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Access to online community
Our daughter has cerebral palsy, is aged 37, and receives full time care in a nursing home located in Gloucestershire. Her world has been adversely affected by the pandemic. She has become isolated and insular and we are seeking a safe online pen friend type service to.help her re-connect with the world safely, following…
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Cerebral Palsy Should Not Be a Barrier to Total Hip Replacement Surgery
Individuals with neurological conditions can face obstacles when seeking medical treatment. Patients with cerebral palsy (CP) may experience painful symptoms of hip osteoarthritis as adults and may potentially be overlooked for consideration as surgical candidates for total hip arthroplasty. A recent study by Yale…
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Hi, my name is Beth. My son may have mild hemiplegia, and I'm feeling a little lost
Hi, I am a children’s physiotherapist. My son is one year old, I had noticed he has a clear hand preference and occasional high tone, associated movements and some difficulties in reaching milestones. After pushing for an assessment, it has been discussed he most likely has a mild hemiplegia and we are waiting for an MRI…
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Falling over
As a child I used to fall over all the time as I got older that lessened and last few months I’ve fallen over almost every day I almost got hit by a car yesterday as I fell into the road my mum made me call Gp they referring me to a orthopaedic and neurologist specialist and I’m just wondering if anyone else has had these…
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CP Welcome Café starts Monday 3rd of August at 4pm
We want to provide an opportunity for people with Cerebral Palsy or a similar disability who are 20 and over to get together and chat. We will run these sessions in partnership with CP Sport every Monday starting from the 3rd of August. There will be an opportunity to find out more and meet people from both organisations…
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sharing my experience with cerebral palsy, what is yours?
Hello everyone. My name is Christopher and I was born with cerebral palsy. I found this community as I've been wanting to connect with more people like me. I recently turned 30 years old and as I've aged my pain is getting worse. It's quite difficult. I am able to walk with the assistance of a stick. But I am in pain every…
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Cancer treatment advice for somebody with CP please
I'm looking for advice regarding cancer treatments. My dad has recently been diagnosed with bladder cancer. He has been advised the best treatment to go along with keeping his daily life as normal as possible would be palliative radiotherapy. He tried to have a planning scan but couldn't keep still due to his cerebral…
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Hi, I’m shy ?I'm looking to learn more about CP
Hi all, I’m new here and a little shy. I’m looking to learn and understand more about CP, I do not have the condition myself but someone special to me does so I have a lot to learn!
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Moaning behaviour from 10 year old.
My son is 10 and has CP has a result of oxygen deprivation at birth. He is mobile, Cs speak and is cognitively 4-5 years behind his peers. He tries hard at everything but some weekends are just exhausting. He moans all day. Doesn't want to do anything but then does, wants us to be with him then wants to be alone. He just…
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Very mild CP - anyone with experience? How might it develop? Should she wear AFOs?
Hi, I’ve just found out my daughter has mild CP - she’s 5 and it seems to just be affecting her with a bit of tip toe walking on the left leg and spasticity on that lower leg. People haven’t noticed but her gymnastics teacher highlighted it and now I can see what she means. Does anyone know how much very mild CP can…
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Introduction. My son has quadriplegic cerebral palsy. I'm interested in talking to other parents
Hi I am Samira . I have a 51/2 year old boy with quadriplegic cerebral palsy . He has quite complex needs . I would be interested to talk to other parents going through similar .
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Baclofen- to take or not
I’ve recently seen a Doctor and he would like to prescribe me Baclofen, I’d never heard of it before last week. Does anyone have any experience of taking it. Good and bad. I don’t have spasms but my legs are tight and heavy. Which is in turn painful.
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Call for Evidence for the All Party Parliamentary Group for Adults with Cerebral Palsy
CALL FOR EVIDENCE The APPG on Cerebral Palsy is holding a call for evidence for its next two sessions: 1. Barriers for adults with Cerebral Palsy accessing and receiving healthcare that prevents them from ageing well and full life participation. (Tuesday 14 September – 2pm) 2. Barriers to employment facing people with…
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My grandson has an early diagnosis of CP. What treatments are privately available?
I’m the grandmother of a 1 year old little boy who has early diagnosis of CP. I’m wondering what treatments are privately available and what is recommended.
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APPG on Cerebral Palsy Second Session 9th of November at 2 pm (Virtual meeting)
[Image advertising the second APPG and the panel of speakers.] As part of the on-going work into cerebral palsy as a lifelong condition, the All-Party Parliamentary Group on cerebral palsy is holding a session on 'Barriers to employment facing people with cerebral palsy entering, staying in and progressing in work, and…
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What I Wish Doctors Would Tell Parents About Cerebral Palsy
[Mother looking at toddler/small child] It seems like the majority of doctors do not have anything positive to say about cerebral palsy when they share a new diagnosis with parents or other loved ones. As I think about this, my mind is just spinning and twirling, wondering: Why in the heck don’t doctors tell parents about…
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Should we look for additional support for our 1 y/o?
Hi all, My 12 month old son is likely to have CP, just waiting for a final sign off on the diagnosis. I've had a look around the site and forums quite a bit, there's been lots of great info which has really helped us process. I did want to ask a question though, or be told I'm over thinking it! We've started some NHS…
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Hi, my name is claire29! Any adults with CP who have had a knee replacement?
I was looking for some experience of any adults with CP who have had a knee replacement. It’s something I’m going to need, so wanted to know how anybody got on and how was the recovery. ?
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My son has cerebral palsy. Does anyone know if there are any wellies that would fit AFO's?
Hi, I have 4 year old twin boys, one twin has mild cerebral palsy, from lack of oxygen at birth, he walks with a AFO splint, just wondering if there are such wellies that would fit AFO’s? Looking forward to any replies xx
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Adult Shoes/boots to wear with AFOs?
Hi I’m Zara. I have Spastic Diplegia CP. I’m struggling to find winter shoes that will fit over my AFOs? Recommendations will be appreciated ?
