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Hi
Hi I'm a single mum to 2 disabled son's.. one lives with his dad .. one with me .. I'm his full time carer .. I have mental health and OCD don't go out much only to take him to college and back.. have panic and anxiety.. eating to go for more tests at heart clinic at moment.. what really gets my goat .. is my ex husband..…
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Networking - any other single parents to disabled (CP) child out there ?
Hi there ! I am a single Mum to Vigo who is five, with dystonia of CP and Laszlo who is 2 and neurotypical. I work full time as well and live in London. I would dearly love to meet other single parents in London/ South East region who are coping on their own and who "get it" re. CP and everything that involves. Its not…
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Autism, asthma and adhd primary
my youngest had a diagnosis of autism, severe brittle asthma and we're waiting for the diagnosis of ADHD. He's starting school in September albeit part-time as his school isn't willing to take him on a full time basis due to the severity of his asthma. We applied for an ehc plan but they said there wasn't with educational…
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First appointment with neurologist; any advice would be great
Hi, This is my first time posting. My daughter Annabelle was one of twins born prematurely (24 weeks) and although her MRI only showed enlarged ventricles she has just been diagnosed with 4 limb cerebral palsy, mixed spastic and dystonic. She is 1 yr old (8 and a half months corrected) and has just learned to roll but…
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learning disability play dates- feedback appreciated
Hi all I currently work as a support officer for individuals with learning disabilities . I just wanted feedback on an idea of parent and child coffee and play morning (0-12 years). This will be only for children with learning disabilities for them to socialise with their peers for a couple hours this will include bouncy…
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2 year old biting quad disabled child
Dear All Love to get your advice. I have a 5 year old (quad dystonia of CP) and a very "lively" 2 year old. They share a room (no other option). The 2 year old has started to regularly bite the 5 year old on arms/chest etc. Clearly he cannot fight back and it really presses my buttons, and he often has teeth marks on him.…
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Care givers make me feel second-class and humiliated
Some of my care-givers want to take over everything for me. I have noticed that when I am with ordinary people I feel like a normal person. When with some care-givers, though, I feel second-class and often humiliated by their attitudes that I am capable of very little. Anyone had this happen? I think that with the…
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Legal organisation for a family who have special needs?
I have Dyslexia and disprixoa and my husband has Adhd have two tween children age 14 and 17 (17 has Adhd a high functioning Austisum ) feel discriminated from the Authority s we sort help when our 14 year had a spell of running away from home last Summer And we sort help from the Authority blamed on how disabilities My 14…
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Frustrated by not being able to do basic things?
Hi im a 38 year old mom and wife with ostioarthritis. My hubby and kids 15 year old daughter 10 year old son are my world and are so amazing how they help me but i find myself getting so frustrated and annoyed that i cant do basic things and have to wait
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Any advice would be appreciated- global developmental delay
My grandson is 5 was diagnosed with autism global developmental delay he was discharged from the paediatrition on the day he was diagnosed. he attends a special needs school he is non verbal he attempts to escape constantly and runs away constantly to the extreme my daughter does not take him out. he has had an…
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Homeschooling my add 5 year old
I am having a problem with my sons asd unit not realising what he is capable of. I took him out of school for a month but the L.A. seems to think he would be better off at school. So I sent him back part time. At home he uses his pecs at a higher level and follows instructions.he understands everything and is very happy. I…
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Im a mum of 4 amazing children - feeling totally alone
Im a newbie, so hello to everyone. I'm a mum of 4 amazing children, Chloe, Harry, Morgan and Jack. Harry and Jack both have disabilities and I've spent their whole lives fighting for help and support for them to thrive in the difficult world we live in. Harry has an ASD with learning difficulties, sensory processing…
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Hi, my name is sherrie55!, I am disabled and a carer
I have numerous problems. I won't go into them now. I need help and support from somewhere my partner has just had tumours removed from his lung and his colon/ he has a stoma in place. he had the all clear from the cancer, but he has COPD and its getting worse, he wont give up smoking and is still drinking. I feel angry at…
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Being a carer for my children but the job centre still want me to work, help?
I have 2 children with a disability and me & my wife are carers for them. The jobcentre are forcing us both to work when the kids are at school but that is the only time me & my wife get time together and also to go out and do our bits & bobs. I just don't know what to do. They don't want to hear what feelings or what…
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Coping with disabled child and new baby
I have just found this forum and looking for some advice. I have a 4-year old with a rare progressive disease called FOP and expecting a baby in Dec. My daughter can currently walk short distances but most the time in a special needs chair as her mobility is seriously impacted. Any tips on getting out and about with a baby…
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Thank you and goodbye to Vikki
Our parenting advisor @ParentingAdvisorVikki is leaving us and we would like to take time to say thank you to them for their time and support as Parenting advisor, it is greatly appreciated! We wish you all the best for the future! Our new advisor will be @KellyParentAdvisor so please make her feel welcome!
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Caregivers Survey
Do you look after or care for a child with cerebral palsy? Does your child receive physiotherapy and/or occupational therapy? Is your child due to move from primary to secondary school or has moved in the last two years? If yes, then we want to hear your views on what information you have received or what information you…
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Intrathecal baclofen for a 5 year old child?
Wondering if anyone has experience of intrathecal baclofen in 5 year old children.
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What happens at a developmental assessment?
Hi just looking for some advice on what to expect at my sons appointment. He is 19months hd words and lost them at about 14 months he now just babbles and squels (its ear piercing) he has been behind on most of his milestones. Been seen by salt, nursery nurse, and pediatrician (pediatrician said she was referring on to a…
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CFS and disability
Hi just wondered if anyone could give me some advice my 13 year old son has just been diagnosed with Chronic Fatigue Syndrome and im trying to find out if this is classed as a disability and what help i could expect to get for him, any advice would be appreciated thanks in advance
