-
Advice on electric wheelchair batteries not holding charge
My electric wheelchair batteries not,holding charge I appreciate your advice
-
Videos for managing your CP
The National Hospital for Neurology and Neurosurgery (NHNN), University College Hospitals London's (UCLH) Spasticity Team and Brain Appeal have put together some advice videos for people living with Cerebral Palsy (cp) and their families and friends. Episode 1. Spasticity Overview and Management…
-
Search for Yorkshire Accents
Yorkshire accents wanted to replace 'generic' speech aid voice A man whose speech aid makes him sound "American" is looking for volunteers to help him speak in his native Yorkshire accent. Richie Cottingham, who has cerebral palsy, says his speaking aid's generic voice does not represent his identity. "I want to sound like…
-
Mark CP Awareness Month with CP Sport
#LetsTalkCerebralPalsy Cerebral Palsy Awareness MonthMarch 2021 Regular participation in physical activity can make a big difference to people with cerebral palsy. Read on 'Twenty Miles This March' fundraiser for CP Sport Join in Celebrating 20 Years of CP Sport - Saturday 27th March Register now Cerebral Palsy Sport…
-
Lockdown, homeworking and CP
I’ve not written much on here since I was first diagnosed with mild CP at 44. However, I’m after some further advice/reassurance please! I’ve been homeworking now since April and although at the beginning and during the time between when I was furloughed I did go on regular walks with my partner. However, I’ve now seen an…
-
#StampOutTheGap with Adult CP Hub and Scope
Adult CP Hub has launched a campaign during Cerebral Palsy Awareness month to create equality in healthcare for people living with CP. The ‘stamps’ have been launched to raise awareness of how adults with CP are treated like ‘Second Class Citizens’ when it comes to healthcare. Charity Adult CP Hub is asking the Government…
-
Free Events with Bobath
Join Bobath for a moth of virtual events marking Cerebral Palsy Awareness month. To book the free events visit www.bobath.org.uk/EVENTS #letstalkcerebralpalsy
-
Nerve damage/CRPS?
Hi everyone Hoping someone can help with the current hell I find myself living in. 20 months ago I had my second child via c section. The spinal anaesthesia was administered incorrectly (hospital words not mine) and at 3 days postpartum I was admitted with severe burning in the right leg, no bladder function and a…
-
Disabled Actors Needed!
Validation (A Rap Musical) by David Thorpe ZOOM READINGIncludes minimal rehearsals and ONE Zoom Table Read that will be Ticketed. All actors will have their script open on their desktop for the reading. SYNOPSIS When attending the Edinburgh festival, journalist Owen, who has cerebral palsy, is doubly amazed when for the…
-
Painful ‘knot’ in weaker leg
Hello! I’m just wondering if anyone has either had a similar experience to this or any remedies... I have CP which affects my left side predominantly. Every few weeks I get a ‘knot’ in my weaker leg’s calf that makes it painful to walk and it feels like my muscles are really clenched. Has anyone else with CP experienced…
-
Events week of 22 Feb with CP Midlands
Hello everyone – here we are set up for another week of online activities on zoom and Facebook. Here are all the links below. Cerebral Palsy Midlands 2021 Up and coming online activity plans – Week 8 Monday 22nd February 12pm Catch up on Zoom https://us02web.zoom.us/j/82770538958 2pm Music with Matt live on the CPM…
-
Hi, when will my son receive the Covid-19 vaccination
Hi my Son is Spastic Quadriplegic CP from birth non verbal and has Autism... he needs all care .. he sits in a moulded wheelchair and can use a joystick and one finger to find his way round the internet ... what is troubling me is we never got a shielding letter for him and can’t make out why his CP friends have had there…
-
Medical notes
Hi all! My daughter has been recently diagnosed with cerebral palsy, specifically hemiplegia. She was also born earlier. We have now started physiotherapy but I would like to have all the medical notes of my antenatal care and labour (with details). Has anyone done this before? Do you know how to obtain this information?…
-
My son has Cerebral Palsy and is dependant on a wheelchair
My son has cerebal palsy and is dependant on a wheelchair. For quality of life I am thinking amputation of below knee and prosthetics for him as his upper legs and waist are strong has anybody had this please. He is 21
-
Hip Replacement
Hi I was diagnosed with coxa valga back in January 2020, and have finally been given a date for my first replacement of 25 February, but I'm really anxious. Not about the surgery itself so much as the aftercare and being told that hip replacement surgery hasn't been performed on anyone in North Devon or even most of Devon.…
-
Eternal Healthcare: Women and girls speak. The final film
As some of you might be aware Scope, The University of Birmingham and The Burdett Trust for Nursing are carrying out research into the experiences of women and girls dealing with reproductive healthcare at different stages of life. As a part of the ongoing research, some interviews were filmed. Here are their experiences…
-
Online Sessions for CP and Powerchair Footballers with CP Sport and WFA
During these difficult times, we are keen to support clubs and players unable to participate or restricted with what they are able to do. There has been fantastic work done by clubs to keep in contact with their players and we are keen to add to that support and engagement. CP Sport and The WFA have partnered up to bring…
-
Inclusive and Positive Gaming from Xbox Ambassadors
Paul Martin grew up playing video games as a way to do things he couldn’t do in real life: play baseball, walk, fly. But for a time he stopped engaging in multiplayer titles. It got too toxic, too negative. For Martin, whose gamer tag CerebralPaul#921 is a play on his name and his cerebral palsy, it was too much to deal…
-
Virtual Chats with Scope and CP Sport
It's been fantastic to see so many of you at our cafes this year so far. These virtual cafes are free and are held on Zoom. They are a great opportunity to meet with other people with cp as well as discuss topics relevant to disabilities and sport, and occasionally hear from our special guest speakers. For u25 age group.…
-
CP Sport Fitness Classes
CP Sport and Inclusfit have joined forces to bring you a variety of online fitness classes which are inclusive. Classes are taking place every Tuesday at 5 pm throughout February on Zoom. InclusFit is run by Sam James who is an experienced award-winning fitness instructor, Personal Trainer and a UK Disability Fitness…
