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A 13 year old I'm supporting would like to talk to someone else with CP about her personal identity
Hi, I am supporting a 13 year old with CP and she would like to talk to someone about her personal identity as she is finding it hard to meet people with life experiences in common with hers. Are there any groups/forums that we can look at together?
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Overnight care/nanny services -- information sought
We are looking for potential overnight support/care for our 11yr old youngest son who has cerebral palsy. Can anyone please recommend any reputable websites or contacts where we might be able to find a suitable nanny. Based in south bucks. Many thanks.
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Mild Cerbral Palsy
Hi, My son is 18 months old and i noticed at 9 months old that he did not use his right hand. It was such a struggle to get the professionals to take me seriously. He has finally been diagnosed with mild cerebral palsy of the right hand side that affects his right arm, hand, leg and foot. I am still fighting for physio and…
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Hi, my name is MaddieMaddie! I am the mother of a one year old girl who has CP
Hi!I am the mother of a 1 year old girl.She is diagnosed with CP in all 4 limbs. She can move all of them very nicely,but every time the physiotherapist comes to see her she gets stiff as a rock and screams her heart out.I can manage to calm her down,but the physiotherapist recommended Baclofen.She has requested in a…
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Anti spasm medication prn
Hi, my name is Lisa and just wondering whether there is such a thing as anti-spasm medication where you can take it as and when you need it rather than taking it on a regular basis? Any advice would be appreciated
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Cerebral Palsy Often Genetic, Study Finds
New research suggests that as many as a quarter of cerebral palsy cases are related to an underlying genetic condition. Researchers sequenced the DNA of 50 children and adults with various types of cerebral palsy. About half had no known risk factors for the condition while the remainder were either individuals with a risk…
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How do I find someone who will accept me as I am?
I'm wondering if there is a method of meeting young people with mild cerebral palsy and ASD.. without using a dating app such as Tinder.
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University of Worcester CP Football Team 2022
Please come and join us at
our University 3G pitch for our first training session every Wednesday from 12th January 2022! Anyone with
cerebral palsy or a diagnosed mobility impairment is welcome to attend our free
introductory event to get involved and hear more! Sessions will be led by 3rd
year coaching student Harry…
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Post impairment syndrome
The article on the post impairment syndrome was very interesting. I have being experiencing all of the mentioned symptoms for the last two to three years. I don't think lockdown helped. I had to highlight this to my GP and her answer was antidepressants ? To manage my fatigue. How do others manage their fatigue. I am glad…
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Dieting with CP
Hi, hope you’re all well! just a quickie for once 😆 does anyone know of any good, healthy and ideal diets? Is there any special food that is good for CP? I need to loose abit of weight to help with my legs and mobility! Thanks!
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Advice for parent of 10yr old daughter recently diagnosed CP?
Hi I’m the parent of 10 year old girl. Recently diagnosed Level 1/2 CP down left side with her toe and knee turning in and lack of balance. She has lots of other diagnosis's due to been born prem baby at 25 weeks so I’ve put a lot of the cp symptoms down to other things, until now. I feel I now have a better understanding…
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Adult CP Hub Midweek Matters
[Wheelchair users clasping each other's hands next to white text on red background] Over the past 18 months, we’ve hosted twice-weekly zoom chats to support our community throughout the pandemic. To respond to what we’ve learned from our community, and to answer the questions that interest them most; we are upgrading to a…
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Hi, my name is emma1975! I'm looking for advice on managing pain with CP
Hello. My name is Emma. I'm new here. I was hoping for some advice regarding managing pain please? I am 47 in Feb, I have slight cerebral palsy which I have had a few surgeries for as a child. I am seeing my physio regularly and have just been referred back to a constant for the first time in years. I am falling a lot and…
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Why this common slang word harms people with Cerebral Palsy
TW: This article by Kelly Douglas contains words that may cause upset. Why This Common Slang Word Harms People With Cerebral Palsy “I drove all the way to the store and freaked out when I forgot my wallet. I’m such a spaz.” “When I saw Harry Styles in concert, I totally started spazzing out.” “My roommate just went…
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My Neuro Survey 2021/22
Share your experiences and help improve neuro services: Fill out #MyNeuroSurvey
Getting the right care, treatment and support at the right time can make a life-changing difference when you have a neurological condition, like Cerebral Palsy. But there are huge variations across the UK – not everyone with a neurological…
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We Need To start talking About Medical PTSD
Like many of us in the community, as a child and young adult, I underwent many, many surgical procedures in an effort to improve my physical situation. PTSD was not in my vocabulary or that of the medical professionals that interacted with me. This article touches upon feelings that I am familiar with but had no name for…
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Covid-19 and Cerebral Palsy
I have had COVID twice, I feel like it’s effected my fatigue by making it worse and also my speech has anyone else had this problem?
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Hello! Has anyone had experiences with chiropractic care?
Hi, my name is Emma, I’m 24 (25 in November) I have mild CP. I haven’t posted on here for a few years, so wanted to reintroduce myself as I’m about to begin a PhD in Sociology in October, focussing on experiences of CP, and I’ve always found the forums on here very useful for learning about people’s experiences. It would…
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Cerebral Palsy Northamptonshire
Cerebral Palsy Northamptonshire provide subsidised social events for members and their families/carers each year. These range from trips to theatres, fun days, swimming and wheelchair ice skating.Grants are also available to help members purchase special items of equipment and financial assistance towards holidays. All…
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4 Ways that cerebral palsy has affected our lives
As part of Scope's content for World CP Day, one of the members of the Network CP Group has written about her experiences as a parent to an adult living with CP. The fact that Sandra has no speech affected her education because she was a ‘good girl’ and didn’t make a fuss her basic education at school was more or less nil.…
