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Coronavirus
Hiya all. I have a disabled son who is in the vulnerable category. My wife is his full time career as he needs full time support. I work full time as a builder for a small building company with about 8 lads. At the moment I don’t know what to do regards work because unless we go on full lockdown I don’t get 80% of my wage.…
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Remote babysitting ideas
Hello! As schools have started closing in England there's a whole lot of pressure on parents to work from home, school from home and just BE at home with their kids all day. That's lots of pressure for kids too! I don't have any kids myself, but want to be able to support the parents I know, and the delightful kiddos that…
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hello its kate here I carer for my husband with psychosis
Hi I would like to chat and get support from other carers who support their ill spouse as I feel very alone and unsupported by nhs
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Son with ADHD
Hi all, I'm new to the community group. Hoping someone has some advice for us. We have a 5yo boy who has been referred for Adhd. From the age of two his behaviour was always a lot more extreme than those around him. More recently in school he's been observed by specialists who believe he does have adhd. We are now awaiting…
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Closing Day Care Centres for adults with disabilities as a precaution re Corona virus
Hi All Does anyone know if the day care centres for adults with disabilities are closing temporarily due to the anti virus measures ? Thanks ;)
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Has anyone experienced this? 48 year old Autistic daughter
I have a 48 year old Autistic daughter non-verbal. She has decided to not wear underwear. She is incontinent of urine. She lives at home with me and has 24 hour care. Her staff and I are at the end of our minds. We have tried everything to get her to wear her underwear. Her motivators are food or going out in the…
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Speak to specialists about PDA
I have only just discovered the description of PDA and my daughter of 24 has very alarming similaraties to the majority of the description. Can we talk to any specialists for further help?
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I'm struggling to come to terms with the latest diagnosis.
Hello, my son has been diagnosed with brain damage along with 15 other diagnoses. I'm struggling to come to terms with the latest diagnosis. He is 6 next week and I have a daughter too. Thought I'd say hello to other people who have been in the same boat as me x
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Looking to meet other parents and make friends , kind of lonely right now and a bit of a hermit !
Hello ! My name is Charlotte . I live in Rushden and have three children , a teen girl and two toddlers , one who is three and a half and one two and a half. My three year old has congenital muscular dystrophy and my two year old has recently had Crainiofacial surgery as his skull had fused together too soon and he may…
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Advice on changing & hair dressers
Hi there, I have a couple of questions which I am hoping someone might be able to help with. Firstly, my daughter is 3 and has cerebral palsy level 5, she is now too big to be placed on baby changing stations but is still in nappies and unable to independently sit/stand do anything to help, does anyone know how/have any…
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Disabled mum
Hi I've come to the point now I'm going to have to use a wheelchair but have a bit of a dilemma! I'm a mum to an 18 month old who doesnt yet walk. How do you other disabled wheelchair user mums get around with your little ones without having to have another adult with you ?? I would really appreciate your help, thank you…
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Carer for my 17 year old son
Hi everyone! I've just joined. I care for my 17 year old son who has a Neurological condition and needs someone with him 24/7. How are you today!? Xxx
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Question for parents of children with disabilities
Hello all! I have a query that I often discuss with my partner, to which I am very interested in hearing other people's views. It's one of those things that probably has no right or wrong answer but is to me a very important and interesting topic. I'm very keen on the power of representation to have a positive effect on…
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New free inclusive coloring pages
Hello everyone, My son, Chris, lived with Duchenne muscular dystrophy. Together we created stickers and picture books featuring children of all abilities playing together. We decided to call our hobby Popping Wheelies. I am writing today to share my new website, poppingwheelies.weebly.com. On it, you will find over 70 of…
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Carer goes free ticket
I recently saw a post regarding venues which offer disabled access with a ‘carer goes free’ ticket and wanted to add that the O2 Arena, Emirates Stadium and London Theatre Group all offer this.
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To register as a carer or not?
I have now realised that I have my very own label - I am a carer for my disabled adult daughter and autistic teenager. I thought I was just a mum, but realised that I am a mum and carer. I now need to decide wether to register as a carer. How do I register and where? Should I register? Advise please.
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Help with Adult Social Care
I requested direct payments in January 2019 directly to adult social care by email but 14 months later my request has been totally ignored
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Autism Diagnosis - Is this normal?
Hello everyone,we made the following experiences on the way to a diagnosis for our daughter. I feel very dissatisfied with how things went, and find myself not trusting the diagnosis. I am not so much rejecting it, but I am distrusting their methods, and am still not convinced either way. My questions are a) whether this…
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Parking at school run
my biggest gripe over the past 27 years of being disabled is disabled parking. My daughters schools do no supply disabled spaces for parents to park in. It is the most stressful thing the school run
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Disabled Partner
Hello. My husband has MS and has recently started using a wheelchair more regularly. We live in West Sussex and have an eight year old daughter. We’d like to meet other families like us. I don’t feel my daughter and I know anyone who can relate to the situation we’re in. Do Scope run local events for families or does…