A Better way to Understand Pain in Cerebral Palsy Study

Richard_Scope

How do adults with cerebral palsy experience and communicate pain?

I'm Rebecca Taylor, a researcher at the University of Ulster, studying this important issue. Many individuals with CP struggle to express their pain, which can hinder their access to support and treatment. I'm seeking insights from adults with CP, caregivers, and health professionals to create a holistic pain measurement tool that reflects real experiences and improves pain management. Your input is invaluable!

**Who Can Take Part**

• Adults (18+) with cerebral palsy who experience pain, verbal & non-verbal (AAC communication)
• Anyone (18+) who supports an adult with cerebral palsy
• Health or rehabilitation professionals who work with adults with cerebral palsy

**What is Involved**

• One-on-one interview (45–60 minutes)
• Conducted online, in-person, or by email for accessibility
• Participation is voluntary, and you can stop at any time
• Adaptations available for accessibility & assistance with signing the consent form is allowed
• Entry into a free draw for a £50 Amazon voucher

For ethical reasons:-

You must have the capacity to consent and participate, meaning you can understand the study and make a voluntary decision.

- You must not have a severe mental health condition that may affect participation (e.g., schizophrenia, bipolar disorder with recent episodes).- You must not be undergoing major surgery at recruitment.

**Interested in Taking Part?**To register your interest in participation, please click on the relevant link below: 

https://forms.office.com/e/Qsj3WK7ZKY

If you have any further queries, please get in touch with Rebecca Taylor: Taylor-r44@ulster .ac.uk

#CerebralPalsy #PainResearch #ChronicPain #DisabilityInclusion

Richard_Scope

The above post has been moderated and checked by the Scope CP Network Team.  
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