Cerebral palsy
Discussion List
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CP on Morning Live!
Traitors winner Jake Brown featured on Morning Live. He talked about the importance of sports inclusion. As well as the impact of having a hidden disability. You can watch the segment on BBC IPlayer
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Eating and Drinking Ability Classification System for people with Cerebral Palsy (EDACS)
Since 2023, Sussex NHS Trust and Scope have worked together on an Eating and Drinking Classification System for people with cerebral palsy (CP). EDACS describes how people with cerebral palsy eat, drink and swallow using five distinct levels. EDACS is now used internationally. People with cerebral palsy cannot use the…
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New wheelchair
Hi, My son has his new wheelchair and it’s a quickie Qs5x and it’s excellent, however the footrest board is not quite right at the moment. He has CP with spasticity and dystonia and has pronation of his feet. His previous wheelchair footrest boards have been angled back slightly by his physiotherapist when he was at school…
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Why Cerebral Palsy (CP) Awareness Month is Important
Cerebral Palsy Awareness Month, observed every March, is important because it shines a spotlight on the most common motor disability in childhood, yet one that is often misunderstood or overlooked. Here’s why this month matters: 1. Raising Awareness Many people have a limited understanding of what cerebral palsy (CP) is…
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Dr Lin Berwick: The Importance of CP Awareness Month
As a woman with cerebral palsy commonly known as CP, I have battled my way through life for the last 75 years. It is thought that I am probably one of the oldest women with CP, yet I’ve managed to achieve great things way beyond anyone’s expectation. Life at 75 is a tremendous problem especially when there is a great deal…
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Shoes
Hi all, I'm just reaching out because we are struggling, and wanted to see if anyone had any helpful advice. My husband has spastic diplegic CP, and is somewhat unbalanced on his feet, but is able to walk independently. He would love to be able to find a pair of trainers that he could then have adapted. (he has several…
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Cerebral Palsy Awareness Month Is Here!
Network CP talks a lot about Cerebral Palsy (CP)—it’s our mission, after all! But this month holds special significance. CP Awareness Month highlights the prevalence of CP. With 17 million people worldwide living with the condition. That’s a big community! Throughout March, we are raising awareness by hosting weekly events…
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Teen who beat the online bullies with Zach's Law. On mission to improve wheelchair access
A great story during Cerebral Palsy Awareness month and to celebrate Purple Day for Epilepsy. A teen is on a mission to improve wheelchair access after seeing success of law against online bulling. Zac Eagling, from from Liversedge, West Yorkshire, has cerebral palsy following a brain injury at birth but that has not…
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Wrist pain (scapholunate diasthesis)
Hi there I’m in my mid 40s and have developed pains in both wrists over the last five years. Most recently in my right wrist, I have worn down the ligaments between the bones. In my left wrist the bones have fused together. I had discussed surgery on my left wrist (breaking the bones, reconstructing and wiring together)…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at https://www.scope.org.uk/cerebral-palsy-network to attend this event. I…
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Cerebral Palsy Awareness Month-Archie's Story
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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Cerebral Palsy Awareness Month. BBC-Same But Different
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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BBC Reporter spent six hours on floor of accessible toilet
Spending six hours on the floor of a nightclub toilet wasn't how I imagined my evening out would go. Matthew Bassett from BBC Wales reports on the lack of accessible toilets and investigates the general unhygienic state of the facilities. BBC Wales Disability
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Join us next week to mark Cerebral Palsy Awareness Month 2025
Join us next week Wednesday 5 March 2025 to mark Cerebral Palsy Awareness Month. We are excited to welcome a range of inspiring speakers who will share their personal stories of living with cerebral palsy. They will offer insights into the challenges they face and the triumphs they achieve, giving us a deeper understanding…
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Webinar on Health Equity for Persons with Cerebral Palsy and Other Disabilities
Webinar hosted by the International Cerebral Palsy Society (ICPS) People with cerebral palsy and other disabilities face health challenges not only as a direct result of their condition but also due to lack of adequate training or resources in the healthcare system or even prejudice and discrimination on the part of…
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Exciting Event with Cerebra and Pedal Power in Cardiff
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Exciting Launch Event with Cerebra and Pedal Power
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Exciting Research Project. Ulster University. Your Voice on Pain-Take Part
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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CP Midlands Fabulous February Disability Meet-UP This Saturday!
Who's joining us at our Disability Meet-Up this Saturday? Fabulous February Disability Meet-Up! Join us on Saturday, 22nd February for a fun and inclusive get-together hosted by Ability Life West Midlands at Cerebral Palsy Midlands, 17 Victoria Rd, Harborne, Birmingham, B17 0AQ! Connect, share stories & make new friends…
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Dating with CP is Our Next CP Network Event Wednesday 19 February 6PM
This week, our Zoom meeting will be discussing dating with CP. We will be joined be journalist Melissa Parker. Melissa is an award-winning freelance journalist. Her writing has appeared in Radio Times, Stylist, Cosmopolitan, Digital Spy, and Metro. She covers topics from dating to Doctor Who. She focuses on how disability…
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Help us make the outdoors more accessible
We’re researching the biggest barriers disabled people face when accessing outdoor activities like hiking, rowing, and cycling. This is part of a project to help a business develop solutions that improve accessibility. What challenges have you encountered? Whether it’s a lack of adaptive equipment, inaccessible paths, or…
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Cerebral Palsy Support Group to launch in Taunton in March
CP Network member Nicole has set up a new support group for people with cerebral palsy that is launching in Taunton. The first meeting will be on Wednesday, March 19, between 2 pm and 4 pm at Compass Wellbeing on Taunton's Belvedere Trading Estate. Nicole said: "Our aims are to tackle the stigma around cerebral palsy, give…
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Network CP: Dating with CP
This week, our Zoom meeting will be discussing dating with CP. We will be joined be journalist Melissa Parker. Melissa is an award-winning freelance journalist. Her writing has appeared in Radio Times, Stylist, Cosmopolitan, Digital Spy, and Metro. She covers topics from dating to Doctor Who. She focuses on how disability…
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Augmented Assistance Technology. Question and Answer session with Michael Cash from Voiceitt.
Michael Cash-Voiceitt. Question one: Hi Michael, Welcome to Scope’s online community. We’re here today discussing Augmented Assistive Communication (AAC), particularly your company Voiceitt. Before we get into the details, tell me about yourself and your background. Answer: From a young age my parents noticed I wasn’t…
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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Man with cerebral palsy to swim 5km for charity
From BBC News A man with cerebral palsy known for taking on fundraising challenges says he is training for his next event. Ash Jenkins, from Bristol, is planning to swim 5km (three miles) in open water at Adam Walker's lake, in Lincolnshire, for charity. He has previously done bungee jumps and indoor skydives - but the…
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Hi, my name is fayluna! Cerebral palsy and incontinence
I have a question, I have cerebral palsy and is anyone else suffering with a little bit of incontinence?
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How Scouts opened the door for my daughter with cerebral palsy
Sophie is a Beaver who has cerebral palsy. When she joined Beavers, it was the first time Sophie said an enthusiastic ‘yes’ to her family about an extracurricular activity with no hesitation. Sophie’s mum, Nicola, writes how inclusive Scouts has been. Her story shows that inclusion isn’t just possible – it can make a huge…
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CP Friends - For Adults with Cerebral Palsy
Are you or someone you know living with Cerebral Palsy (CP)? 🤗 Join Richie, a 21-year-old with CP, at the Hub Ashmore Park in Wednesfield for the "CP Friends" meet-up group! This welcoming space is all about connection, friendship, and support. Enjoy some tea and cake while making new friends in a warm and accessible…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…