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Overwhelmed by the thought of xmas holidays with two autistic children
I have two autistic children. Two weeks of Xmas holidays ahead. Totally overwhelmed.
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My wife is in denial
I have cerebellar ataxia; I was diagnosed several months ago, but I have had it for some years. My balance is now pretty bad and I can no longer walk very far. I am also now getting the other symptoms of ataxia - slurred speech, urinary problems, maybe dementia (not sure about the last one yet). My wife will not discuss…
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Carer for my husband what does it mean ??
hi all completely new here, not sure what to say don’t want to sound like I’m moaning :( I am a full time carer for my husband who has chronic back pain, has a lot of bad days so spends a lot of time on bed on morphine. He also uses a wheelchair to get around. We also have 7 children :) question is I am feeling so…
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School shoes how much did you spend ?
How much did you spend on school shoes this year ? My son 11 started high school last September and his school recomends canvas pumps as an alternative to school shoes so my son weares plain black pumps as school shoes which cost £3 his school uniform is school jumper school polo shirt black school trousers and pumps as…
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Loneliness In mainstream school
hi my sons 15 and in a mainstream school. He’s the only wheelchair user and finds breaktimes really lonely. He doesn’t want to watch his peers play football and spends his breaks on a computer instead. He’s been asking to be home schooled as he doesn’t think he’d be more lonely if he were. He also gets comments daily from…
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I am really struggling with my daughter's behaviour
I am writing on half of my daughter who had mild spastic hemopiliga and I am struggling with her behaviour....when you look at her you would not think she has a disability.....she wears a splint 24hours a day but I am really struggling with her behaviour does any one else have any behaviour issues
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Hi, my name is Karenstenhouse!
How long to hear back from DWP when applying for Carers. Tia
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I find difficult to get carer for my husband
Dos he is entitled for direct payments
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6 Month Old Baby with Cerebral Palsy.. How do you cope with new diagnoses'?
Hiya, I'm a young mum (21) and gave birth to my daughter in January 2017 by emergency C-Section. She was recently diagnosed with cerebral palsy at just 6 months old and I wondered if anyone had any experiences or support groups they could mention that helped them cope? It's a hard pill to swallow, and I love my daughter…
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Christmas - what's your experience?
We would really like to hear your experiences of Christmas as families of disabled children. Has your child ever been excluded from school shows, santa's grottos, Christmas parties or other Christmas events? How do you feel Christmas could be made more inclusive for your child? We'd love to hear from you. Please either…
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Hi, my name is sparkler53!
i have a son who has cerebal palsy i am 64 and now collecting my pension can my son now get carers allowance in his own rights as it got stopped when i got mr pension
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My carers experience
Hello, My experience of being a carer has been a long one and fairly complicated as well. When i was a lot young primary school aged i lived at home with just my mum and my brother. We are a normal family on the outside bit get to know us more you find thing out and nobody got to know that i was actaully a carer from my…
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Children with Special Needs
Hello, My name is Sherrie Chapman I have a 2 year old son with special needs who is in the process of being diagnosed. He is non-verbal and
has hearing difficulties, he is under audiology, speech and language and paediatrics but Social Services have still removed him from me despite him never leaving my care since birth. I…
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claiming carers allowance
I work two part time jobs with no other income such as benefits only part housing benefit,my 28yr old daughter was diagnosed 3 yrs ago with myasthenia gravis disease ,its a neurological disease with no cure,she has plasma exchange every 2 weeks and she becomes very ill at least every 2 weeks i.e cant swallow,cant breathe…
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Has anyone been told they're not good enough to parent their children?
My children were removed from their home mid September. I asked social services to do an assessment around 18 months ago, because I was worried that I wasn't meeting all their needs and that they needed support. I have multiple (non epeleptic) seizures a day along with a functional neurological disorder and varying other…
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How do you feel about having a sibblin with cerebral palsy?
Do you have sibblins with cerebral palsy? How do you feel about that? I feel quite alone and that nobody can understand me. I feel that I have a lot of responsabilities and that I grew up too quickly.
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Hi, my name is mamshell12!
Hi I'm new iv got 4 kids and they are my world, but its very hard with my 2 boys as one in foster care after knocking me out by hitting me over the head, my youngest son is ADHD ( not yet diagnosed ) but school and other health care people say he has it, he has started hitting when he turned 6 last may after seeing clear…
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Workshop for children with eating disorders
https://support-feeding-and-eating-workshop.eventbrite.co.uk Funding is available for this workshop
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My son's health problems and work
My 25 yr old son has not worked for 3 years due to chronic pain syndrome, fibromyalgia, TMJ, headaches etc. He has been treated at hospital for 3 years and is on waiting list for inpatient pain management programme. He has never claimed benefits and although I am on pension credit I have been keeping him for 3 years. I…
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Hi, my name is emilyw532!
Hi, my daughter is 2.5 and has Cerebral palsy and is a wheelchair user. She is at nursery in the afternoons and copes well, she will be starting mainstream school nursery in the summer 2018 so all is well with her. From my point of view I am starting to realise that I now have zero friends and no support network at all so…
