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Campaign Promoting Children Disabled Social Services and Reducing Stigma
My name is Joanna, I am a registered adult nurse and I am a mother to 4 children, my oldest and will be 11 this August, has Cerebral Palsy and is severely disabled with complex health needs. Over the years we have had to fight, pretty much for everything to get what she needs. One of these fights was to get a social worker…
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Need: information about positive attitudes around disability. I want to talk to my son about this.
Hey, all, I had a question about positive attitudes around disability (my son and I are ADHDers) and I was referred here by a disabled person I follow on Instagram. I'm hyperlexic, so I prefer text communication.
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Can anyone answer this question?
Evening all. Can anyone answer this question. If I had to have social care and needed to pay a contribution is there a way of paying it that it would still be paid if I became incapacitated and could not do it myself. Can you set up a direct debit with the council or get an advocate from the council to help. I would also…
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Nappy changing always does my back in
Nappy changing is the one for some reason it always does my back no way around it gets me every time! any ideas
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Coping with a teenager that has given up
My 17 year old daughter became disabled in 2018 after an illness I am her full time carer. She is a wheelchair user with limited strength in her upper body and suffers with anxiety, chronic pain and fatigue. Daily life is a struggle. This week her mental heath has declined to the point of giving up. With a fail attempt of…
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It’s only ADHD..at least it’s nothing worse…
My adult daughter has been diagnosed with Inattentive ADHD and anxiety. On telling friends or anyone who knows us it’s like we are saying she’s got a bad cold or something…almost nothing to worry about… Its been very much the opposite with her being unable to work, short term memory, not been able to focus, can’t answer…
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CAN I CLAIM CARERS ALLWOANCE FOR MY SON
HI Hope you all are doing well. I wanted to know can i claim carers allowance for my son.I am on furlough and so is my Husband. Still i get well over £128 per week. Do i Qualify for Allowance and i have another toddler too.. Will really appreciate your thoughts on this. Thanks regards Mus
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Talking to parents about safer moving and handling
Join our specialist on July 6th to learn how to reduce risks when moving and handling children and young people with disabilities. Learn how the AAPEE acronym, planning, stretching and self-care can all help you protect yourself when lifting, carrying, or pushing manual chairs. This free session is delivered by Pace manual…
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Anyone else feel guilty for not bring proactive with their child?
My name is (Removed by moderator on request of user) and I have Bipolar2 with constant depression and anxiety. I also have fibromyalgia diagnosed in 2019. I have a daughter who is 20 and a son who is 4 (a lovely wee surprise baby). Anyway.. I feel soo guilty as I'm not able to give him the active life he deserves. I'm…
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Hi, my name is sophieken! Does anybody have any experience of neurodevelopmental physio
Hello ??
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Who do I speak to about care for a disabled adult after his carer dies ?
I have a very disabled adult brother , he is in his early twenties and requires round the clock care , my mothers health is failing, its only a matter of time before she can either no longer look after him or she will not be here to do the job herself anyway. Who do we turn to ? I will not be able to look after him, I wont…
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Study Higher Accessibility in Higher Education Webinar
My name is Charlotte. I am an Outreach Hub Assistant to the Uni-Connect programme Study Higher. As an organisation, we aim to deliver impartial advice to young people in Oxfordshire, Buckinghamshire, Berkshire and Swindon about their future options in higher education. We also work with under-represented groups in higher…
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My son struggles with communication and spends a lot of time alone. What should I do?
Hi my 8 year old son does not like to go outside and really struggles with communicating with others and likes to be alone a lot. I don’t no what to do should I leave him to sit in a bedroom on his own for hours every day or should I try and force myself and others on him and when he says can you just go should I leave him…
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Hi, my name is broomy!
My husband and I have decided that our autistics , sld, adhd son needs more help than we can give him also he is older now and needs to leave school . The local special needs college has stated that they cannot meet his needs and so we are thinking residential. We are thinking 52 weeks as the la state that they cannot…
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Advice on Carer taking unpaid leave
I need a bit of advice and wondered if anyone on this forum has been in the same situation as me. I have a private carer who gets paid through my direct payments with a payroll company managing her payslips. As she is classified as a private carer and I am her employer and I cannot seek advice through a care agency.My…
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Hi my name fiona
Hi im fiona im new to this site. Im a carer to my 10 year old son who has autism anxiety and ocd. Im hoping to get some advice as my son going through a bad time with his ocd. His is anxiety was high but thats fine so far but his ocd is very high. He keeps asking for wipes so he can wipe is arms and hands. He asks if there…
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Work aren’t very supportive
Hi everyone, I have a 5year old daughter who has asd, life is very challenging and i feel extremely depressed. I’m currently on anti-depressants and ant-anxiety tablets and I’m still really struggling. I have scoliosis myself... I’m really struggling to find a balance between work, being a mum, caring for my daughter, my…
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Hi, my name is Anna_Louise! My daughter has ASD and dyspraxia and needs some help with life skills
Hi I'm the mother to a 17 year old daughter with ASD and dyspraxia. I also have dyspraxia and am sure I have ASD but have never got tested. I'm trying to help her with life skills and am trying to find a course to help because I'm finding it really hard to help her.
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Stressed Disabled Parent
Hi everyone I’m new here, I’m basically on standby for a kidney removal it’s been nearly 3 years of going back and fourth to two different hospitals in taxi as I’ve been advised not to go on public transport. I have a server Autisic daughter who’s lashing out on me, I’m constantly living on painkillers and can’t work. I’ve…
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Hi, my 8 year old son has HSP
My 8 year old son has HSP. His walking is very limited and mainly uses wheelchair. He takes max dose oral baclofen. He’s been offered an ITB pump to help reduce spasticity and make everything a bit easier. Currently weighing up the benefits, versus risks and implications of living with lifelong implant. Would be interested…
