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Trying to get help and some rest
Hi there everyone..im elaine u have 9 yr old son Jayden or Jayde as we call him and sometimes its hard. Not just with his Autism,ADHD and learning difficulties but with trying to get help and some rest tbh
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Fibromylagia, degenerative disc disease - carer for daughter and grandson
Hi i am disabled with degenerative disc disease and 7 herniated discs with nerve impingement L5,arthritis in my ankles and fybromyalgia but also a carer of my daughter and main carer for my 8 month old grandson as my daughter is not able to care for him on her own. My daughter has moderate learning disabilities and is…
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Feeding problems and concerns around low weight
Hi I have just joined this community forum and would like
to introduce myself and explain a little about our daughter and her condition. Both mum and I are becoming concerned about her overall health and need some support and
guidance from those with CP and those who are parents or carers. Erin is 21
years of age and has…
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Hiring a WAV on holiday abroad ?
Thinking ahead. I am a Mum who likes to travel. Soon my son Vigo will be in a powered wheelchair. What happens when we travel abroad ? Do the Hertz/Enterprise hire companies of the world have WAVs/Vans to hire ? Or do I have to restrict us to only travelling in trains ? Any advice ? Many thanks, Emma
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Disabled and depressed and want to talk to others who wont judge
Hi everyone, I'm Steve from Shropshire
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Bringing up a child with microcephaly
HI,I have a 23 year old son with microcephaly cp and has recently been diagnosed with autism too,if anyone needs any advice on getting this far bringing up a baby,child,teen ,adult with microcephaly I would like to hear from you.
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My 2nd PIP assessment
hello all I’m new to scope aged 61 and retired from work nearly 2 years ago due to ill health and would be grateful for some advice. i have my 2nd PIP assessment next week as I scored 2 points in my last one as was not awarded PIP. Age UK advised me to apply again after 3 months. Its a catch 22 situation for me I have…
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Disabled parent and carer to be and confused
Hello I have fibromyalgia and Cfs and my wife cares for me and just found out we are pregnant , my mind is now gone in to overdrive particularly because the confusion over universal credit I'm in support group currently does any one know if I wil be forced onto universal credit because if this happens they will make me…
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pip advice
Hello need some information about pip, My daughter has just turned 16 and has Keratoconus. its a progressive eye condition which make the cornea bulge, it affects her sight and mobility, shes been given a cane to get around as she has very little sight in her left eye due to hydrops. she has been registered as partially…
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12yr old daughter anxiety and depression
Hi my 12yr daughter is going to get assessment as cyps are saying she could have autism I am struggling I know how hard it was for my son at that age to get him the help he needed and still fighting now at 17 sorry for being so negative I do love my kids just needed to post thank you for listening.
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Important News about Universal Credit
Hi I've just been checking the government website, which shows you how much you get now, and how much you will get when universal credit starts. The difference for me will be £410.66 per month. I will get a transitional payment each month for this. When the universal credit goes up the following year say for example it…
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Duplicate Chromosome 15 Syndrome
Hi my names is Conor, My son has a rare chromosome disorder called, Duplicate Chromosome 15 Syndrome. He got diagnosed with this when he was 2 years old, he has now been diagnosed with ADHD and Dyspraxia. He is currently still undergoing tests for Autism also. Has anyone else or their children got this duplicate…
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In need of advice - dysphasia/CP
I really hope no one minds me asking! I have 18 month old twins but am wondering about my girls twin. She has had no developmental delays and has reached all mile stones, she has however been diagnosed with dysphasia which is a bit of a mystery as to why. She walked quite quickly at 13 months but has always struggled with…
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Check out our top sleep tips for parents and carers of disabled children
Our latest tips post is now online, and features eleven 'Top sleep tips for parents and carers of disabled children.' Thanks to Scope sleep practitioners Maxine and Angie, and our community members for contributing their tips.
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Mmm a moment ..
Over past few weeks of belive if been pushed to moments never before experienced not sure if this was anxiety or. Boarding on a bee worried hearts not doing as it should had many emotions in one day alone today from stress to disbelieve to rage uncontrollably angery .. may be all to much sitting in job centre heart began…
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My sons school
I just read that the Headteacher ofomy sons school wants him out, it reads as follows terms of H’s progress, the Head Teacher advised that H does not recall things even after doing them. The Headteacher advised that we need to discuss whether present school is the best provision for H at his EHC Review with the SEND…
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Verbal abuse from my son
I have a 37 year old son ,who has learning disabilities I'm not well myself and I keep getting verbal abuse from my son should I ignore him
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Caring for my family
Hi all
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Multiple illnesses in multiple family members
I was wondering for those of us with chronic invisible diseases/illnesses and also have disabled children or children with chronic/lifelong conditions how do you manage with daily living, finances and all that comes under that umbrella? I have been ill since age 13, I'm almost 43 and have lost every job I've had due to my…
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10 Year Old in difficult situation
Hey there, Im hoping someone may have some advice. Were currently looking after my 10 year old Step-Daughter due to a difficult situation at her Mum's home. She is almost 11 and they are not sure of her diagnosis but have labelled it from birth as a form of Cerebal Palsy. We usually have her to stay every other weekend and…
