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Calling all parents of children with Cerebral Palsy
Hi If your child has CP, then it goes without saying that you'll want them to get the best treatment and support for them so that they can achieve their potential in life. Sadly, as things stand, you'll find that once your child reaches 18, the medical support they receive now will just disappear. You may well have been…
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Autisum specturme
hi his 22 years old moved back home, i am still struggling to find right support he just doesn't like to do anything, he does not like all the food I really don't know what to feed him everday for lunch and dinner. i want to go back to work at least 2 to 3 hours please please help
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Do you struggle with bedtime? (Potential product)
I am a product designer developing a product that creates a protective, comforting and calming environment for children (3yrs +) who struggle falling asleep. I'm looking for some feedback from anyone who has experience or knowledge with sleeping problems and happy to get involved. Many thanks!
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Erratic Sleep Behaviour
Hi I am the primary carer for my brother who has a learning disability since birth. He is 64 and has a very erratic sleep pattern. His mind seems to go into overdrive when he gets into bed and constantly talks to himself and it would appear others most of the night. He is completely exhausted throughout the day and can…
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Disabled Concessions not on in half term?
Hi, I hope this is ok to post. I am a PA for an adult with Downs Syndrome. I am having an argument with a well-known company as we were not offered any concessions when using their facilities because it was the October half term. When asked about this, they said they don't give any special offers during school holidays. My…
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Adopting a little one with Quad CP - support?
Hello, we are in the process of adopting a little one with Quad CP. What help is available to us therapeutically/financially to help raise this beautiful little one?
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i have prem twins who are now 9yrs old
Hi everyone, i have prem twins who are now 9yrs old, one twin has quad cp and is a full time wheelchair user. I was wondering if anyone lived local and wanted to meet for coffee and a chat???
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I'd like to find out my rights
Hello, thank you for adding me to your community. I'm here on behalf of my sibling who has special needs. I'd like to find out my rights as I am her only surviving relative now. Thank you.
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Direct Payments - generous or too little?
Hello, I'm a parent/carer. My son receives direct payments, but it never seems enough. I'm so tired (he wakes in the night) and I would like more help, especially as I care for two others. I was just wondering how the help differs from borough to borough. What is the average monthly direct payment for someone like my adult…
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Will writing
Hi everyone. Can someone give me a bit of advice. I want to write a will and include my disabled daughter who is in the care of the social services because of the serious nature of her disability. If I leave her nothing to avoid the SS getting the money can they sue my estate for it and has it ever happened? I wanted to…
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My success story out of bullying
J is 7 and he started a new school back in September 2016
(he was 6 then). He was really enjoying it until the last few months when I
discovered that some older boys - I'm not sure exactly what age but they are
either in year 4 or 5 so at least 8 years old, have been picking on him at
lunch time. He also goes to after…
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Family Carers : Occupation On Application Forms
On many online and written application forms for many services , including insurance , entering FAMILY CARER as an occupation does not compute with most. From the drop down menu on some , none of the " Occupations " fit , and many family carers would shoe horn in the occupation which fitted the best. Assume an application…
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Worn out no help
Just moved to wales my son has disabilitys and his twin sister also seen the gp and talked about problems one is constantly falling and getting worse also mood swings my girl has heart pains and think its anxiety but she can cope with one hour sleep in 48 hours he is same somtimes too i have problems too arthritis they…
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Advice about carers needed
Hello everyone i am new to this sight but all advice is very welcomed about carers and what are the rules relating to who would be eligible
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ASD and ADHD and school problems
My son has aspergers syndrome and ADHD im having loads of problems with him atm especially at school hes 15
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4 year old not walking and talking
Hello my is 4 years old and he still not started walking or taking as per doctors the have told me that his brain development is slow plzs guide me.
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Mum of a tiny little baby with developmental delay
Hi, my name is Lynn, I am a mum of a tiny little baby with developmental delay. Just looking for some other people in similar situation to discuss things and share experiences.
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4 Month Old Baby - Advice Please
Hello, I wonder if I could possibly ask advice of those of you who have been here before. My little boy has just been diagnosed with global hypertonia which is worse on the left side, he has been very stiff since he was born and initially his legs were so stiff that it was often difficult to change his nappy. Since being…
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Hi, my name is KatyS!
Hi, I applied for carers allowance at the end of July 2017. In August I was asked to send in additional documents to support my claim. All sent recorded and received at the claims department. I have emailed due to being unable to call due to costs of phonecalls and no one has replied yet. Any help grateful. Thanks
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Caring.
Hi people, this is my first time on here. Forgive me if i am very blunt but thats the way i am and mean no offence. I care for two adults, my wife and daughter. My wife has chronic fatigue and mental health problems and my daughter has inherited her problems plus epilepsy(which inherited from me). My wife is very…
