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Carer for my 17 year old son
Hi everyone! I've just joined. I care for my 17 year old son who has a Neurological condition and needs someone with him 24/7. How are you today!? Xxx
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Question for parents of children with disabilities
Hello all! I have a query that I often discuss with my partner, to which I am very interested in hearing other people's views. It's one of those things that probably has no right or wrong answer but is to me a very important and interesting topic. I'm very keen on the power of representation to have a positive effect on…
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New free inclusive coloring pages
Hello everyone, My son, Chris, lived with Duchenne muscular dystrophy. Together we created stickers and picture books featuring children of all abilities playing together. We decided to call our hobby Popping Wheelies. I am writing today to share my new website, poppingwheelies.weebly.com. On it, you will find over 70 of…
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Carer goes free ticket
I recently saw a post regarding venues which offer disabled access with a ‘carer goes free’ ticket and wanted to add that the O2 Arena, Emirates Stadium and London Theatre Group all offer this.
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To register as a carer or not?
I have now realised that I have my very own label - I am a carer for my disabled adult daughter and autistic teenager. I thought I was just a mum, but realised that I am a mum and carer. I now need to decide wether to register as a carer. How do I register and where? Should I register? Advise please.
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Help with Adult Social Care
I requested direct payments in January 2019 directly to adult social care by email but 14 months later my request has been totally ignored
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Autism Diagnosis - Is this normal?
Hello everyone,we made the following experiences on the way to a diagnosis for our daughter. I feel very dissatisfied with how things went, and find myself not trusting the diagnosis. I am not so much rejecting it, but I am distrusting their methods, and am still not convinced either way. My questions are a) whether this…
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Parking at school run
my biggest gripe over the past 27 years of being disabled is disabled parking. My daughters schools do no supply disabled spaces for parents to park in. It is the most stressful thing the school run
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Disabled Partner
Hello. My husband has MS and has recently started using a wheelchair more regularly. We live in West Sussex and have an eight year old daughter. We’d like to meet other families like us. I don’t feel my daughter and I know anyone who can relate to the situation we’re in. Do Scope run local events for families or does…
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Single disable mums
Hi, I have a question to single disable mums who brining child/children alone. Where do you get support from if you not filling well ( for example : short illness) ? Where to get support from if you do not have family in this country? Any advice highly appreciated.
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Help unsuitable powerchair
Hello everyone. I am a carer for a disabled gentleman who uses a powered wheelchair. His wheelchair broke and had to go in for repair. When in for repair the chair was damaged and then couldn't be repaired. He was loaned a chair while a replacement was sourced. The loan chair was too small and he had to hold the chair…
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Advice needed
I’m sure that I have not mentioned this before. I seem to have a baby who frequently turns blue around her lips and scares me. She does this often at night as well. I have taken some photos of her lips and upper extremities for evidence. The pictures are on my phone. She is four weeks old today. I have also heard some…
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benefits and working advise!!
Hi my daughter who is 26 has a 7 yr old disabled daughter.shes a single parent and is claiming income support,carers allowance and full housing benefit and child tax credits.shes wanting to take a job of 10 hours but is very confused if it will be worth her while as she says her income support will stop can you please…
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Starting the diagnostic pathway for possible ADHD and PDA (my son)
I'm a mum to a 10 year old boy who has Autism. We have just moved back to Cornwall to be nearer to family. Starting the diagnostic pathway again for possible ADHD and PDA which feels very overwhelming! x
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How do you persuade an Asperger's teenager to leave his room ?
My husband and I have been very understanding of our son's difficulties due to Autism. However I feel it is harming my son to allow him to remain in his room. I try to encourage him out by tempting him with his favourite foods, or bringing him books and magazines related to his favourite topics and interests. He is a…
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15Q 11.2 Microdeletion.
Good Evening everyone, I have an 11 year old recently diagnosed with 15Q 11.2 microdeletion. The reason for this post is that I am struggling to get any support from his school and he is on a long waiting list to see his pediatrician. (He has been seen once in 18 months, and as a result we had genetic testing, leading to…
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Getting out and about with a toddler with mild hemiplegia
Hi everyone, I'm wondering if anyone has advice on getting around with a baby and a toddler (who has a mild hemiplegia) we use a buggy board but it's just getting too heavy for me and my little boy can't walk long distences if we're out as a family I end up carry him and I have noticed we go out less and less on my own…
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Adopting when you have a disability
Hi everyone! Has anybody here gone through the adoption process? Or is anybody doing it as we speak? My husband and I are right at the beginning but it's already beating me down. I'm hoping to find others for advice and support. Thanks!
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Carers premium
Hi,I applied for carers in Nov 26th 2019 for my Autistic grandson who is 8 I have looked after him from 9 months while parents work he was diagnosed in Sept Oct last year and gets PIP middle rate,,I was told as get pension credit although entitled to carers allowance from Dec 2nd could not receive as receive pension credit…
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Finding a carer for my autistic son
Hiea
