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My grandson has Lennox Gastaut and CP. Dr has recommended Corpus Callosum surgery. Anyone had this?
I am Jojos grandma and he has Lennox Gastaut and Cerebral Palsy. He has continuos seizures and we have tried various combinations of meds with no luck. After several VEEG and MRI’s his Epileptologist has recommended a Corpus Callosum surgery. Jordan is non verbal and becoming a teenager this month. I am here to read, learn…
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Hi, my name is katy94! Has anyone else had other diagnoses as well as CP?
Hi there scope, my name is Katy and I have left hemi, I’m 26 and had this all my life. I’ve recently had a baby and since found that my problems seem to have worsened. Has anyone on here had any experience with this? I’ve only just found out about scope and I think it’s amazing that I can find people on here who have…
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Hi, my name is tinathomas! Any ideas how to help our daughter cope with communicating with friends?
Hi I have a daughter with cp she is 28 years old we are having problems with her she has a mobile phone and if some of her friends don’t answer she gets angry and cries and swears a lot it can go on for hours tI’ll the person answers her wondering if any one has any idea to help us
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Is my intuition right?
Hi there, I just had a question regarding aging with CP and if it’s “normal” for your body to become more spastic as time goes on. I’ve recently been having small accidents. I have seen my primary care doctor and my neurologist and they recommend protective underwear. My intuition is telling me that I may be developing…
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I am 19 and I have cerebral palsy
I am 19 and I have cerebral palsy. Throughout lockdown I have really struggled with the lack of socialising and more importantly with my mental health! Recently, my stiffness has got really bad and I am not sleeping very well due to it. Can anyone recommend anything to help ease it as I'm getting really frustrated with it!!
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Hi, my name is olivia_99!
I am 21 and have Cerebral Palsy and Cerebral Visual Impairment and it’s mild. I’m wondering if anyone wants to talk about CP or what your experiences are?
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Hi, my name is LibbyJ!
Hello,. I’m looking for advice. I have a 19 yr old daughter who has an EHCP in place. She is profoundly dyspraxic but every physio she has been under has suggested that she may have mild cerebral palsy. We’ve never investigated this avenue as with her other needs/ diagnosis, she was getting the correct amount of support/…
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Aging with CP... suggestions needed
Hello, Apologies if this is the wrong place to ask. I'm new here. The wealth of information is a bit overwhelming and I can't see the wood for the trees. So it's a bit of an essay but here goes... I'm 42. I used to say I had mild CP, but seriously... the pain, constantly throwing coffee everywhere (spasms), having to…
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Mild cerebral palsy and tummy pain
Hi, I’m looking for some advice. I have a 10yr old son who was diagnosed with mild cp as a toddler. He has a very slight left sided weakness and occasional leg pain, but it’s almost invisible to anyone else. Since he was able to speak, he has complained of a “sore tummy” at bedtime and has difficulty getting to sleep.…
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Research Inquiry
Hello, My name is Nadia (Removed surname) and I have cerebral palsy. I am a masters student at the University of Oxford studying the lives of physically disabled children from 1920 to 1940, specifically examining their identity, representation and agency. I am looking for first-hand accounts of children who may have used…
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Cerebral Palsy Sport launches new Club Finder as the nation returns to play
Cerebral Palsy Sport launches new Club Finder as the nation returns to play As the government eases lockdown restrictions for sport, more people with cerebral palsy will be able to find local sport and activity clubs through a brand-new online club finder. Cerebral Palsy Sport (CP Sport) has launched ‘Club Finder' on its…
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Cerebral palsy study for children aged 10-16
Hello everyone! I'm posting on behalf of our research team in Oxford. We are currently running a research study in Oxford for children aged 10-16 years old with cerebral palsy. The aim of the study is to determine if the combination of a non-invasive brain stimulation technique (called tDCS) and physical therapy can assist…
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Network CP Survey - win £50 for sharing your thoughts.
Network CP is a special interests group for the Cerebral Palsy community and their families in England and Wales which will help Scope shape various strands of its work. We would like to work with you to understand your needs better. This survey will only take 5 minutes of your time and by completing it you influence and…
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Post 16 transitions for young disabled people
Educational Pathways and Work Outcomes of Disabled Young People is a 3-year research project funded by The Leverhulme Trust. We are based in the Department of Sociology at the University of Warwick. Our aim is to explore the factors that lead to disability inequalities in educational and occupational attainment in England.…
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Is cooing a good sign?
I have a 2 months old son that has been diagnosed with quad cp. How can you tell their cognitive functions are not affected please? My baby started cooing a few days ago.
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Writing My Story by Daniel Kay
Writing my own story means I can fill it with the memories I want. I can tell you how colourful the viewIs from my side of the coin.It has a little to do with luck. And everything to do with a mindsetthat lets me see the world for theconstant fireworks show that this life gives. It doesn’t ask for anything in return,and I…
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Thumb splint
Does anyone have any recommendations for thumb splints? I have v mild CP and use one crutch to walk and, of course, the hand I use the crutch with is my worst hand as the little and ring fingers are clawed and the thumb on that hand is now catching and sticking when I bend it. The crutch was recommended to stop falls and…
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Dear Occupational Therapy Community
Georgia Vine is an Occupational Therapy student and ambassador for CP Teens, she also writes the most excellent blog Not So Terrible Palsy. I will let Georgia explain in her own words Now, I know what you’re thinking and yes, this post is a bit late in the month to just be addressing this subject, there is a reason and…
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We Won't Be Forgotten
As part of our We Won’t Be Forgotten Campaign, we are currently trying to reach out to disabled people facing financial worries (employment or welfare-related) as a result of the pandemic. An example might be someone who is worried about returning to the workplace or has been denied furlough, or someone who has had their…
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It's not too late to Spring into Action!
Exciting news! If you haven’t signed up for Spring into Action yet it’s not too late! The programme which we have created specifically for adults with cp will now start on the 19th of April with the deadline for entering closing at 8 pm Friday 16th April. Spring into Action is a 12-week programme designed to get you…
