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Son screaming....lots!
Hello So my son is 6years old and has severe learning difficulties and autism, he is mostly non verbal and also makes noises his very vocal in general. But for the last few weeks he has been screaming over and over in short high pitched bursts whatever he is doing he screams, sometimes he follows this by hitting his head…
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PIP form
Hi ppl I am a carer to my son who has austim. Also other son with adhd..I have arthritis...and work .. I'm struggling to cope and have asked for a pip form.... I dont really no if I am entitled to it but I can't see me staying in work much longer.. Any advice ? X
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activities for wife
My wife suffers fibromyalgia, rheumatoid arthritis, and FND, she is pretty much down in the dumps at the moment and she feels left out. We as a family look after of course but we all have other activities that we are involved with, my wife is happy with that because she doesn’t want to be a burden and stop us doing what we…
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Anyone with experience of amputation
When pregnant at 28 weeks we found out and amniotic band had prevent development of ours sons right foot and ankle. instead he was born with a large boneless mass (with one tiny boneless toe inside). It’s been struggle since then and even more so since he was born bit to cut a very (long) story short we have an amputation…
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I'm in need of support and ideas for myself and my children
I just signed up because I'm in need of support and ideas for myself and my children. I am a single mom of 3 teens, my first born having Asperger's, OCD, and Agoraphobia, it's been a lonely road for us all, and I'm here to change that! Nice to say hi to everyone, and I look forward to reading, learning, and chatting!
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How to help.
My husband has Dementia and it can be very difficult living with him . I have been told not to dissagree with him But some times that makes it even more difficult as he wants his own way all the time . So how would I need to deal with this ?Anyhelp would be appreciated. Thank you
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How do you feel motivated?
Hi, after ivf, I am now a mother to a severely disabled child, who is epileptic, registered severely visually impaired with global delays. She is nearly two, does not walk, talk, seat, scoot or crwal. I work full time. Some days are good and some days very bad. How do you feel motivated?
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Childcare provider issues
Yesterday afternoon a childcare provider bullied my son. I had to go to work so I hired someone else to provide temporary childcare each week for a set number of hours. The childcare provider basically didn’t help my son when he stumbled when they were in town at a shop waiting to pay. She said “Get back in line”. I’m so…
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Disability Related Expenditure
Hello, I am new and am looking for some help and Support. My daugher is 27 and is diagnosed with Impulsive EUPD and a learning disability. Social Services are billing me for her care because nobody has completed a disability related expenditure form. I have now been told that I have to complete this, I never have before…
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Is there anyone on this site who’s child has scoliosis ?
Hi I’m a mam to a little boy who’s got a few disabilities, is there anyone on this site who’s child has scoliosis
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Spina-bifida and problem getting wind up- anyone experienced a similar thing?
Hello my name is Chris and I have a 4 year old daughter with Spina-bifida and hydrocephalus. She doesn't have control over her bladder/bowel movements and is a wheelchair user. She has problems with getting her wind up. Sometimes it causes her to throw up - a lot! My question is this : Is there anybody else in this forum…
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What to expect for the future
My son was diagnosed with autism at 3years old and also has a severe learning disibility. He attends a school for children with profound learning and complex needs. He is now 6 and apart from seeing his peadiatrician to review sleep medication every 6months he has no other input that we are involved with. He has salt OT…
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my son has finally been diagnosed
Hi my son is age 5 and has finally been given the diagnosis of adhd and autism (label's, i know ), i myself am struggling with long term health conditions and each hour i differ from either major pain or a severe hypo , have the fantastic support from my parent's, my mum is also my carer , but do feel so very alone and…
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My 16 month old boy can't sit on his own
My 16 month old boy can't sit on his own, we always put him on a walker to sit
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Carer wanting to set up business
Hello everyone, this is my first time posting on these boards, apologies if I've posted in the wrong part. I'm a carer to my husband we are claiming PIP ESA and Carers allowance, I'm desperately wanting to set up my own business. I'm unable to get a clear answer on if this is something I can do without affecting my husband…
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Atmosphere between my son and husband
Hi everyone I'm feeling really positive having made this step forward joining scope. Thankyou for this opportunity! Xx
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Partner just diagnosed with MS
Hi my partner has just been diagnosed with MS ever since hes gone to the pub everyday I'm accused of being a control freak if I txt or phone and I get accused of all sorts. Instead of feeling sympathetic and understanding I feel resentful and cold towards him. I'm ill myself please can you give me some advice all I want to…
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pressure with being a carer
I'm new to the forum and quite shy, though am currently struggling with lots of pressure on me as a carer for both my mum who has Alzheimer's and my two children, eldest of which has mental health problems and I have several disabilities of my own to deal with. Sorry for the moaning as soon as I arrive. Hope that everyone…
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My 15 month old was diagnosed with CP before Christmas!
Hi, my 15 month old daughter (one of twins) was diagnosed with right side hemiplegia evolving cerebral palsy back in November 2018. I'm not sure I'm still over the 'shock' and that I'm coming to terms with her diagnosis. I had a tough pregnancy with said daughter stopping growing (which is where they believe she may have…
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ADHD
I'm 40 years old with a diagnosis of combined type ADHD and under review, hopefully to be removed emotional unstable personality disorder and am fairly certain I'm also an undiagnosed Aspie. I have 3 children 14 yr old son, currently under his second opinion for ADHD as his former school apparently filled out the Connors…
