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carer respite breaks?
Given my ever growing list of 'problems', is there such a thing as a scheme where carers cant get a break for a few days to a breathing space? Dealing with my meds, appointments and care needs, must take some toll on my wife, But Im thinking that coping with my depression exacts a much higher cost to her own health! Im…
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Hi, my name is torgan381!
hi i am a full time multi carer i have a semi disabled husband daughter with pmg syndrome and mental health and sister with learning disabilities ,yep a hand full i know but hey thats life i always work on the theory there is someone worse off than me . at the moment i am struggling as i feel i have failed due to my care…
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Hi, my name is rockmadmum!
I'm a carer to my son..my other son is in a care home and has his own carers 24/7..my question is..the care provider has given 28 days notice and another provider is being bought in (who have now informed me they can't start on the start date 23.11.17 due to the tupe and competencie process)..the present provider finishes…
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Parenting with CP
Hello! my name's Laura and I have spastic diplegia. Here's the thing, I am currently pregnant with my first child, and I'm wondering how I'll be able to do things other parents take for granted, such as picking up and carrying their child, when my balance can be so poor. I've tried looking for resources online that might…
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Hello I’m new on here as of tonight !
hi everyone , I’m a single parent of 3 children and my eldest , my son , was diagnosed this summer with ASD and has battled adhd since he was 7 . He’s now 19 and we’re both struggling tremendously with this all. My eldest daughter has adhd , very low grades after two years in secondary school plus I have a 6 year old…
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Teenager and CP
My son is 13 years old over the past couple of mo the he is struggling with fatigue and increased pain on his thighs. I am not sure if it is just growing pains but he is really struggling. Has anyone got any suggestions
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Trust will for my 15Yr son
I appreciate it if you could please help me with finding a trust charity other than Mencap to use for our trust will for my 15Yr son with SN and younger brother with no need, with thanks.
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Calling all parents of children with Cerebral Palsy
Hi If your child has CP, then it goes without saying that you'll want them to get the best treatment and support for them so that they can achieve their potential in life. Sadly, as things stand, you'll find that once your child reaches 18, the medical support they receive now will just disappear. You may well have been…
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Autisum specturme
hi his 22 years old moved back home, i am still struggling to find right support he just doesn't like to do anything, he does not like all the food I really don't know what to feed him everday for lunch and dinner. i want to go back to work at least 2 to 3 hours please please help
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Do you struggle with bedtime? (Potential product)
I am a product designer developing a product that creates a protective, comforting and calming environment for children (3yrs +) who struggle falling asleep. I'm looking for some feedback from anyone who has experience or knowledge with sleeping problems and happy to get involved. Many thanks!
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Erratic Sleep Behaviour
Hi I am the primary carer for my brother who has a learning disability since birth. He is 64 and has a very erratic sleep pattern. His mind seems to go into overdrive when he gets into bed and constantly talks to himself and it would appear others most of the night. He is completely exhausted throughout the day and can…
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Disabled Concessions not on in half term?
Hi, I hope this is ok to post. I am a PA for an adult with Downs Syndrome. I am having an argument with a well-known company as we were not offered any concessions when using their facilities because it was the October half term. When asked about this, they said they don't give any special offers during school holidays. My…
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Adopting a little one with Quad CP - support?
Hello, we are in the process of adopting a little one with Quad CP. What help is available to us therapeutically/financially to help raise this beautiful little one?
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i have prem twins who are now 9yrs old
Hi everyone, i have prem twins who are now 9yrs old, one twin has quad cp and is a full time wheelchair user. I was wondering if anyone lived local and wanted to meet for coffee and a chat???
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I'd like to find out my rights
Hello, thank you for adding me to your community. I'm here on behalf of my sibling who has special needs. I'd like to find out my rights as I am her only surviving relative now. Thank you.
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Direct Payments - generous or too little?
Hello, I'm a parent/carer. My son receives direct payments, but it never seems enough. I'm so tired (he wakes in the night) and I would like more help, especially as I care for two others. I was just wondering how the help differs from borough to borough. What is the average monthly direct payment for someone like my adult…
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Will writing
Hi everyone. Can someone give me a bit of advice. I want to write a will and include my disabled daughter who is in the care of the social services because of the serious nature of her disability. If I leave her nothing to avoid the SS getting the money can they sue my estate for it and has it ever happened? I wanted to…
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My success story out of bullying
J is 7 and he started a new school back in September 2016
(he was 6 then). He was really enjoying it until the last few months when I
discovered that some older boys - I'm not sure exactly what age but they are
either in year 4 or 5 so at least 8 years old, have been picking on him at
lunch time. He also goes to after…
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Family Carers : Occupation On Application Forms
On many online and written application forms for many services , including insurance , entering FAMILY CARER as an occupation does not compute with most. From the drop down menu on some , none of the " Occupations " fit , and many family carers would shoe horn in the occupation which fitted the best. Assume an application…
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Worn out no help
Just moved to wales my son has disabilitys and his twin sister also seen the gp and talked about problems one is constantly falling and getting worse also mood swings my girl has heart pains and think its anxiety but she can cope with one hour sleep in 48 hours he is same somtimes too i have problems too arthritis they…
