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Feeling down
Is it normal to have more down days than up days, im feeling tired more often too. There does not seem to be any l8ght at the end of the tunnel with this TM.
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Navigating through lockdown
I’ve been shielding with my boyfriend for around 10 weeks
now. I have a condition called EGPA, which is a type of vasculitis, and my
boyfriend has Ulcerative Colitis. These are both autoimmune conditions which
make us vulnerable to illness. As a result, we have had to live in the
strictest conditions to avoid contracting…
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Noisy neighbour
Hi everyone, My mum and I moved into a flat recently and we love it but we have one issue - our next door neighbour is incredibly noisy, especially at night. We believe him to be mentally disabled in some way as we often hear him making loud noises and continuous laughter when he is in on his own. He also has his music up…
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Dyspraxia
I got diagnosed in January and then I had to go through the realisation that I was vaguly normal. In the lockdown, I have these achy hands that I know are in my head because I tested it. I tod myself that there was no pandemic, and the pain went away. It's getting me really down, as well as my dyspraxia and I don't know…
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CoVID-19 coming out of lockdown Home Testing kits
Dear Members As we come out of lockdown if you do as I do like in at at risk group or you are a registered carer including unpaid carer ai found out from Carers UaK that 0if you suspect you may have had the virus and dont attend work to get tested I have been informed that you can pay for a home testing kit, which to be…
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Question
Hello I would appreciate if anyone on the scope community recommended where I could get washable face masks from?
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Would anyone like to do some cycling?
Hi, is there anyone who is within 5️ish miles of Sale Cheshire that would like to cycle. Usually around 18-20miles round routes at 10-15miles per hour. Regards
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Scared about growing up with a disability
Hi guys I want to share a worry about you. I dream about living a fully independent life where I’m married with kids but I worry that non of this will happen due to my disability. I worry that I might not be able to have kids or get someone to want to spend their life with me. It sometimes frightens me and makes me nervous…
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Hi to all
I have been having lots of joint pain swelling in my wrists joint pain and stiffness in every joint of my body I now have a frozen shoulder from when the chronovirus started still having problems getting dressed and undressed as cannot lift arm up to do the above. I am also having problems as when I walk I loose my balance…
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When priority for wheelchair users actually means first come first served
Brittany Ferries stated policy on their website is that wheelchair users get priority for booking the very limited number of accessible cabins available on their ships, though people with other disabilities may also book subject to the proviso that they may be asked to move to a different cabin. We live in the West Country…
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I have a feeling I am alone on this
Does anyone else struggle to keep occupied for long periods of time or are happy doing something but one little thing goes wrong and you just can't continue that activity because you are so frustrated with yourself?
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Positives from the pandemic
Hannah became disabled after an injury when she was a teenager. It left
her with Complex Regional Pain syndrome and a range of secondary illnesses and
complications. After spending most of her teenage years bed-bound and in hospital,
she is now a 29-year-old disability and lifestyle blogger. These past 3 months or so have…
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Get back on my feet without the use of support
Hiya everyone. I have HSP and was diagnosed with it from the age of 3. I'm now 37 and daily life consists of getting around with 2 elbow crutches and for long journeys I use a scooter. I had a intrathecal baclofen pump fitted last year but finding it has caused me more issues since having it fitted. Just wondering if…
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Becoming a mum as a young disabled woman
I’m Courtney. I’m 24 and I’m a mum to a six and a half month old baby boy called Hadley, and I live with chronic illnesses and a disability. I’ve recently started blogging again after taking a hiatus. I blog about the outfits that I’m wearing, baby and parenting, beauty, things to do with my health, and lifestyle over at…
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How has coronavirus impacted life for you and your children?
A group of MPs, the House of Commons
Education Select Committee, is looking into how Coronavirus has impacted
children and their education. After carrying out their research, they will be
using their findings to recommend ways that the Government can help address
these problems. We’re keen to hear how life has changed
for…
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Feel like the country doesn't care I'm disabled
Hi everyone - I’m 20, I suffer with arthritis, depression and anxiety, while trying to care for my younger sister, and all my pets (goldfish, ferret and guinea pigs). I’m an immigrant (From US to U.K.) so it’s been a tough journey for me to possibly get benefits, which will be cancelled in 2yrs time and I will have to do…
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Shielding scheme may end in July - how do you feel?
July doesn't seem too far away at this point, but how do you feel about the possible end of the shielding programme? Are you ready to go back outside? Do you feel safe to do so? Do you feel it's too early or can it not come soon enough?
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Hydrotherapy or even local pools to our area
my daughter desperately needs to access a hydrotherapy pool or even a local pool with changing facilities,i,e, hoisting and adult size changing table. it would be good if it were NHS or we would consider private. We live in the borders of london and kent. if any of you know of somewhere we could take her for this facility,…
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Terrified of the risks - brain surgery
My partner has a syrinx and is due to have brain surgery and is petrified of the risks. We have a young family and she is worried about side affects etc. Any help with this to ease her mind?
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Therapy
Has anyone heard of the Bowen therapy?
