Cerebral palsy
Discussion List
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Take Part in BBC Race Across the World
You might have watched the BAFTA-winning TV series ‘Race Across the World’ on BBC One. The production company behind the show has been in touch with Cerebral Palsy Scotland because they would like to increase inclusion and representation in their next series. They're encouraging people from the cerebral palsy community to…
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Dystonia IMPACT study
DYSTONIA IMPACT STUDY UPDATE The Dystonia IMPACT Qualitative Study explores what matters most to children and young people living with dystonia and other hyperkinetic movement disorders, and to their families. We are pleased to share that since opening, the study has recruited 27 parent/carers and 15 children and young…
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CP Teens Workshops in 2026!
Perfect for young people with cerebral palsy and physical disabilities looking to learn new skills, get creative, connect with others, and have fun! All workshops are free* Shout About Your Skills – Personal Development WorkshopOnline | 17 March Learn to recognise your strengths and communicate them confidently - useful in…
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A Better way to Understand Pain in Cerebral Palsy Study
How do adults with cerebral palsy experience and communicate pain? I'm Rebecca Taylor, a researcher at the University of Ulster, studying this important issue. Many individuals with CP struggle to express their pain, which can hinder their access to support and treatment. I'm seeking insights from adults with CP,…
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How adults with cerebral palsy successfully confront and cope with ableism
Back in 2024, Scope took part in a study about cerebral palsy (CP) and ableism, alongside Ability First, Cerebral Palsy Australia, Scope Australia, Cerebral Palsy Support Network, CP Achieve, Cerebral Palsy Support Network and Healthy Trajectories. Purpose This study focused on how adults with cerebral palsy successfully…
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Accessible Gaming
Hello, We’re a group of disabled and supporters of disabled people who are bringing gaming companies to account for their inequalities towards making their games available to play for all. For example driving games not being controlled by a steering wheel but instead by a controller which those with cerebral palsy has…
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CP Sport Swimming Nationals are BACK 🏊♀️
Entries are now open for this year's event Date: Saturday 18th April 2026 Location: Alfreton Leisure Centre Church Street, Alfreton, DE55 7BD, Derbyshire, United Kingdom Time: 9am until 3:30pm (subject to change) Age: 10 + (as of 31/12/2026) Entry Deadline: Sunday 29 March 11:59pm Register today
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Cerebral Palsy Teens Up Coming Events
We have lots of upcoming initiatives and activities! From online quiz nights and relaxed lunch socials to creative workshops and our annual Sponsored Wobble through Chatsworth Park, there’s something for everyone What’s on offer: • Social meet-ups - bowling, lunch clubs & relaxed catch-ups online and in-person • Virtual…
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State-of-the-art new NHS lab to help support people with conditions like CP
A new "gait lab" has opened at the Freeman Hospital in Newcastle Sam Volpe Health Reporter Chronicle Live A new "state-of-the-art" service for children and adults has opened at the Freeman Hospital. The "gait lab" will support those with cerebral palsy, spina bifida and a range of neurological conditions affecting…
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Automatic tool to prevent hip dislocation in children with cerebral palsy
Researchers from the Universities of Manchester and Liverpool, together with Manchester Imaging Ltd, (a local company that specialises in developing AI medical devices), have received a £1.2 million grant from the National Institute for Health and Care Research’s (NIHR) ‘Invention for Innovation’ (i4i) programme, to build…
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Finding the perfect powered wheelchair
Hello, everyone. I hope this is the right place to ask this and that it's okay to do so. I have Cerebral Palsy Spastic Diplegia. I have limited mobility and and have used a manual wheelchair all my life, with e-motion wheels for the past 15 years or so. As a 30-something, I desperately want more independence and I think a…
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You’re invited to a very special CPM premiere!
Cerebral Palsy Midlands is proud to invite you to the premiere of our original musical film: Every Life Has Its Purpose Created by our incredible Being Heard Music Group, and supported by Director & Composer Richard Ganner alongside Craig Keogh, this powerful film tells the story of Dr Earl Carlson and the founding of the…
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Counil Disability Services Compared
Hi Everyone, I would like some insights into your experiences with disability support in your region. I have ataxic/spastic cerebral palsy and moved to Wales from Reading because I was led to believe that disability support was much better there. I sold my flat, and moved in with my mother while I looked for a place…
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Do you have cerebral palsy?
