Hi, my name is floss29! — Scope | Disability forum
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Hi, my name is floss29!

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floss29
floss29 Community member Posts: 4 Listener
edited August 2022 in Cerebral palsy
hi im floss i have a son who is 6 year old with cp we have been offered for him to have sdr surgery is there anyone on the group in the same situation or had the surgery 
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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Hello and welcome @floss29 and thanks for reaching out with your query. I've moved your post over into our Cerebral Palsy category so that it's easier for other members to share their thoughts with you :)

    I have CP myself and I have not had any surgery to my knowledge, when I was younger, school age, I believe I was offered surgery that would move my knee caps around, but I declined at the time, because I didn't feel comfortable with the idea. 

    Would you be able to explain what SDR surgery involves, just so that I can understand more fully?

    I'm going to tag our CP information officer @Richard_Scope, who I'm sure would be happy to chat more about this as well.

    What are your feelings on the surgery at the moment? 

    In the meantime, please feel free to have a look around the rest of the forum whenever you are ready.  

    You can find all the latest conversations in our recent discussions category, all the different topics in our categories page, and you can meet and chat with other members over in our virtual coffee lounge too.

    Let us know if we can help further with anything.

    Alex
    Online Community Coordinator
    Scope

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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    Hi @floss29
    Great to meet you. Has your son been assessed for suitability? We have some information on SDR surgery that might be helpful. The critical thing about SDR is ensuring that the aftercare and physiotherapy are in place, post-surgery. Physiotherapy is so essential to good outcomes.

    You might want to read about Katie's SDR Journey
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • floss29
    floss29 Community member Posts: 4 Listener
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    hi it all new to me as a parent for sdr it where the nurves in the spinal cord is cut to the lower limbs so that the muscules are not tight anymore 
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  • floss29
    floss29 Community member Posts: 4 Listener
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    hi richard no his main consultant is refering my son to have it all done as he said he will need it or he will get worse and not walk in a few years time me and my husband have no information on it so we are having to google it all 
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  • Richard_Scope
    Richard_Scope Posts: 3,650 Scope online community team
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    Ah, I see. Take a look at the SDR Surgery information here.
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • floss29
    floss29 Community member Posts: 4 Listener
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    thank you
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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    Thanks for explaining that @floss29, it can feel pretty unsettling when we don't have the information we need.

    And thank you for sharing what you know @Richard_Scope that's very helpful.

    Let us know how things go if you can :)
    Online Community Coordinator
    Scope

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