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Advice for parent of 10yr old daughter recently diagnosed CP?
Hi I’m the parent of 10 year old girl. Recently diagnosed Level 1/2 CP down left side with her toe and knee turning in and lack of balance. She has lots of other diagnosis's due to been born prem baby at 25 weeks so I’ve put a lot of the cp symptoms down to other things, until now. I feel I now have a better understanding…
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Adult CP Hub Midweek Matters
[Wheelchair users clasping each other's hands next to white text on red background] Over the past 18 months, we’ve hosted twice-weekly zoom chats to support our community throughout the pandemic. To respond to what we’ve learned from our community, and to answer the questions that interest them most; we are upgrading to a…
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Hi, my name is emma1975! I'm looking for advice on managing pain with CP
Hello. My name is Emma. I'm new here. I was hoping for some advice regarding managing pain please? I am 47 in Feb, I have slight cerebral palsy which I have had a few surgeries for as a child. I am seeing my physio regularly and have just been referred back to a constant for the first time in years. I am falling a lot and…
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Why this common slang word harms people with Cerebral Palsy
TW: This article by Kelly Douglas contains words that may cause upset. Why This Common Slang Word Harms People With Cerebral Palsy “I drove all the way to the store and freaked out when I forgot my wallet. I’m such a spaz.” “When I saw Harry Styles in concert, I totally started spazzing out.” “My roommate just went…
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My Neuro Survey 2021/22
Share your experiences and help improve neuro services: Fill out #MyNeuroSurvey
Getting the right care, treatment and support at the right time can make a life-changing difference when you have a neurological condition, like Cerebral Palsy. But there are huge variations across the UK – not everyone with a neurological…
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We Need To start talking About Medical PTSD
Like many of us in the community, as a child and young adult, I underwent many, many surgical procedures in an effort to improve my physical situation. PTSD was not in my vocabulary or that of the medical professionals that interacted with me. This article touches upon feelings that I am familiar with but had no name for…
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Covid-19 and Cerebral Palsy
I have had COVID twice, I feel like it’s effected my fatigue by making it worse and also my speech has anyone else had this problem?
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Hello! Has anyone had experiences with chiropractic care?
Hi, my name is Emma, I’m 24 (25 in November) I have mild CP. I haven’t posted on here for a few years, so wanted to reintroduce myself as I’m about to begin a PhD in Sociology in October, focussing on experiences of CP, and I’ve always found the forums on here very useful for learning about people’s experiences. It would…
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Cerebral Palsy Northamptonshire
Cerebral Palsy Northamptonshire provide subsidised social events for members and their families/carers each year. These range from trips to theatres, fun days, swimming and wheelchair ice skating.Grants are also available to help members purchase special items of equipment and financial assistance towards holidays. All…
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4 Ways that cerebral palsy has affected our lives
As part of Scope's content for World CP Day, one of the members of the Network CP Group has written about her experiences as a parent to an adult living with CP. The fact that Sandra has no speech affected her education because she was a ‘good girl’ and didn’t make a fuss her basic education at school was more or less nil.…
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Laboured breathing in adults with CP
Hi, I wondered if anyone has experienced or aware of any adults having experienced laboured breathing. My 53 year old brother has CP and dysphagia but more recently he has shown to have laboured breathing at times, almost trying to catch his breath. SaLT has assessed him and feels that it will be linked to him getting…
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‘My heart sinks when people say if you can’t get a job, be a carer’
Dr Lin Berwick MBE is a disability campaigner and author. She has cerebral palsy quadriplegia, became totally blind aged 15, has partial hearing loss and is a permanent wheelchair user. She has been looked after by carers for her entire life. Listen Here
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Sudden falls and changes
Hi all, Just looking for some advice. My sons has started randomly falling, crab walking (ie side stepping,) he tells me he's answered questions when he hasnt and is stammering like crazy. Is this "normal" in your opinion for a growth spurt or am I right to be concerned? We aren't talking little changes. It's all quite…
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Muscle strains among older people with CP
Hi I'm 62 and a lifelong hemiplegic who has only recently become aware that the term "cerebral palsy" best describes my condition . I've lived my life in denial so far, knowing that I'm physically handicapped but, unless people specifically ask why I walk with a limp, I like to pretend that they haven't noticed. I've…
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Relaxation and Breathing for Cerebral Palsy
Monthly Adult Meet-Up - Breathing and Relaxation Tuesday, 25 January 2022 at 11:30 Get Free Tickets
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Positive Thinking with Stephen Miller
Positive Thinking with Paralympian, Stephen Miller Sunday 6th February 2022. Online exclusive interactive session! Go into 2022 ready with a positive mind - your most powerful muscle is in your head! REGISTER at www.cpteensuk.org/events. Deadline: Friday 28th Jan 2022, midday. Stephen has Quadriplegic Cerebral Palsy and…
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Hi, my name is ummuabdullrahman! My child is suffering from CP
Hello my child is suffering from CP and my doctor ordered me to give my child a Botox injections so I need to know how there ifectiveness for experience from another who already taken this dose thank you
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Being a cerebral palsy ally
Being a cerebral palsy ally supports the cerebral palsy and disabled communities. Each individual with cerebral palsy is their own person and has their own story. Taking the time to get to know people individually is the first step to take in becoming a cerebral palsy ally. What is a Cerebral Palsy Ally? Cerebral palsy…
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Carers
hii my partner has applied for career allowance for myself and now his Universel credit has stopped what benefit would he be entitled to now or how does Smirnoff work many thanks
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New Member Here
Hi . I am a new member here and I’m hoping to meet new friends who may have something in common with me . I am in my 30s , single and have CP . Since the pandemic, I work during the day at home alone, and I don’t know when I will get back to work in the office. Life has changed a lot in a short time, and so I’m hoping…
