isn't surprising but the link to check waiting time doesn't have my nhs trust on it (i live in Nottingham) Any advise?
-
Out Of My Mind’ Star Phoebe-Rae Taylor & Director Amber Sealey On Championing Disability Stories
The Disney+ original movie Out of My Mind, based on the novel of the same name by Sharon M. Draper, follows preteen Melody Brooks (Phoebe-Rae Taylor), a girl with cerebral palsy. Melody has a sharp mind, but due to her being non-verbal and using a wheelchair, she is not given the same academic opportunities as her…
-
Join us to discuss chronic lower back pain in adults with cerebral palsy
Last week, the MyCP Webinar featured Julie Stutzbach, PT, PhD and Mary Gannotti, PT, PhD, speaking about new research on chronic lower back pain in adults with CP and strategies to improve care through shared understanding of the nature of pain, communication about pain, and advocacy for treatment. Dr. Julie Stutzbach,…
-
Parallel Windsor Event
ParalympicsGB has 100 free entries available for challenge events at Parallel Windsor, taking place in the beautiful Windsor Great Park on Sunday 6th July. Participants can walk, push, or run alongside Paralympic athletes and choose from a range of distances—100m, 1K, 5K, 10K, or the unique SuperSensory 1K. There are no…
-
British Ice Skating's Let's Skate Project
British Ice Skating's Let's Skate project, launched in 2024 aims to grow the opportunities for disabled people to participate in ice skating. A number of ice rinks and clubs have signed up to the Let's Skate project to deliver new inclusive ice skating sessions. Watch this space as CP Sport are teaming up with British Ice…
-
Para Ice Hockey - Sheffield
📣 CALLING ALL FUTURE STEELKINGS 📣 We're always on the lookout for the next Steelkings players to join our growing family! And that could mean you! 😊 On the 20th June, we are running an introduction to para ice hockey for those people who are interested in getting involved in the coolest team sport going! We're particularly…
-
New Rules for Using mobility scooters and powered wheelchairs
OverviewMobility scooters and powered wheelchairs are single-seat vehicles with a battery. They’re designed to help if you have trouble walking. Who can use mobility scooters and powered wheelchairs You can only drive a mobility scooter or powered wheelchair if one of the following applies: you have trouble walking because…
-
Thinking about buying a reborn doll
For years I've always wanted to be a mum and it's getting to me now. Even when I was at school everyone had infant reallife simulator and I never had one. Now it seems that feeling is getting even harder to bare even more than finding a boyfriend. @pooleemily29
-
PIP isn't a luxury. It allows me to work and contribute to society
As the government proposes changes to disability benefits like PIP, writer Jennifer McShane, 37, shares how cuts could impact her life with Cerebral Palsy I use my PIP payment to live and work, I'm terrified of the DWP taking it away
-
Expansion of CP Network in North Wales
Hi everyone. The CP Network and Cerebral Palsy Adult Advice UK group, are looking at expanding our network meet ups in the North Wales area, allowing more people the opportunity to attend sessions. Please could members in North Wales state which area they live in the comments below. We can then pinpoint suitable locations.…
-
Carmarthenshire CP Network
Good afternoon. After the success of our joint Scope and Cerebral Palsy Adult Advice UK Wrexham meet up, I'm working with a small group of people to create a Carmarthenshire CP group. Are there any members local to Carmarthenshire who would be interested in being part of this network? Please comment below or reach out to…
-
Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
-
Should I start maybe thinking of finding a boyfriend online through another community?
Hi currently I'm limbo or rather feel as i am, I've been trying wirh the idea for ages now about joining another online disabled community, but I'm feeling like I can't because I'm too scared of what my family will think and tell me to get off it! Or do I don't for me and **** the consequences. @pooleemily29
-
Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
-
Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
-
CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being more…
-
Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
-
Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
-
Best Invention/ part of CP for people in poem form
I'll start - Glory be to the blue badge, indeed, my help anytime or at least 3 hours mine. With cerebral palsy, walking's tough,But parking close is needed enough.Those double yellows, A stress removed, a welcome start to journey success. Lets get out, no need to dread,Leaving boring parkers instead.