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Win a book: post the things people say to parents of disabled children…
Letter to Louis by Alison White , a mother of a child with cerebral palsy, is published by Faber today. One of the things that we found most shocking about the book is the callousness or perhaps carelessness of people’s reactions to a mother with a disabled child: * A fellow mum talking about how ‘perfect’ her own child…
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Is my son entitled to carers allowance?
Hi. I suffer with a few things. I get E.S.A and pip. My adult son lives with me and he is on a low income. He does all the cooking and most of the housework since my husband left. Would he be entitled to a carers allowance? I feel like I'm putting a lot on him.
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My autistic boy
I’m new to all this so please bare with me :) i have a 3 year old autistic son and everyone I meet they just don’t understand! I need to connect with other mums of autistic children as right now I feel so alone :( it’s so challenging and difficult I just need to hear that I’m not alone. X
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Moved: Should We Sue The Nhs?
This discussion has been moved.
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Negativity!!!
Hi. I’ve got 2 boys with Sen. My youngest is non-verbal & severely autistic. I had a big fall out with my hubby over Christmas, due to his families constant negativity about our son and why he won’t talk? My sister-in-law really upset me, and basically slagged off my whole family & said the autism came from our side of the…
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can u still parent with a disability
I have a disability can u still parent with a disability
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Parent of a child with learning disabilities ,dsypraxia and fine, gross motor difficulties.
Hello, I'm a parent of a child with learning disabilities who has dsypraxia and fine, gross motor difficulties.
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Help - nearly 7yr old with dsypraxia, anxiety and anger issues.
Help, my nearly 7yr old was recently diagnosed with dsypraxia with hyper-mobility but the last few months has become more anxious and angry. He's struggling to adapt to any change to anything. Being told no and generally not coping with home life (there has been no change at home) and he's fine with the structure of school…
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Daughter has athetoid cerebral palsy, severe behaviour issues, slight autism
Hi my name mand,I have a daughter of 25yrs old she has at has athotoid cereal palsy. She has serve behavior issues slight autism. Everyday is just a battle especially this last week she had to have 16 extraction last Thursday and no teeth left but since then life is rubbish she won't sleep always attacking me selfish…
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Caring for my wife
My wife and I are in our late sixties 68 to be exact I have been told I can't have any help for my wife up to now I have bought Mobil scooter bath chair and stair lift I have worked long hours since i was 16 years old around fifty to seventy hours a wk for all the years I have worked and the only thing I could get for my…
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Don't fall for scams
It's an unfortunate fact that older people are often the target of fraudsters. They come in all shapes and sizes, from the builder who offers to repair your roof, to the fake Microsoft engineer who rings to say your computer has been hacked. The way to protect yourself is not - in my opinion - to think that everyone is…
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I am mum to a wonderful daughter with Down Syndrome.
I am mum to a wonderful daughter with Down Syndrome. I have three other children, two of whom struggle with mental health problems. My other daughter has given me two beautiful granddaughter's, both have ASD and the elder one has severe global delay. Life is SO hard and everything is a fight to get anywhere. If I can help…
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Car tax
Hi can someone please advise? my little girl is coming up for 5years, gets DLA, mobility, and has a blue badge. My car is my own...... am I entitled to apply for free car tax or do I not qualify as she’s not always with me in the car? Thank you in advance
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Acces to Education
I am one of many parents that have met on Facebook support groups. Our link has been the difficulties we have faced applying for SEND and EHCP assessments and even diagnoses. We have helped each other through applications for our children to be assessed and helped each other cope with the stress of trying to fight for…
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Hereditary Spastic Paraplegia and splints
Am just wondering if there is anyone on this group who's child has been diagnosed with hsp. My little boy was diagnosed about a year ago and in this time he's gone from trying to walk , to not wanting to walk at all. He hates his splints and every day is a struggle trying to get him to wear them , he's only 2 year 5 month…
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Son has spastic quad and autism - head hitting
My son has spastic quad plus autism. He is a lovely placid 15year old. He deals with change etc very well. Just over a year ago he started out of the blue hitting/punching himself in the face and ears. After months and numerous visits to the hospital (Alex looked like he had been beaten up) they diagnosed Sinusitis. The…
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Tips for choking episodes?
Hi I am mum to two children with cp and My 8 yr old severe quadriplegic boy just suffered nasty choke experience.Choked on own vomit,was really difficult to clear his mouth had to call ambulance ,all fin now and on covering antib for poss aspiration.Anyone any tips because he has had mild choking episodes (when has cough)…
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What am I entitled to
I've recently became unemployed due to my son having adhd and being on a part time table at school...and also just become a single mom to both my children can someone explain please what can I claim as I'm New to all of this Thanks x
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Don’t know where I stand
I’m sorry if this is off topic but I’m lost, confused and very depressed about our situation right now and have no one to turn too. I have 3 boys living with me in a 4 bed private rented house, 2 boys are special needs but one of them who is 20 in April has got out of the net somehow. What I mean is he was born with a…
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It's very hard at time to be a carer
I am a carer and my role has taken its toll on me. I am disabled my self now. My husband is a poorly man also. We get no help as such. I still have to fight for everything it’s very hard at times.
