Cerebral palsy
Discussion List
-
Join us for the next CP Network meeting on Wednesday, 12 February, from 6 to 7 PM
We are delighted to announce Liz Whiteley will be joining us to talk about emotions and disability. Liz Whiteley is a Sheffield-based Trauma-Informed Therapist offering online sessions across the UK. She specialises in disability counselling and trauma-informed therapy, providing compassionate support to help clients…
-
Care Support Plan. Do I sent this information back to the Ombudsman or challenge the social again?
Hi, My son has a Care Support Plan. The council decided to take funding away before the annual assessment was completed. I took the case to the Ombudsman and won, The council had failed. Now, the support plan is back and running, but the council/social will not support the Physiotherapy my disabled son desperately requires…
-
Understanding the Physical and Psychological Impact of Falls in Ambulatory Individuals with CP
Scope and the University of Nottingham are working on a UK Falls study: "Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course." It will add weight to a growing body of research but from a UK perspective. The Research below is the latest paper from the…
-
Interested in PE for Cerebral Palsy?
Participants are needed for a study with Ulster University. They would like to understand the experiences of PE for children with CP. If you are interested please email:Leydon-C1@ulster.ac.uk
-
Model with cerebral palsy champions adaptive clothes
BBC News Elliot Caswell has cerebral palsy and, like many disabled people, struggles to find clothes that are easy to put on. Now he is one of the models for Primark's range of clothes adapted for adults with disabilities. The 25-year-old from Newcastle says adaptive clothing is life-changing for him and he hopes all major…
-
Primark launches clothing range designed for people with disabilities
Range of womenswear and menswear contains 49 pieces adapted from brand’s bestselling items to suit variety of needs. It’s a go-to shop for cheap knickers and designer dupes, but now Primark hopes to become the top destination for clothing designed for those with a range of disabilities. In a first for the budget high…
-
Wheelchair user wedding planning
Hey all - long time no speak. In the process of starting to wedding plan, but as a wheelchair user the whole walking down the aisle, first dance traditions etc will obviously have to look a bit different for us. Does anyone have any clue or recommendations about where to look or resources that give me some ideas?
-
Young people with cerebral palsy needed!
I have been asked to advertise participant recruitment for some university research. Please consider taking part. ***My name is Fatima, and I am a third-year Occupational Therapy student at the University of Brighton. I am currently conducting research on the experiences of young adults (18-25) with Cerebral Palsy who…
-
*Spoiler Alert Traitors winner story
The final episode of the hit BBC show, The Traitors aired on Friday 24 January. Jake Brown and Leanne Quigley were crowned winners of the game, after a tense final and winning a share of £94,600. Jake has spoken about how proud he feels to have raised awareness of hidden disabilities, by being outspoken about cerebral…
-
A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
-
A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
-
A message from Scope's Partnership Team-An opportunity to be Premiership Rugby next charity
Do any of our CP Network members play or enjoy watching Rugby? Scope is writing an application to be Premiership Rugby's next charity. They would love to include a story or quote from someone in our Network about their relationship with Rugby. Inclusivity is a key value of the Premiership and there are lots of…
-
Atherton man wins world record after half marathon with cerebral palsy
From Leigh Journal.. By Conal Cunningham, Senior Reporter Man smashes world record after running half marathon with cerebral pals has been on an incredible journey from learning to walk to earning a world record for his half-marathon time. Diagnosed with cerebral palsy at one-years-old, Harvey Rowson's family was told that…
-
Power Hockey League dates announced
We’re delighted to announce the dates and locations for the 2025 British Power League! This year, we’re going to have teams from across the country playing in Northern and Southern Conferences. The Southern Conference will take place on 23 March at Goals Beyond Grass in Gloucester (GL3 1HX). The Northern Conference will…
-
Power Hockey League dates announced
We’re delighted to announce the dates and locations for the 2025 British Power League! This year, we’re going to have teams from across the country playing in Northern and Southern Conferences. The Southern Conference will take place on 23 March at Goals Beyond Grass in Gloucester (GL3 1HX). The Northern Conference will…
-
The Traitors contestant shares disability during physical trial
Jake confided he has cerebral palsy after he struggled to carry the heavy statues in the latest mission. Albertina Lloyd·Contributor. Yahoo News. What did you miss? The Traitors contestant Jake confided he has cerebral palsy and growing up he has learned not to be ashamed to ask for help. In the latest episode of the…
-
Opportunity to participate in research: Living with cerebral palsy and pain?
Do you live with cerebral palsy and experience pain? Rebecca Taylor and her supervisor Ellen Henderson, from Ulster University would like to hear from you. The university are carrying out research project to understand the impact of cerebral palsy and pain. Sara Edwards Scope Cerebral Palsy Specialist
-
Man's first job inspires a career in the theatre
A 28-year-old man with cerebral palsy who has been employed for the first time said it had given him the confidence to follow his dream of working in theatre. BBC News Biggleswade man's first paid job, inspires new career in the theatre Sara Scope Cerebral Palsy Specialist
-
Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
- Hi, my name is DuckyYellow24! Assistive stretches for my son, anyone had a similar experience?
-
Wobbling Through 2024: The Positive Stories
The new year comes with new reflection and solitude. I want to highlight some positives within the cerebral palsy community in 2024. Having worked in my role for 2 months, it is easy to get fixated on the challenges and barriers people with CP face. The individual and institutional apathy we see daily. This is a reminder…
-
I Tried Meditation for My Depression—Here's What I Learned
Article from Verywellmind.com by John Loeppky Disclaimer Meditation can help some people mitigate their depression symptoms. According to experts, using meditation as a form of treatment should be in collaboration with your care team and should not be considered a one-stop-shop solution to mental health conditions. I don’t…
-
Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
-
Reflections on managing change as a disabled person.
When I reflect on 2024, I recognise it’s been a year where significant changes have been a constant in my life. Some of these events have been stressful and it’s been a rollercoaster of emotional highs and lows. It’s important to acknowledge we all have different stress thresholds. Some people can manage change. Others…
-
Government announces UK Neuro Forum
Andrew Gwynne MP, Parliamentary Under-Secretary of State at the Department of Health and Social Care, has announced a new UK-wide Neuro Forum will be set up to find ways to improve care and support for people affected by neurological conditions. This landmark announcement follows years of campaigning, calling on the…
-
CP & surgery
Hello, I'm new to the forum. My husband (37) has Spastic Diplegic CP and is independent. He's been talking to surgeons about possible ankle surgery (fusion etc) to straighten up his ankle. Does anyone have any experience/advice around this? Can anyone recommend any good surgeons in the South East of England who have…
-
Jean Martin Championing cycling as a lifelong mobility aid
The CP Network's very own Jean Martin has been named one of the 100 Women in Cycling 2024 Jean has been involved with Scope since its creation and has been cycling for almost as long! Jean has been cycling for nearly seven decades, starting with a tricycle chosen for her as a child with cerebral palsy to develop her…
-
Former Paralympian realises lifelong dream to sing
Simon Thake BBC News, East Midlands A former Paralympian has set her sights on a new chapter in her life - music. Zoe Edge, from Derbyshire, was born with severe athetoid cerebral palsy, external, but she does not see her disability as a limitation. She won a silver medal in boccia at the 1996 Paralympic Games and has gone…
Upcoming Events
-
Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
-
Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…