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BLUE BADGE, daughter
hi everyone, I could do with some advice. My daughter 5 suffers from mitochondrial disease which has presented itself in many ways and leaves her unable to walk at all. She uses a walking frame. I have recently seperated from my wife and have regular access. My wife has since we seperated attempted to make my life very…
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We are looking to talk to parents about Medical Negligence
Are you the parent of a disabled child and currently going through the medical negligence process? Are you able to help? We are looking for parents to test Scope's medical negligence advice. Please contact me on richard.luke@scope.org.uk
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Sleep issues
Hi, recently my daughter suffered a horrendous stroke on 29th May - still in hospital now but recovering as best she can after 4 life saving surgeries in 5 days. She’s had 12 surgeries so far. She is really struggling to sleep for longer than an hour. I am really struggling myself with this, I don’t get a break with the…
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Mum to a child with additional needs
Hi :-) I'm Nicola and I have joined the group today to seek out support / advice / help others if I can and generally know that I am not alone in the world. A little about my story - I have 2 children (5 year old daughter & 3 year old son). My daughter was born suffering HIE grade 2, meconiam aspiration syndrome and nearly…
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Struggling with the care my adult son is been given in his home (severe autism and LD)
Hi all, I’m Karen, 41 with 5 children. My eldest Jack is 22 and was diagnosed with severe autism and learning difficulties when he was 2 and a half. He has always required a rigid routine and when he turned 10 the school he attended (special needs but not specifically autism) could no longer meet his needs as the head of…
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reasonable adjustments eczema/allergies
Hello, my son is 3 and has just started pre-school. I'm wondering what reasonable adjustments I should expect/what you've experienced. There is a 1-8 adult-chid ratio and they aren't managing to watch him, he scratching, having allergic reactions and they aren't noticing because there are 7 other children. I feel there…
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Living Independently with Care
Hi - we’re in limbo as Panel (Social Services) are looking at my daughter’s situation. She’s hoping to live where we are now (Housing Association bungalow). We have assigned the tenancy to her and hope to move out. The agency care Social Services wanted to use can’t meet our daughter’s needs at the ludicrously low price…
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My princess - anxiety at secondary school - blind and autistic
I am new on this forum. My daughter is blind and autistic. She has just started secondary school and has stared going on transport. She is struggling with it at the moment, she is anxious and gets upset. Has anyone else been through a similar situation?
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appointee
Hi i am appointee for my daughter who is over 18..Can anyone give me advice on applying for lasting power of attorney or financial deputyship or do i just stay as appointee
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deputyship
Hi can anyone give me advice on who fills in cop 3 capacity form to apply for deputyship Will your community care officer do it for you
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How can we get our complaints taken seriously?
Hi, I am mum to a 30yr old young man with Autism & challenging behaviour. My son lives in supported living with 24/7 support. Sadly my son has been left a broken young man following physical, mental & financial abuse by his previous care provider. We raised 6 safeguardings in 4 months, involved CQC, commissioners, the…
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I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD
Hi i have Fibromyalgia, Osteoarthritis, in my knees, and back. I am a single mum to my daughter she lives with her boyfriend and they just had a beautiful baby boy, I'm a first time nanny. I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD, i am his full time carer 24/7, no…
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Family with autism and dyslexia
Does anyone struggle to cope with family member who has autism My husband has autism and my 14 year old daughter has dyspraxia some times I feel I'm all on my own my mum say I'm very strong sometime I don't feel it as iam a carer for them both and have bipolar my self Anyone understand how I feel it would nice to know iam…
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16 yr old with moderate depression - I want to figure some ways forward
Hello, My son has a disability and is nearly 16. He's been assessed by CAMHs today, and confirmed moderate depression. It's his GCSE year and he's so far not started back at school. I'm joining SCOPE discussion to try and figure some ways forward.
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How do I support my daughter after college was too much?
I'm so worried about my daughter she had a diagnosis of autism after being kicked out of school and getting sent to a pupils refural unit she left there and went to an art college where she had a support worker she has a talent for making things with clay she has a lot of sensory needs and had her hoood up all day long in…
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New Member-OT student/CP caregiver
Hello everyone! I am a caregiver to a girl with CP and I am also an occupational therapy student. I joined this forum to be a part of the community, share experiences, and ask questions for an assignment in my class but also for myself to be better and learn! I hope we can have great conversations and appreciate any advice…
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Has anyone dealt with not being diagnosed for this long? My daughter is nearly 10
Hi all I am new to all this even though i have been dealing with all this for 6 years. My daughter is nearly 10 and has a physical disability but it is still undiagnosed. It has been very hard and very frustrating as i am struggling to get any help with her financially as she doesnt have a diagnosis. We have been refused…
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I need some advice with my 9yr old son with ASD
I was wondering if anyone can advise me, my son was diagnosed with ASD last year, he was given sleeping tablets to help him shut off at night, he is 9 now and is becoming very clingy to our home, he hates to go out, would stay at home 24/7 if he could and is constantly complaining if we ever go anywhere, it’s causing chaos…
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Neighbour from hell
[Edited by moderator] a senior manager at Lloyds Bank HQ Bristol a record of his nefarious
activities, each reported to Lloyds Bank and the Police where applicable. View ‘[Edited by moderator]’ and ‘Banker Behaving Badly’ on
YouTube and/or Google and
witness his despicable conduct, (featured in a TV documentary to be…
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When your children are young carers
This week we are talking about Young Carers, if you are interested in finding out more about the support available in your area, take a look at Carers Trust. I blog about my illness at So Bad Ass talking about life with chronic illness, IBD, an ostomy and invisible impairments. I was diagnosed with Ulcerative Colitis in…
