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CP
Hello everyone I’m new here i have CP and have grown up living with it having gone through school , highschool and sixth form then into Adult life each time experiencing Bullying from people all saying mean things about the way I walk and the splints I used to wear . When I was 11 I stopped wearing splints and was never…
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The National Cerebral Palsy Football league are recruiting committee members
The National Cerebral Palsy Football league are recruiting committee members. The National CP League is the only FA-sanctioned cerebral palsy-specific league, providing regular fixtures and cup competitions. The CP League provides the official pathway to the FA Disability Cup. We are proud to be an England Football…
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Cerebral Palsy Football Coaches Workforce Project
CP Sport is looking to recruit adults aged 16+ with cerebral palsy to develop a workforce to support the growth of CP and Frame Football. As part of the project, volunteers will be supported by the National CP Football Development Officer and connected with their nearest local club/opportunity. For anyone interested aged…
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A student with cerebral palsy had to pay for her own specialist equipment
A student with cerebral palsy had to pay for her own specialist equipment to allow her to attend university after her local authority refused. Izzie Stevens, from Fleet in Hampshire, paid more than £2,000 for a hoist and a bed so she could go to Reading University to study biomedicine. She was reimbursed after "months of…
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Parliamentary Investigation into the Transition to Adulthood for Children with CP
I wanted to share the latest part of the All-Party Parliamentary Group (APPG) for Cerebral Palsy. This particular investigation covers the transition to adulthood and makes key recommendations. You can read the report here:https://connectpa.co.uk/.../The-transition-from-childhood... If you have any thoughts or comments…
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Christmas Humbug
[Santa holding bundles of money. White text on a blue background that says "Christmas is not always the best time of year"] It feels like Christmas arrives earlier every year. As soon as the Halloween ghouls and harvest pumpkins shuffle off the shelves, retailers start decking their halls in earnest. Mariah Carey and Bing…
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Communication Matters AAC Users Focus Group
Communication Matters AAC User Focus Group The group acts as a focus group for Communication Matters (CM) and is a vehicle to hear the views of Alternative and Augmented Communication (AAC) users on CM and its activities and actions. This group is also undertaking some work on behalf of CM led by AAC users, for example,…
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Electric body suit helps people with CP or MS move more easily
The full body suit, comprising 58 electrodes that send mild electrical stimulation to 40 key muscle groups, the suit is designed to relax spastic muscles, thereby helping people move more easily or walk. A life-altering high-tech body suit helped a woman with multiple sclerosis walk with ease. Earlier this year, a YouTube…
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I'd never had a close friend whose life experiences aligned so closely with my own
They say you can't miss what you never had. Until I realised there was a global cerebral palsy community and, specifically, before I met my friend Nic, I thought that was true. Nic has cerebral palsy (CP), just like me. She loves to read and write, just like me. She uses a power wheelchair and experiences anxiety, just…
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Artist and author Janelle McMillan on her everyday battle to be understood
I live in two different worlds. One of respect, acceptance and understanding when I am behind safe walls at home, but the other is filled with misunderstanding, judgement, disrespect, ignorance and sometimes downright rudeness out there in our community. I am fighting a war every day to get people to see who I really am…
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Hello
Hi my name is daisy Ray. Its taken many months for me to have the confidence to ask for help and advice about my son who has quadriplegic cerebral palsy, epilepsy and learning difficulties due to catastrophic negligence at his birth 38 years ago. I have been his main carer for most of his life until a few years ago I was…
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Is there support groups that I can join? Looking to meet new people with disabilities, I have CP
Hey everyone! I’m new to this, I’m looking to meet new people with disabilities, I have cp
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Looking for likeminded people
Hi everyone, I have a couple of disabled friends dating back to schooldays but in more recent times the mojority of connections I have made have been able bodied people this has led to me struggling with loneliness and isolation I would like to get to know likeminded people with cerebral palsy that have a greater…
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Whose Voice Is It Anyway? Channel 4 Breakthrough Film
“Whose Voice Is It Anyway” is a darkly funny mockumentary, commissioned by Channel 4 Random Acts, through Little By Little Films, and was written and directed by Kate (who has lived experience of athetoid cerebral palsy). It was filmed over the summer in North London and challenges perceptions of those with athetoid…
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As a person with disability, these are the types of comments that "frustrate" Hannah Diviney
Gleeks everywhere (guilty) won’t soon forget the moment when Artie Abrams stepped out of his wheelchair and boogied to The Safety Dance by Men Without Hats. While us able-bodied folk laughed at the ridiculousness that was Glee, relishing momentarily in the actor’s under-utilised dancing skills, for someone like 10-year-old…
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Amy Winehouse Music Therapy Room
Children at CPotential are making sweet music thanks to yearly funding from the Amy Winehouse Foundation for our Music Therapy programme. During November, Amy’s parents, Janis Winehouse-Collins and Mitch Winehouse attended a music therapy room naming event at the Centre, with Trustees from the Foundation and friends, all…
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How I Mange My CP and Spasticity
My name is @Globster, I have Cerebral Palsy (CP). Cerebral palsy can cause spasticity (tightness) of the muscles in my hands, arms and body, this tightness causes me pain and discomfort. To help manage this, I was prescribed an oral medication called Baclofen, which helps to relax my muscles and makes movement a bit…
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#BackThe1in6 on 22 Nov 2022
Join us for a day of action to #BackThe1in6 on 22 Nov 2022 Thanks to your support, the back the one in six petition has over 14,000 signatures. But we're not done campaigning yet. Please join us in a day of action tomorrow, Tuesday, 22 November 2022 to #BackThe1in6 and help reach new signatories. The more people who sign…
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APPG ON CEREBRAL PALSY
The appg on cerebral palsy was marvellous once again.
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Update! Cerebral Palsy diagnosis
Hello everyone, it’s been a long time since I gave an update and now I finally can. As you were aware from my previous posts I was having a lot of problems with my health. I was referred to a Neurologist from the Musculoskeletal Team for findings of an abnormal neurological examination. I have now seen the neurologist and…
