Carpol Tunnel Surgery — Scope | Disability forum
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Carpol Tunnel Surgery

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Carrie38
Carrie38 Community member Posts: 73 Courageous
edited June 2022 in Cerebral palsy
I have cp and use crutches to walk and about to have carpol tunnel surgery for the 2nd time in a year . I can't walk without crutches and find recovery hard. I have people to help but take away what little independence I have for a few months . I also have permanent nerve damage in hands from crutches. My cp had always been my legs then as I got older back , knees neck and now hands all because of the impact of how cp and keeping mobile effects me. Has anyone else had the surgery or  Carpol tunnel ?

I have had many operations due to my cp and had enough of them.  
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  • Sandy_123
    Sandy_123 Scope Member Posts: 50,073 Disability Gamechanger
    edited June 2022
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    Hi @Carrie38 sorry to read that you have had loads of operations and due to have another one. I havnt  had an operation for carpol tunnel, but I wish you well with it.
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Thank you sick of operations take care 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    I can hear how you are sick of operations @Carrie38. This is more of a reflection of the difficult situation you are in rather than you as a person.

    Would anything make this more manageable for you at the moment? Minus removing the operations of course because I, unfortunately, don't have those powers!  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Wish I had a time machine lol . Don't have the surgery till 19th just had right done less than a year ago  . I have friends and family. 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Ha, very good point @Carrie38. I wish I had a time machine to lend you.

    How are you feeling about having the surgery on the 19th? - apart from wanting it to hurry up of course!

    It is really positive to hear you have friends and family. Please don't hesitate to let us know if you need anything else though  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Just wish i could speak to someone simular 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    I hear you @Carrie38. Hopefully, someone with a similar experience will respond to your thread soon. I have seen your post is already tagged with CP so hopefully soon!

    In the meantime, I will tag @Alex_Scope and @Richard_Scope as Alex and Richard are the most likely to be able to support you further here  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @Carrie38
    I'm afraid I don't know anybody with our impairment, CP, that has had Carpal Tunnel surgery but I do know plenty of non-disabled people that have had the procedure. The thing that is of real benefit to everybody that has had the treatment is aftercare and exercising afterwards.
    Here is a really helpful information download from the Chartered Society of Physiotherapists, that aims to reduce pain and maintain function.
    Also, have you had any assessments with an OT and physiotherapist about the issues you have with using your crutches?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Had assessment no other options it I want to stay mobile.  Thanks 
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    I have had right hand done last year now left I have tried splints etc its long term crutch use that is the issue 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Thanks for keeping us in the loop with how things are for you at the moment @Carrie38. It sounds really tough that there are no other options.

    How are you feeling at the moment? We are here for you and listening to you if you would like to share more with us  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Just hoped someone else could of shared their experience   Walking aids are used by people with cp and my hands are peremently damaged by them . 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @Carrie38
    These crutches are specifically designed for people pre and post carpal tunnel surgery Shop for crutches at smartcrutch USA | SmartCrutch Best Forearm Sports Crutches (smartcrutch-usa.com) it might be worth mentioning them to your G.P to see if they are available in the U.K,
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Thank you i need to find somewhere I can try before i buy
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    You are welcome @Carrie38. It is the very least you deserve. Unfortunately, I'm not aware of somewhere you can try before you buy. I'll tag @Alex_Scope and @Richard_Scope in case they can help you further with this. Wishing you the best of luck with this  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    Operation Tuesday so nervous 
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  • Richard_Scope
    Richard_Scope Posts: 3,648 Scope online community team
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    Hi @Carrie38
    It is a nervous time awaiting surgery but it's important that you try to relax and focus on the benefits of the surgery.
    I have tracked down SmartCrutchUK, give them a call or an email and ask if they would allow you to test their product. 
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

    Want to tell us about your experience in the community? Talk to our chatbot and let us know. 
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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    I had the surgery Tuesday I am sore and mobility poor but ok .
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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,562 Disability Gamechanger
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    I'm glad to hear you've had the surgery @Carrie38 and that you're on the mend now, it can be a frustrating wait to recovery, how are you feeling this morning? :)
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    Scope

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  • Carrie38
    Carrie38 Community member Posts: 73 Courageous
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    I am sore and frustrated with mobility x
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