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Caregivers Survey
Do you look after or care for a child with cerebral palsy? Does your child receive physiotherapy and/or occupational therapy? Is your child due to move from primary to secondary school or has moved in the last two years? If yes, then we want to hear your views on what information you have received or what information you…
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Intrathecal baclofen for a 5 year old child?
Wondering if anyone has experience of intrathecal baclofen in 5 year old children.
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What happens at a developmental assessment?
Hi just looking for some advice on what to expect at my sons appointment. He is 19months hd words and lost them at about 14 months he now just babbles and squels (its ear piercing) he has been behind on most of his milestones. Been seen by salt, nursery nurse, and pediatrician (pediatrician said she was referring on to a…
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CFS and disability
Hi just wondered if anyone could give me some advice my 13 year old son has just been diagnosed with Chronic Fatigue Syndrome and im trying to find out if this is classed as a disability and what help i could expect to get for him, any advice would be appreciated thanks in advance
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Fibromyalgia and adhd
Hi all, I care for my partner who has fibromyalgia/CFS. He is housebound due to bowel issues which we feel after much physical exploration could be linked. He is currently going through tests to determine if he is Autistic (Asperger's) or has add/ADHD. Does anyone else have any experience of these conditions being linked?…
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Discretionary trust fund
Hello everyone, I haven't had a chance to come back until now. Matthew tried to commit suicide [content removed by moderator]. I had nobody to watch Matthew whilst I had G.P appointments regarding Matthew. I have been chatting to my local MP Christina Rees M.P and they helped twice fighting 2 assessment appointments but…
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Reading Workshop
Are you a head teacher/teacher/TA/parent of a child with SEN, and want to improve how you teach them to read? Come to our workshop on 8th November at the University of Warwick with @CorinnaGrindle. Follow the link to find out more: warwick.ac.uk/fac/soc/cedar/…
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Nursey issues
So i have several health issues that need carefully managed. My son has just started nursery and the induction week is bizarre. Parents have to stay and attend all week, i already have a migraine from the fluorescent lights in there today. Anyway i have previously tried to address my health issues with the head teacher and…
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Helping daughter accept her impairment
Hi all I have a teenager daughter who was rather I'll three years ago with swelling in her brain. It has left her with a visual problem and are cant read anything below a font size 24 it can't be fixed with glasses as it's a problem in the brain. She is struggling with feeling different as she has to take picts of things…
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I'd like to connect with people who understand
Good morning all! I am mum to 3 beautiful children, my 13 yr old son has recently been diagnosed (finally!) with ASD (Aspergers) and was also diagnosed Type 1 diabetic a year ago, and has faced many varied battles as a result of either one or other or a combination of both of these! Also my 3 yr old although not diagnosed…
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Help with 15 year old school/social problems
Now school is due to.start my daughter is extremely distressed she has no friends and that makes the dislike for school stronger. Any tips and making friends or getting her to school
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CAre for Dementa
Mt Mother has to pay £600 per to ne in her CAre Home. She has Alzheimer's She tells me the staff never take her out. She is 300 miles away. The Staff never reply to letters or phones What can I di. I need to know how she ias.
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Surgery for socliosis
13-year old girl with 50degree curve. Consultant has suggested surgery. any thoughts / suggestions?
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Carers support?
I care for my wife full time. She became ill in 2012 with various conditions that now keep her basically bed-bound. She sleeps most of the time so I have nobody to interact with. After 5 yrs of this I find that I am isolated and very lonely. Even though I am 65 I am healthy and still have a zest for life. I am sick of…
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Teen with Down's Syndrome: increasing meltdowns, and violent towards me as her parent
At my wit's end with my daughter's behaviour when out and about. Small things trigger it. She is in puberty and people say it's hormonal, but isn't that just an excuse? She's 17 and it's getting worse. Refuses to listen to me when I say no to something, then has a complete meltdown in the shop or street, lashing out at me.…
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Palliative care for mum and employment issues
Hi my name is Linda my Slovakian friend calls me Linduska an endearment in her country. I am a career for my mum who has Parkinson's and dementia. We were told 6 weeks ago she is at end of life but is still with me and my 3 sister's who look after at home giving palliative care. My mum lives with me and I mainly take care…
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Hi, my name is Fight4EverMum!
Hello Everyone, I chose Fight4EverMum as my username as everything for my son is ALWAYS having to be fought for. My son is 5 & has a form of CP, as well as being under assessment for ASD & ADHD. It's so exhausting
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Autumn series of free workshops for parents of disabled or special needs children
I wanted to let you know about Contact’s autumn programme of FREE workshops in Birmingham. We have a programme of workshops called Brighter Futures aimed at parents with children from birth through to 8 which is being run at the Limbrick Wood Centre in Coventry. This is a welcoming and informative series of workshops run…
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Groups and activities in London
My son is 12 and has spina bifida and we are relocating to NW London from NYC. Can you suggest some groups and activities he could get involved with? Thanks!
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Motorbility
Hi. Wonder if you can help. My mom has various medical issues and is in the higher rate of attendance allowance. I have given up work to look after her full time and have moved in with her. I run my own car and as you probably know as a carer you do not get a lot of financial help. My mom assists me with the running of the…
