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Euan's Guide 2023 Access Survey
The Access Survey is the longest-running and largest survey of its kind in the UK. Now in its ninth year, the survey is supported for a third year by Motability Operations, the company behind the Motability Scheme. The survey takes about 15 minutes to complete, and it’s a way for you to have your say and know that your…
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Childrens cerebral palsy physio
Hi! I'm new here, mum to a 4 y/o who has hemiplegia cerebral palsy which affects his lower leg, so he is on his toes on one side. We are under the care of a great children's centre and have an exercise and stretch plan for home, provided by NHS physio. I'd like to know if anyone has experience of having additonal private…
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CP Network Wednesday 20th September at 6pm
Wednesday the 20th of September 6 pm to 7 pm is Scope's Cerebral Palsy Network meeting. This month we are joined by DisabilityPlus Counselling. If you haven't already signed up to join us, To join, please email networkcp@scope.org.uk.
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CASCAIDr Conversations: Podcasts on Principles! Social Care in England and Wales
CASCAIDr Conversations: Podcasts on Principles! At CASCAIDr, we know how the world of adult social care can seem impenetrably surreal – and how the reality is often very different from the rhetoric. We think people could do with a refresher on the underlying principles, which come from a set of rules called ‘public law’.…
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Discover the work of the National Bobath Cerebral Palsy Centre
Did you know Cerebral Palsy (CP) is the leading physical disability of childhood? Here at The National Bobath Cerebral Palsy Centre, we are proud to be at the forefront of CP treatment and training in the UK, with over 65 years of knowledge and experience. Learning more about the condition means you’ll be better able to…
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What’s your experience of growing older as a Black British person with lifelong disability?
University Ref: FHMS 22-23 214 EGA V2 26/07/23 WE WOULD LOVE TO HEAR FROM YOU What’s
your experience of growing older as a Black British person with lifelong
disability? * Are you 40 years or older? * Are you of Black or Black Mixed heritage? * Do you have Down’s Syndrome, Cerebral Palsy, Usher Syndrome, Learning…
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Exciting news from Cerebral Palsy Midlands
Cerebral Palsy Midlands has exciting news and events up and coming, if you have not reserved your place for the ‘Weoley Big Night Out’ and/or ‘Tea With Two Sugars’ and you want to go, please get booked as soon as you possibly can. Saturday 9th September 12 – 2 pm Connect Share & Information Day CPM will be hosting a stand…
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Why do less adults use orthoses than children?
Hi, I am an orthotist and I would like to ask the community about the use of AFOs, night bracing and other orthotic devices in adults with cerebral palsy. In orthotic clinics we see far more children than adults and it is a much greater difference than you would expect because children need replacement of devices more…
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CP and Adult Incontinence Pull Up Diaper Pants
I just want to share
my experience of my struggle with bladder control and the use of pull up diaper
pants. I am a 56 year old male with Cerebral Palsy. I am a full-time powered
wheelchair user and although I need help with many everyday activities, I am
independent with dressing and toileting. I used to have very good…
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HELP WITH COOKING
Good Morning Folks I have hemiplegia from birth (a type of CP) and my right side is severely weaker than my left. I also have some spasticity on the right side. I find it difficult to prepare food - peeling and slicing vegetables etc. My wife does all the cooking - I just buy off the shelf ready made meals and warm them up…
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Scope's CP Network FIRST MEETING TONIGHT!
Hello all, i'm all set for the first CP Network meeting through Scope! Who else will be joining? If you're interested in joining, i'm sure @Richard_Scope will be happy to share all the necessary details. I hope you're all enjoying the weather too? Michael
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First time COVID infection and CP
Hi! I tested positive yesterday and I’d consider my experience so far no different than a flu would be for me usually. Should I still go for Paxlovid and what other recommendations do you guys have? I’ve not yet been able to reach a medical professional. Any and all experiences are welcome.
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Why Self-employment works for me
Vicki Wilson shares why she started her business - Admin Fairy and the opportunities it has given her to support other disabled people manage her cerebral palsy. [picture of Vicki. Vicki is smiling looking at the camera. Vicki is wearing glasses, gold earrings and a yellow hoodie} I’m Vicki Wilson, I run my own Virtual…
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Being Myself The New Song
Posted on behalf of Alfie Draper. My name is Alfie Draper I’m 24 years Im a singer song, writer, and performer with mild cerebral palsy and visual impairment. I’m from West Malling in Kent. And I want to use my music as a platform to show people that anything is possible, no matter what your circumstances are. Just be…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: are 18 years or over have lived experience of CP, or support someone with CP. Including family, friends, partners or…
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CP and Seizures advice
This is just a general query to see if anyone here has both of these conditions. I'm 36 year old, have mild cp affecting right side, I had a TC seizure when I was 10, but after scans and tests came back all clear, parents were informed this most likely one off and would grow out of it. Fast forward to now, after having…
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Medical negligence
Hi, my daughter was diagnosed at 8 months old, she is now 7 years old. Does anyone know of any really good solicitors? I've tried erwin Mitchell, field Fisher, slators and Gordon's and boyes Turner. I don't even mind to start paying, I just need someone good to fight my case.
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Guildford man with cerebral palsy accused Asda of discrimination after shopping delivery cancelled
Article from SurreyLive A disabled man from Guildford has accused Asda of discrimination after a delivery driver cancelled his order just metres from his home. Daniel Jakus, 25, has cerebral palsy and was waiting patiently for his order at his flat on Epsom Road when he received a call from the delivery driver. Describing…
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Adaptive Underwear for Disabled Women
Getting dressed is one of the most personal things we can do, and for many people with cerebral palsy, it’s painful, difficult, or impossible to do independently. That’s where Nicole Cuervo and her company, Springrose. Springrose’s mission is “to design intimate products that champion resiliency and respect dignity.” And…
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Bobath Want Your Views
At the National Bobath Cerebral Palsy Centre, we are here to support people of all ages with cerebral palsy and other neurological conditions and work with health and social care services. The COVID-19 pandemic and the cost of living crisis have both had a big impact on people’s ability to access the support they need. We…