Did you know that exercise is vital for cerebral palsy? Just like a car needs fuel (or electric!), if a car hasn’t got any fuel, it simply won’t start! Or if it has limited fuel, it simply won’t get very far! Cerebral palsy is a neurological condition, but it is also known as a motor disorder affecting movement! So the…
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Launch of new national council to shape wheelchair provision
Wheelchair users in the UK are being invited to join The Wheelchair Collective – the first national council of wheelchair users. Led by the Wheelchair Alliance, the initiative will give wheelchair users with lived experience the power to influence how wheelchair services are designed, delivered and improved. Backed by…
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Kerry Evans on transforming accessibility at Wrexham AFC
In 2021, Kerry Evans’ dream became reality when Ryan Reynolds and Rob McElhenney invited her to join Wrexham AFC as a full-time employee. Today, she’s helping raise the bar for accessibility in football. Kerry will be speaking at Naidex on 25-26 March 2026 at the NEC Birmingham. Read the full story
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My life now, never thought it would happen
Hi. I'm Steph. When I was a teenager, I absolutely thought that, at best, in the future, I'd be living in a flat with a carer. I believed that that would be my life. Man, was I wrong…. It wasn't because I thought that I couldn't do it, i just didn't even consider it because, unfortunately, society told me that it wouldn't…
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Opportunities to Try a New Sport in 2026. Disability Sports Wales
Opportunities to try a sporting activity are limited for me. Contacting a group and telling them I have Cerebral Palsy makes it difficult for sporting groups and gyms to find a way to adapt their services for a disabled person. I want to try something new in 2026 and have found Disability Sports Wales are hosting three…
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London to host major exhibition celebrating the work of disabled artists
A major international exhibition marking the 70th anniversary of the disabled artists movement is to be held in London in the spring, The Standard reports. The event, called 'Defying Limits, Defining Art: 70 Years of the Mouth and Foot Painting Artists', will give visitors a rare opportunity to meet some of the world’s…
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‘You just feel so light!’: two wheelchair users – one 81, one 25.
‘You just feel so light!’: two wheelchair users – one 81, one 25 – on welfare cuts, housing and the joy of swimming – The Guardian A lot has changed for people with disabilities since the 1950s, when the then seven-year-old Alice Moira was given her first wheelchair – not least the fact that it was made of wood and she…
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'I'm just a disabled kid but I could change the law'
A 17-year-old boy with cerebral palsy said it was a "surreal moment" to have his petition on fire safety debated in Parliament. Lucas has been campaigning for evacuation chairs to be compulsory in schools after being left "petrified" on his own in his wheelchair in an upstairs room when a fire broke out. His experience at…
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Extra Help at School in Wales. Individual Development Plans
A new education law came into force in Wales on 1 September 2021. The Additional Learning Needs and Education Tribunal (Wales) Act 2018 changes how children and young people aged 0-25 years with additional learning needs (ALN) will have their needs assessed, planned and monitored. These changes have been gradually…
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Three-year outcomes of repeated botulinum neurotoxin in Children
This study aimed to evaluate the effectiveness of repeated botulinum neurotoxin A (BoNT-A) injections on gross motor function over 3 years in ambulant children with spastic cerebral palsy (CP). Results indicated that repeated BoNT-A injections over 3 years were not associated with improvements in gross motor function or…
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Weight Issues in People with Cerebral Palsy: Understanding Sarcopenia
By Stephen A. Dantzig, Psy. D., Education and Outreach Program Manager, United Cerebral Palsy Association of Hawai’i Weight concerns are a significant public health issue in the United States. The Centres for Disease Control and Prevention reports that from 2017-2020, 41.9% of adults were living with obesity, and 9.2% with…
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Title: The Quiet Loneliness of Watching Others Move Forward
"There’s a specific kind of ache that comes with watching the people around you find their 'forever' while you feel like you’re standing in the same place. Lately, for me, that ache has started to turn into a real loss of hope. I’ve reached a point where seeing successful, intimate relationships doesn't just feel like a…
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Council Tax suspension
Hi . I had a letter today to say my council tax is being suspended along with my housing benefit. I have no idea why . They did not explain. I have to send in photocopies of letters etc .they did not tell me what either Has anyone else has this happen or know anything about it. Thanks
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Disabled person - it’s meaning too generalised today
Why the charity name change to Scope was both positive but a Trojan horse. Disability is talked about constantly, but severe and to a lesser extent any physical disability has increasingly been crowded out in practice. Access systems are overwhelmed, not because needs are wrong, but because very different forms of…
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Tomcat Trike
Morning All. I'm looking for suggestions as to What to do with my Son's Tomcat Trike? We got it for him 5-6 years ago and its barely been used. currently its sat in Storage waiting. We've hardly been able to use it primarily because of the impracticalities of getting him on it as he needs a hoist to transfer and of course…
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Rosie Jones says she carried ‘a lot of guilt’ in her twenties
Holly Bishop | Wednesday 26 November 2025 08:26 GMT Rosie Jones has shared a message to ableists as she reflects on her personal journey of learning to own her disability. Appearing on Katherine Ryan’s What’s My Age Again? podcast on Monday (24 November), the 35-year-old comedian said she “carried a lot of guilt” during…
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MyCP Webinar: Inside the Making of the First Adult CP Toolkit
This webinar from the U.S. features CP Research Network co-founder Michele Shusterman and Mary Gannotti, PhD, Jensiné Clark, MD, and Cristina Sarmiento, MD, four leaders from the CP Research Network, discussing the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource…
Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…