Cerebral palsy
Discussion List
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Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Mental health, Cerebral Palsy & hobbies
Hi everyone, I’m not sure this is under the right topic but I’m really in need of some advice. I have Cerebral Palsy, mental health issues & numerous other health issues. Unfortunately I lost my best friend, my mum a year ago. So it’s now just me & dad. We’ve been through so much in the last few years meaning stress levels…
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
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Assets and Support Plan
I'm 27 years old born with Cerebral Palsy affecting mobility. I live will my parents. My parents are planning to buy the house and received Right to Buy Landlord offer. My parents are planning to add my name to this property. But I want to know if the council will count this house as my 'Asset' if my parents add my name?…
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Mental health awareness for people with disability
Hello, I’m William and I’m 31 years old and I have cerebral palsy and dystonia. I have struggled with my mental health for the last few years, especially feeling lonely and depressed. I realised I had to talk to people and even ended up seeing professionals (psychologist) and taking anti-depressants. I’m still struggling…
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Hi, my name is Roughyed1485!
Hi all, I’ve been on here previously under a different username, but took a step back into the shadows. Just call me Count Duckula! I can find things too overwhelming at times due to the many mental health conditions I have, I can be especially Grumpy at times, well saying that I am old - well I feel it and my body does…
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
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Creating Awareness
hey ya, I’m fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- I’m based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scary…
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Hi, my name is Jo
I have right sided hemiplegia and would like to meet people and ask things if I see them in the community. I work as a receptionist in GSTT and would like to have a child with my husband who supports me and is my appointee for my benefit. I will also ask questions as well.
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Webinar: See me, not cerebral palsy
This webinar was hosted by My CP Guide and presented by Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance of…
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in their…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Changes to PIP
hello everyone, I submitted my pip review on the 19th November 2024. I had them say in February that they have it. I am currently in receipt of the higher rate. With these awful changes announced by the government, will I still be entitled to what I currently receive? also, with these new changes coming, even if I don’t…
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Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.…
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Cerebral Palsy Cymru-Family Fun Fiesta
Cerebral Palsy Cymru-Family Fun Fiesta Looking for a fun activity in Cardiff this weekend. Follow the link above to buy tickets.
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Wrexham Meet Up with CP Network and Cerebral Palsy Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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Yeovil Man to Run the London Marathon
Connor Hyde who has epilepsy and cerebral palsy ran the London Marathon 2025. BBC News
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buying a used car and adding the adaptions - advice?
I’m trying to learn how to drive with adaptions, and only one option for driving instructor but don’t seem to fit her schedule. I’ve tried countless other ways, I was thinking about buying a used car and adding the adaptions and doing it that way. Can anyone offer any advice?
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Struggling as a parent with a disability
is there any sipping out there?
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Wrexham Cerebral Palsy Get Together-CP Network and CP Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
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Functional Electrical Stimulation (FES)
Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more scuffing of toes & the ability to walk outdoors with more confidence even if I still have to use my sticks or rollator.
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For people with cerebral palsy, sympathy is slightly strange
From The Business Standard For people fighting cerebral palsy, sympathy may feel like underestimation; even when it stems from goodwill When I was 12, my classmates were assigned a task in geography where they had to colour the globe they drew. But I was excluded. One of my classmates pointed it out: "Why isn't Onira…
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Foundation: Sutton Announce New Cerebral Palsy Team
Sutton United Foundation is very excited to announce that we are extending the Sutton United Disability Section in 2025/26. Our 3 Pan Disability teams will be joined by a Cerebral Palsy football team, with the plan then to enter the CP National League in the first season. Glen May, the new Head of CP Football said “Really…
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Cerebral palsy runner from Southampton to take on London Marathon
From Daily Echo A runner with cerebral palsy from Southampton is set to take on the London Marathon while attempting a new Guinness World Record. Gus McKechnie is a qualified American football referee and will be using some of his own kit for his record, running as the fastest CIH athlete dressed as a referee. Gus, who…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…