Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025

SaraC_Scope

The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025.

We know that 86% or one third of people with cerebral palsy develop epilepsy.

Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of despair, anger, and a sense of isolation. Family and friends can be supportive, but it is likely no one fully understands the challenges of living with cerebral palsy and epilepsy. 

Scope and Epilepsy Action have expertise in these conditions, and we want to raise awareness and share knowledge.

If anyone on this community, lives in Wales and have both these conditions, we would love to hear from you.

We are also looking to connect with family members who have relatives with cerebral palsy and epilepsy.

Hearing about everyone’s lived experience, is vital to understanding people’s support needs.

Many thanks

@SaraC_Scope

Cerebral Palsy Specialist Cardiff

SaraC_Scope

Hi everyone

I'm meeting with Epilepsy Action this afternoon to discuss our working together. We would still love to hear from community members who have epilepsy and cerebral palsy.

If you would prefer not to post here, please contact the Scope's CP Network

Kind Regards

Sara Edwards

Cerebral Palsy Specialist Cardiff

anjulirajgor

Hi Sara,

I don't live in Wales but my daughter has both of these conditions and I'd love to speak with someone. Could you please get in touch? Thanks

SaraC_Scope

@anjulirajgor

I’m very happy to speak you about your situation. If you follow the link to the CP Network in my original post, the contact details are listed.

Kind Regards

@SaraC_Scope

Cerebral Palsy Specialist Cardif