Cerebral palsy
Discussion List
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Frailty Index Could Improve Lives of Younger Patients
Researchers at a Scottish university have discovered a measure used to assess the health of older people can improve quality of life for younger patients. BBC News Cerebral Palsy
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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World Menopause Day 2025
To mark World Menopause Day, our friend has written a very informative and helpful piece on menopause and cerebral palsy (CP). For many women with cerebral palsy, ageing can bring its own special challenges, particularly during menopause. “Often, they feel unprepared for the changes their bodies undergo during this time,…
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Join CP Scotland's new AAC Group for Children
📣 Exciting new opportunity for children with cerebral palsy! Thanks to generous funding from The National Lottery Awards for All, we’re thrilled to launch a brand new group for children aged 1–5 years with cerebral palsy, focused on building communication skills through Augmentative and Alternative Communication (AAC). 🎈…
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Need help for my daughter who has Cerebral Palsy
I am in desperate need of some help. My daughter Aimee has Cerebral Palsy and recently had a sore mouth which led to her movement of her tongue to get worse and then her body movements in general. She and I are finding it nearly impossible to sleep. She has upped her Baclofen a week ago to 20mg three times a day but…
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Power chair for tall person
Hi everyone, I am really struggling to know what to do. My Son is a wheelchair user, he is 13, 6ft 3" and still growing! I am finding it very hard to push him because of my own health challenges and it is preventing us from ever getting outside. I've been searching the web for a powerchair that has the seat depth he needs…
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Mental Health Matters
This is a post from The Rosie Jones Foundation, which is doing some important work in the area of mental health and cerebral palsy. This World Mental Health Day, we continue to celebrate this week's announcement of our partnership with Disability Plus. This partnership focuses on providing lived experience-led mental…
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World Mental Health Day and CP
World Mental Health Day takes place every year on 10 October. It’s a reminder of the importance of good mental health and the need to prioritise and invest in good mental health. This year's theme is 'access to services - mental health in catastrophes and emergencies'. The theme highlights the importance of people being…
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Acrostic World Cerebral Palsy Day
A poem by Network CP member Jay for World CP Day Cerebral palsy makes us unique Every day we achieve something new. Remember we are unstoppable individuals will never stop until we reach the top. Every single day we learn a new skill. Being resilient is our biggest strength. Really proud of our accomplishments in our…
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Spastic diplegia at 44
Hello there, my name is Thomas I have just turned 44, and suffer with Spastic diplegic CP, in the last year I have noticed a sharp rise with chronic fatigue both physically, and cognitively, it is causing me to burn out much faster, and is impacting significantly on my ability to work, I currently work 4 days a week, even…
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Forty Years Later: The Viewpoint of Cerebral Palsy from a Sibling’s Perspective.
For World CP Day 6 October 2025. Warning- This article might contain information which some might find upsetting. When parents received a diagnosis of cerebral palsy and epilepsy in the 1970s and 1980s, it was an emotionally and practically overwhelming time. But what if you’re a sibling in this scenario? How does your…
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World Cerebral Palsy Day: a people’s history of CP
From Alex White Writes When I joined Scope’s disabled graduate scheme in November 1994, I knew very little about cerebral palsy. I joined the UK disability charity at a historic time, the Monday after it changed from The Spastics Society to Scope. Early on, I met Bernard, an older man with cerebral palsy who was looking…
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World CP Day 2025 and Me
Hello, this is my origin story (of sorts) and the only time I'll use the word 'United' in a post. If you know me, you know why! I'll do it for World Cerebral Palsy Day 2025. I was diagnosed with cerebral palsy at the age of three. It makes the muscles in my arms and legs very tight, which affects my general movement.…
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World CP Day 2025!
World CP Day 2025! It's taken a long time for me to accept my cerebral palsy. Now I understand it makes me unique, has given me opportunities I never thought possible, and united me with the CP community.
