Multiple illnesses in multiple family members — Scope | Disability forum
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Multiple illnesses in multiple family members

Emmanl
Emmanl Member Posts: 1 Listener
I was wondering for those of us with chronic invisible diseases/illnesses and also have disabled children or children with chronic/lifelong conditions how do you manage with daily living, finances and all that comes under that umbrella? I have been ill since age 13, I'm almost 43 and have lost every job I've had due to my health or from uncaring/unempathetic/
downright nasty bosses. My most recent 10 year job was as a specialist money/debt adviser which i had to resign from as i couldn't cope with my feeling so ill and a stressful job. I struggle now as my health is so much worse these last 2 years after being diagnosed with 4 additional autoimmune illnesses but my 20 yr old and 8 yr old both have invisible illnesses (daughter)/neurological disorder (son) and I find it very, very hard to cope. Their father still lives with us and cares for our son as much as he can and I have a good family but they can't help out much. Im hoping that reading your experiences may offer further ideas for coping strategies. Thanks for reading.

Comments

  • Lasian_Alumni
    Lasian_Alumni Member Posts: 659 Pioneering
    Hi @Emmanl, welcome to the community!

    I'm sorry you have had such a rough time. I know I find my invisible illness really impacts me in the areas you mention, and that's without adding children into the mix! 

    Hopefully members of the community with similar experiences will be able to provide some advice. Have you had a look at our website's page about money and our recent post about money and budgeting
  • sophcpmum
    sophcpmum Member Posts: 2 Listener
    Hi Emmanl. 
    I know you posted this a while ago but I’m also in the same position. 
    Trying to cope with my own medical needs and care for my so. With quad cp. how’s it all going? X

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