If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Multiple illnesses in multiple family members
Options
Emmanl
Community member Posts: 1 Listener
I was wondering for those of us with chronic invisible diseases/illnesses and also have disabled children or children with chronic/lifelong conditions how do you manage with daily living, finances and all that comes under that umbrella? I have been ill since age 13, I'm almost 43 and have lost every job I've had due to my health or from uncaring/unempathetic/
downright nasty bosses. My most recent 10 year job was as a specialist money/debt adviser which i had to resign from as i couldn't cope with my feeling so ill and a stressful job. I struggle now as my health is so much worse these last 2 years after being diagnosed with 4 additional autoimmune illnesses but my 20 yr old and 8 yr old both have invisible illnesses (daughter)/neurological disorder (son) and I find it very, very hard to cope. Their father still lives with us and cares for our son as much as he can and I have a good family but they can't help out much. Im hoping that reading your experiences may offer further ideas for coping strategies. Thanks for reading.
downright nasty bosses. My most recent 10 year job was as a specialist money/debt adviser which i had to resign from as i couldn't cope with my feeling so ill and a stressful job. I struggle now as my health is so much worse these last 2 years after being diagnosed with 4 additional autoimmune illnesses but my 20 yr old and 8 yr old both have invisible illnesses (daughter)/neurological disorder (son) and I find it very, very hard to cope. Their father still lives with us and cares for our son as much as he can and I have a good family but they can't help out much. Im hoping that reading your experiences may offer further ideas for coping strategies. Thanks for reading.
Comments
-
Hi @Emmanl, welcome to the community!
I'm sorry you have had such a rough time. I know I find my invisible illness really impacts me in the areas you mention, and that's without adding children into the mix!
Hopefully members of the community with similar experiences will be able to provide some advice. Have you had a look at our website's page about money and our recent post about money and budgeting? -
Hi Emmanl.
I know you posted this a while ago but I’m also in the same position.
Trying to cope with my own medical needs and care for my so. With quad cp. how’s it all going? X
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.