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Man's first job inspires a career in the theatre
A 28-year-old man with cerebral palsy who has been employed for the first time said it had given him the confidence to follow his dream of working in theatre. BBC News Biggleswade man's first paid job, inspires new career in the theatre Sara Scope Cerebral Palsy Specialist
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Join us for the next CP Network meeting this Wednesday, 15 January, from 6 to 7 PM
I hope you can join us this Wednesday😀! Julian Fraser and Claire Shutes from the Almond Tree Foundation ran 3 wellbeing workshops for the CP Network in November 2024. Session 1: Wellbeing is part of our nature and always available. Session 2: The role of thought and how life works from the inside out. Session 3: What does…
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Wobbling Through 2024: The Positive Stories
The new year comes with new reflection and solitude. I want to highlight some positives within the cerebral palsy community in 2024. Having worked in my role for 2 months, it is easy to get fixated on the challenges and barriers people with CP face. The individual and institutional apathy we see daily. This is a reminder…
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I Tried Meditation for My Depression—Here's What I Learned
Article from Verywellmind.com by John Loeppky Disclaimer Meditation can help some people mitigate their depression symptoms. According to experts, using meditation as a form of treatment should be in collaboration with your care team and should not be considered a one-stop-shop solution to mental health conditions. I don’t…
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
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Community paediatrics rejecting baby with CP
I am a foster mum. Baby R is with me, 3 months old with emerging spastic cerebral palsy following birth trauma.., community peads team rejected him saying he needs acute care, ( as possibly I am Seeing vacant episodes and spasms). in the last 3 weeks we have visited 4 nhs hospitals and had 1-4nights in 2 of them… acute…
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Reflections on managing change as a disabled person.
When I reflect on 2024, I recognise it’s been a year where significant changes have been a constant in my life. Some of these events have been stressful and it’s been a rollercoaster of emotional highs and lows. It’s important to acknowledge we all have different stress thresholds. Some people can manage change. Others…
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Government announces UK Neuro Forum
Andrew Gwynne MP, Parliamentary Under-Secretary of State at the Department of Health and Social Care, has announced a new UK-wide Neuro Forum will be set up to find ways to improve care and support for people affected by neurological conditions. This landmark announcement follows years of campaigning, calling on the…
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CP & surgery
Hello, I'm new to the forum. My husband (37) has Spastic Diplegic CP and is independent. He's been talking to surgeons about possible ankle surgery (fusion etc) to straighten up his ankle. Does anyone have any experience/advice around this? Can anyone recommend any good surgeons in the South East of England who have…
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Muscular Dystrophy; The struggle to plan an accessible Christmas party.
Cerys Davage a journalist at Newyddion S4C reports on her experiences of trying to find an accessible venue at Christmas. Disability: My struggle to plan an accessible Christmas party - BBC News
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Apologies! 🙄
Hi Everyone at the Cerebral Palsy Network, I'm very sorry, I've to re-post this, but a Friend accidentally gave Me the wrong info but this is the right info, I still wish I'd partied more, 🎉 🥳 🎉 studied less, 📚 made, kept intouch 📱with Friends at B.C. & much to the despair of My Parents spent My College years living like…
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Jean Martin Championing cycling as a lifelong mobility aid
The CP Network's very own Jean Martin has been named one of the 100 Women in Cycling 2024 Jean has been involved with Scope since its creation and has been cycling for almost as long! Jean has been cycling for nearly seven decades, starting with a tricycle chosen for her as a child with cerebral palsy to develop her…
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Former Paralympian realises lifelong dream to sing
Simon Thake BBC News, East Midlands A former Paralympian has set her sights on a new chapter in her life - music. Zoe Edge, from Derbyshire, was born with severe athetoid cerebral palsy, external, but she does not see her disability as a limitation. She won a silver medal in boccia at the 1996 Paralympic Games and has gone…
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End of an era for Cerebral Palsy Cymru
Glenys Evans, founder of Cerebral Palsy Cymru retired in November 2024. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadly…
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Man overcome by new accent ahead of wedding
This is the moment a young man from Birmingham was gifted a new West Midlands accent. Jack Reeve, 22, who has cerebral palsy, had been using a communication device with a robotic voice. But ahead of his wedding to fiancee Bethan in 2026, and with the help of special technology, he received a Dudley accent from an anonymous…
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Compensation
Hi all, I was diagnosed with cerebral palsy 2 years ago (I'm 44). Although I knew I had issues with my mobility all my life, it was only diagnosed 2 years ago. I have read that compensation claims should be made in early life however I wasn't diagnosed. Do you think I would stand any chance if I spoke to a solicitor. Thank…
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Voice: Sharing Stories Through Poetry: Exploring Creative Research with Disabled People
Newcastle University is exploring how poetry can be used as a creative way to share experiences and perspectives in healthcare research for people with disabilities or chronic illnesses. Participants will learn about how poetry can be used in research, take part in a simple poetry activity to share their experiences and…
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CP Network Wellbeing Series Feedback
Hi everyone. Myself, @SaraC_Scope and @Lucy_Scope would like to thank everybody who attended the Scope CP Network Wellbeing series hosted by our friends at The Almond Tree Organisation. We would appreciate it if you could leave feedback about the events
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International Day of Persons with Disabilities
Good afternoon Tuesday 3 December 2024 is International day of persons with disabilities. This BBC World Service Episode highlight the ways, people with cerebral palsy are gaining more independence using AI. "I just put my music on and I go." The wheelchair giving independence. Have a good day. @SaraC_Scope Cerebral Palsy…
