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Hi, my name is RachaelK! Does anybody want some trainers/shoes?
Does anybody want some trainers/shoes? My son has right-sided hemiplegia and wears a splint. We have odd pairs sized adult 9-11, larger on the right. Collect or drop off within Leics and surrounding. All box-fresh!
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New APPG on cerebral palsy - Transition to Adulthood
The APPG on Cerebral Palsy is launching a call for evidence for its next two sessions: 1. The transition to adulthood in health and education focussing on the lived experience of young people with Cerebral Palsy (26 April, 11:30am) can be watched here: https://youtu.be/PdCixizNARU</div> 2. Examining the systems involved in…
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teenage friendship worries
My wonderful daughter has CP and is now 17 years old and will soon be starting her final year of sixth form before heading off to university. For all that she is a seemingly happy and content girl, there lies beneath her smiling exterior a lonely, slightly lost, teen. And I just don't know what I can do to help her (hence…
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Hi, my name is floss29!
hi im floss i have a son who is 6 year old with cp we have been offered for him to have sdr surgery is there anyone on the group in the same situation or had the surgery
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Bobath Monthly Adult Meet -Up - Exercising body and mind
Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath neuro-physiotherapist and members of our Bobath team, you can ask us any burning questions, join the discussion and gain some general coping…
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Access, Use and Satisfaction with Physio Services for Adults with CP in the U.K.
The aims of this study were to describe how and why adults with CP living in the UK and Ireland accessed and used physiotherapy services; to describe the type of physiotherapy accessed and satisfaction with physiotherapy services and to examine the associations between relevant factors. Brunel University, Scope, CPAAUK…
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Has anybody been successfully operated on their lumbar vertebrae nerve roots?
Has anybody been successfully operated on regarding leg pain, that has been radiating from their L3 and L4 nerve roots. Perhaps even other nerve roots would be applicable.
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Virtual Reality Research for people with involuntary movements
The PRIME VR Team are inviting potential participants to join a study to evaluate commercially available virtual reality (VR) systems and hand controllers for a project called PRIME-VR2. The team are looking for people (older than 16 years of age) with hyperkinetic movement disorders (dystonia and other involuntary…
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Activities for CP in winchester Southampton area
Hi everyone So looking to move to Hampshire and need activities for CP In Southampton winchester as will need to meet people can able bodied activities is well open to people with a disability. Molly
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Subsidised Places at AAC International Conference in Leeds
Due to successful grant funding, we still have approximately 30 subsidised places available for AAC Users, their accompanying Personal Assistants, and Parents and Family Members of AAC users to attend the Communication Matters International AAC Conference this September in Leeds. Please email the office at…
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Carpol Tunnel Surgery
I have cp and use crutches to walk and about to have carpol tunnel surgery for the 2nd time in a year . I can't walk without crutches and find recovery hard. I have people to help but take away what little independence I have for a few months . I also have permanent nerve damage in hands from crutches. My cp had always…
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Hi, I'm mimiof4! I'm looking for advice about living with CP and how to deal with worsening pain
I’m looking for some advice about living with cerebral palsy and how to deal with my pain getting worse
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Bobath Monthly Adult Meet-Up Labels, Language and Perceptions
Our monthly adult meet-up is back with a brand new focus on labels, language and perceptions with Ilaria Naef About this event Join us on Zoom with a supportive group of peers, where we discuss your experiences and share helpful information on how to manage your condition at home. Led by our Adult Bobath…
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Potential Barriers to Participation in Sport or Activity
Today we invite you to take part in our biggest survey yet. This project, which has been developed by the University of Nottingham in collaboration with CP Sport, aims to identify potential barriers that play a role in inhibiting sporting participation. Following the research, we hope to fill those gaps to make physical…
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cerebral palsy. Did anyone go to the Medicine and Me conference?
Did anyone go to the Medicine and Me conference for Adults with Cerebral Pasly?
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Medicine & Me Conference at the Royal Society of Medicine
Medicine & Me Conference at the Royal Society of Medicine, London 2pm – 5.30pm, Thursday 7 July We are delighted to invite you to this ground-breaking event at the Royal Society of Medicine in London, which will bring together clinicians, researchers, and members of the community of adults with cerebral palsy, to explore…
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My hip pain with CP seems to be getting worse with age
I stumbled across this site as I was searching hip pain with CP. Seems to be getting worse with age (yay) I thought I'd join as I've never thought of it before! It's a nice idea to have a support network of people who can share experiences!
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CP and bladder control issues in later life?
I am a 55 years old man with Athetoid cerebral palsy (also known as "dyskinetic cerebral palsy") and I use a powered wheelchair to get around. I have always had good bladder control, however is recent years I have had increased problems with the frequency and urgency that I need to pee. My GP has tried several medications…
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Cerebral palsy adrenaline rushes…
I’ve always wondered if it’s normal for most people with cerebral palsy to get an uncontrollable rush in our bodies? Especially during happy or surprising moments. I don’t purposely do this. I’m thinking it’s something with adrenaline?
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Hi, my name is MaryConlan! My son has CP
My son, Damian, has cp. he is now 53 years old. I hope you are all feeling good this evening.
