I am 19 and I have cerebral palsy — Scope | Disability forum
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I am 19 and I have cerebral palsy

HollyG
HollyG Member Posts: 9 Listener
edited November 2020 in Cerebral palsy
I am 19 and I have cerebral palsy. Throughout lockdown I have really struggled with the lack of socialising and more importantly with my mental health! Recently, my stiffness has got really bad and I am not sleeping very well due to it. Can anyone recommend anything to help ease it as I'm getting really frustrated with it!!

Comments

  • Ross_Scope
    Ross_Scope Posts: 7,507 Scope online community team
    Hello @HollyG and welcome to the community, glad you've joined us :) 

    Many of our members have CP and I'm sure they will be more than happy to offer their suggestions. We also have a dedicated Cerebral Palsy category, which I have moved your discussion to, and a specialist information officer for CP who is the wonderful @Richard_Scope

    Again I wish you a very warm welcome, if you ever need any help navigating the community feel free to give us a shout :) 


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  • Tori_Scope
    Tori_Scope Posts: 9,682 Scope online community team
    Welcome to the community @HollyG :) As Ross said, we have lots of members with CP so I'm sure they'll be able to give you some advice and support.

    Have you ever heard of CP Teens UK? It might be worth getting in touch with them as well if you haven't already, I've heard really great things.
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  • janer1967
    janer1967 Member Posts: 16,504 Disability Gamechanger
    Hi and welcome from me too, I hope you get the info you are looking for 
  • Richard_Scope
    Richard_Scope Posts: 3,178 Scope online community team
    Hi @HollyG
    Great to meet you but not so great to hear that you have increased stiffness and are feeling isolated. 
    It's really important that you keep mobile as much as you can to manage the stiffness, are you able to keep up with your stretches at all?
    Another good way to manage the stiffness is out baths with magnesium bath salts. If you only have a shower you can now get magnesium shower gels. 
    Is your leg stiffness usually manageable?

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @HollyG
                        Welcome to the community and thank you for joining us. How are you? I am sorry to hear of the struggles you are currently facing, it must be difficult. I completely agree with @Richard_Scope, keeping as mobile as possible is really important, please may I ask do you have a physiotherapy programme that you are able to carry out?
    It's really difficult not being able to socialise in the way that we usually would, here on the community there are lots of conversations taking place, so please do feel free to join in with any conversations which may be of interest to you. Please may I ask, what interests do you have? Please do ask any questions you may have, this is a brilliantly supportive community and there are many lovely people. We are all here to support one another :) Thank you
  • HollyG
    HollyG Member Posts: 9 Listener
    Hi both 

    Thanks for the advice 

    I'll have a look at the magnesium soap ( I love a good bath!)

    I go to a specialist college and I used to have hydrotherapy and ti chi every week but because of the current situation I'm not getting any physio and I don't do anything at home. 

    I'm a typical 19 year old who likes TV, music and my friends are really important to me 
  • Ross_Scope
    Ross_Scope Posts: 7,507 Scope online community team
    HollyG said:
    Hi both 

    Thanks for the advice 

    I'll have a look at the magnesium soap ( I love a good bath!)

    I go to a specialist college and I used to have hydrotherapy and ti chi every week but because of the current situation I'm not getting any physio and I don't do anything at home. 

    I'm a typical 19 year old who likes TV, music and my friends are really important to me 
    What music do you enjoy @hollyG ? :) 
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  • WestHam06
    WestHam06 Member, Scope Volunteer Posts: 1,396 Pioneering
    Hi @HollyG
                        I'm sorry to hear that due to the current situation you are unable to access the physio that you would usually do, that must be both difficult and frustrating. Please may I ask, do you know when these activities may be able to be restarted at college? I hope that you are able to try the magnesium  soap and that it makes a positive difference for you :) Awesome, please may I ask what music do you like to listen too? What is your favourite tv programme? Thank you
  • HollyG
    HollyG Member Posts: 9 Listener
    I don't know, I think they are hoping January time but who knows 

    I love queer eye on netflix and I love the singer Frank Turner 
  • Ross_Scope
    Ross_Scope Posts: 7,507 Scope online community team
    HollyG said:
    I don't know, I think they are hoping January time but who knows 

    I love queer eye on netflix and I love the singer Frank Turner 
    Frank Turner is awesome, I'm a big fan of his too. I saw him live in 2017.
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  • HollyG
    HollyG Member Posts: 9 Listener
    I've seen him 3 times and the last time was the week before lock down in March so we were lucky 
  • matthew2909
    matthew2909 Member Posts: 22 Connected
    HollyG said:
    I've seen him 3 times and the last time was the week before lock down in March so we were lucky 
    Hey How are you im matthew I dont have cp but i have dyspraxia which is sort of similar

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