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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7 Days to Go to World CP Day 6 October 2025
World CP Day is just around the corner, Monday, 6 October, and we need your voice to make this year’s campaign louder than ever! This year’s theme, #UniqueANDUnited, is about celebrating the power of our community while showing the world that cerebral palsy is not one story, but millions of unique ones. 👉 In the final…
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Ringing the NASDAQ Bell for World CP Day 2025
This World Cerebral Palsy Day, the Cerebral Palsy Foundation is honoured to take part in a very special tradition — the ringing of the NASDAQ closing bell in New York City. This year, Ila Eckhoff, Chair of the Cerebral Palsy Foundation’s Board of Directors, will lead the ceremony, joined by families, community leaders, and…
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I worried about being a mom with a disability. Now, I've embraced it — all with one hand
From CBC by Kiaira Fedorus Finding out I was pregnant was one of the few times I doubted my ability to overcome and adapt. This First Person column is the experience of Kiaira Fedorus, who lives in Grande Prairie, Alta. For more information about CBC's First Person stories, please see the FAQ. Time stood still while I sat…
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Left Knee Issues
I Have Cerebral Palsy, after 2 days of not doing physio my left knees achey and funny, added to that have been hospital for a while so suspect muscle atrophy. Thing is when transferring its like my left knee cant hold the weight and the pain gets worse as I lower myself. Any ideas?
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Cerebral Palsy No Barriers for Oxford Student
Maisy Gallagher-Horwood, aged 21, who lives in Shipton-on-Cherwell has cerebral palsy and is a wheelchair user. For years she has championed disability rights and accessible employment opportunities, Now she’s landed a job with Oxfordshire County Council as its special educational needs and disabilities (SEND) media…
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'She doesn't get another childhood': The lives on hold waiting for wheelchairs
Wren has cerebral palsy, affecting her speech, all four of her limbs and her posture, meaning she needs help with everyday activities. At home, the 11-year-old uses an NHS manual self-propelled chair. It took more than a year to get this chair, well over the NHS's official target of 18 weeks. While Wren's mum, Anna, says…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Hi, my name is Jack1703!
I’ve just recently moved into pershore after three years in Cheltenham and I think I prefer Cheltenham more as it’s more accessible and the people are more welcoming there A lot has been going on this year and I desperately want to talk about it and I can’t think of a welcoming community to be part of
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Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
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Mother Heartbroken Over Parks Poor Accessibility.
A mum says she is "angry, upset and heartbroken" over the opening of a new play park that does not cater for her daughter's disabilities, despite it being described as an "accessible space." Rebecca said there "wasn't anything" her two-year-old daughter Hannah, who has cerebral palsy and is non-mobile, non-verbal and…
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A stranger grabbed my wheelchair and silently started pushing me
From The Metro Written by Melissa Parker I was completely at the mercy of this man (Picture: Melissa Parker) Wheeling myself around the town centre in July, I contentedly went about my day, running errands. I’d been about to enter a supermarket when I suddenly felt a heavy, foreign weight pushing on the back of my…
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Get involved in a new physiotherapy game!
We have an exciting opportunity! Please see below to get involved! Hello! We're Aaruni and Pranathi. We made Plia Therapy. It's a digital platform for children with neurological conditions like cerebral palsy. We use games and Augmented Reality to make exercises fun. Our AI personalises these exercises for each child. They…
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CP Sport's National Athletics and Activity Day!
With just over a week to go, we are so excited to see you all. We have 102 athletes competing this year! Plus, we have a host of other activities and sporting partners attending the day. If you haven't booked onto the free activities yet, please scan and book below or visit our website. With just over a week to go, we are…
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'I'm the voice for Wrexham fans with a disability'
Charlie Buckland Source from BBC News Behind the newfound glitz and glamour of Wrexham AFC, people like Kerry Evans have acted as a pillar throughout the transition. Previously not even a football fan, she now makes sure no-one gets left behind as the club's disability liaison officer, and is also familiar face on the…
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Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…