Access, Use and Satisfaction with Physio Services for Adults with CP in the U.K.

Richard_Scope
Richard_Scope Posts: 3,763 Cerebral Palsy Network
The aims of this study were to describe how and why adults with CP living in the UK and Ireland accessed and used physiotherapy services; to describe the type of physiotherapy accessed and satisfaction with physiotherapy services and to examine the associations between relevant factors.
Brunel University, Scope, CPAAUK Group and other organisations worked together to contribute to this study.
You can read the full study

There will also be an accompanying animation video that will be shared my me when completed.

Comments

  • wheelygr8
    wheelygr8 Scope Member Posts: 8 Listener
    Hi is this study ongoing or has it already being completed? is it still an option to participate let me know Thanks 
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    Hi @wheelygr8, the study has been completed but I post research opportunities for people living with CP to get involved quite regularly.
  • wheelygr8
    wheelygr8 Scope Member Posts: 8 Listener
    Hi Richard 

    No worries Thanks i will keep looking 
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    We also include opportunities in the Network CP newsletters :)
  • wheelygr8
    wheelygr8 Scope Member Posts: 8 Listener
    Thanks i will look there too
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Good luck @Wheelygr8 and thank you for wanting to get involved!  :)
  • wheelygr8
    wheelygr8 Scope Member Posts: 8 Listener
    Thanks i will keep a look out for anything else that i may be able to get involved in.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hope you find an opportunity for you to get involved in and enjoy @wheelygr8 :)
  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
    My services are up to a year to wait as I'm not seen as priority because I can walk my cp not seen to effect me that much. So been forced to go private 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    edited July 2022
    That's really frustrating @mollymandy97. CP can affect everyone in different ways. That doesn't mean it affects you any less   :(  How are you feeling about going private?  <3
  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
    I don't really have much choice as been paying private for years for physio.wilst trying to get nhs as no such thing physio in my area people with LD have more access to extended service then physical need as the  deemed
  • mollymandy97
    mollymandy97 Scope Member Posts: 32 Connected
    To have high need for extra services. Which lead have access short term nhs physio because it a long term condition you don't get short listed
  • Richard_Scope
    Richard_Scope Posts: 3,763 Cerebral Palsy Network
    Hi @mollymandy97
    This is the exact situation that Scope and our research partners are seeking to change. Cerebral palsy is a life-long condition and requires long-long, consistent physiotherapy support. 
  • wheelygr8
    wheelygr8 Scope Member Posts: 8 Listener
    i agree with all said here i to are forced to use a private physio even though i have a more severe form of CP it costs so much that i can only see them once a year which is nowhere near enough i also need hydro but cant find anywhere locally that caters for all my needs
  • ALTALAQA12
    ALTALAQA12 Online Community Member Posts: 12 Listener
    Hello Ricard