Cerebral palsy

What a month! The Palsy Podcast Project is now complete. Thanks to everyone who took part. You can still listen on Apple Podcasts, Spotify, or watch on YouTube! Apple Podcastshttps://podcasts.apple.com/.../the-palsy.../id1881241822 Spotifyhttps://open.spotify.com/show/2I3mFYLGsA0kMKjM0SnkKR...…

I wondered if anyone has any advice please, I’m a 35 year old woman with Cerebral Palsy, a history of Epilepsy and depression and although I can walk short distances I’m a wheelchair user. I have been with my husband for almost 16 years and married for about 9 and a half years and we are the same age. Although my husband…

I am joined on episode 27 of The Palsy Podcast by Richard Luke. Richard is Scope's Cerebral Palsy Specialist. Richard talks about his experience growing up with CP, forming relationships and starting a family. Richard talks about his experience in becoming a dad and the internalised ableism he felt. Richard is the…

From the Metro By Melissa Parker During my university graduation, as I proudly made my way toward the stage to receive my degree, a woman organising the event casually called me ‘wheelchair-bound.’ Walking behind me and talking into a walkie-talkie, checking the ramp was in place, her words hung in the air – simple and…

There is something about Naidex that feels a bit like stepping into a very specific kind of family gathering. Not the stressful kind with overcooked buffet food and one relative asking inappropriate questions. The good kind. The kind where people just get it. Where nobody blinks at a wheelchair, a walking aid, adapted…

We’re looking for disabled young people who might be open to speaking to journalists ahead of the release of the Milburn review in spring 2026 (likely between March and May). The review is an independent investigation into the rise in youth economic inactivity. We’re hoping to identify someone who: is a disabled young…

Waiting lists for community neurorehabilitation have grown by 52% since 2022, leaving too many people affected by neurological conditions without the support necessary to live well and maintain independence. Access to neurorehabilitation shouldn't be down to luck. But two people with the same condition can face vastly…

Today is Purple Day! A worldwide day to acknowledge and celebrate those living with Epilepsy. It was founded in 2008 by a young Canadian Cassidy Megan, it encourages people to wear purple and host events to raise funds and awareness. Lavender is the international flower of epilepsy, symbolizing isolation often experienced…

don’t qualify for mobility scheme I’m a private disabled person that has pay cars and the adaptions . Need help as I can’t paying have cp down my right side

Hi everyone, there is a Coffee Morning for the CP community in Milton Keynes. Hosted by Jacqueline Stephens. 11th of April 10 am - 12 pm The Arbour, Milton Keynes

The CP Network recently received a request from Pencoed Comprehensive School, near Bridgend in South Wales, to deliver an awareness session on cerebral palsy and ableism. As part of a social studies competition in Religious Studies, the class are participating in a project where they research and engage with social issues.…

My son (20)left hemi has just bought a car and has his driving test next week . we are currently looking for recommendations for car insurance without paying the earth .He will have a smart steering gadget but other than that just an ordinary automatic . He also gets PIP but doesn't qualify for motability as has standard…

I thought about sharing my own experience based on a recent project I have been working on. Growing up, I loved drama; I took it at GCSE, Post-16, and even outside of school. I got top grades and was told I had talent. However, I was always dismissed for leading roles in school productions. Whether intentional or not, it…

As well as March being Cerebral Palsy Awareness Month, the 18th March also marks Swallowing Awareness Day. Eating, drinking, and swallowing are things many of us take for granted, but for some people with cerebral palsy, these everyday activities can be challenging. Difficulties in this area, known as dysphagia, can impact…

CP Awareness Month is here! In honour of our upcoming Employment CP Roundtable on Wednesday 18 March, I interviewed Georgia Vine. Georgia is an Occupational Therapist, PHD candidate, and blogger. 1.Your story Tell us about yourself How did you decide you wanted to be an occupational therapist (OT)? I’m Georgia, a disabled…

Cerebral Palsy Awareness Month is also a time to recognise the supporters and advocates who stand alongside the CP community. I recently had the privilege of spending time with Pat Herring — an advocate, campaigner, parent of an adult living with CP, and long-standing member of the CP Network who has been involved with…

Living with both cerebral palsy (CP) and epilepsy can require a significant, often invisible, effort to maintain a social life. The combined challenges of physical limitations, chronic fatigue, the unpredictable nature of seizures, and medication side effects can make showing up socially feel like more than a 100% effort.…

Hi,my name is Daniel [removed by moderator - personal details] and I have mild CP.I have managed to work my entire life,but over the last few years I have really started to struggle both physically and mentally.Obviously,i have always struggled,but my age is now against me.I know i will not physically last until i'm 67,but…

I woke up one morning when I was 2 needing a tissue. Like any 2-year-old wanting to blow his nose, I picked one up. However, as a 2-year-old with cerebral palsy, I wasn’t quite sure how to do it. I decided to take it one step at a time. I tried to transfer the tissue from my right hand to my left, but my right hand…

@SaraC_Scope joins Ciaran Fitzgerald for episode 4 of The Palsy Podcast. Sara is a CP specialist for the charity Scope, and talks about her experiences growing up, forming relationships and starting a family. Sara has started the Wales Cerebral Palsy Network and is keen for people with CP across Wales to get involved.…

hi hope someone can help me and my family. i am nearly 19 with cp learning difficulties my mum is 47 also ill she has ccopd arthrtis through her body diabbities and mental health then there is my dad he is 44 and the family carer. also i have aq 16 year old brother who has problems but we dont know what they are we just…

On International Women’s Day, and during Cerebral Palsy Awareness Month, it feels especially important to recognise the women helping to shape the future of our community. Through my role at Scope, leading the Cerebral Palsy Network, I have the privilege of connecting with women across the UK who are driving change every…

Cerebral palsy does not disappear at 18. Yet adult services for people with CP are often fragmented, inconsistent, or difficult to access. Adults with CP are: • navigating employment and career progression • managing fatigue, pain and secondary conditions • experiencing ageing with a lifelong neurological condition •…

Cerebral palsy isn’t the barrier. The barrier is when support systems don’t work. When support works well: • People stay in employment • Families remain stable • Skills and talent are retained • Health outcomes improve • Communities benefit From accessible transport and housing, to workplace adjustments and peer networks —…

Hi folks, long time no see! A friend of mine may have been offered a place, and I wanted to ask what advice you’d give to a disabled person living independently (with support from carers). Also, as he’s from a BAME/minority faith background as well as having cerebral palsy and using a wheelchair, are there any additional…

March is here, and with it comes Cerebral Palsy Awareness Month 2026 — a time to celebrate our community, amplify lived experience, challenge assumptions, and show the world just how diverse, creative and powerful the CP community really is. Cerebral palsy isn’t one story. It’s millions of stories. Different bodies.…

Please note that the expression of interest closes at the end of August. We are looking for children with cerebral palsy, and their parents to take part in a PhD research project. Your experiences will help us design better technology to support children with cerebral palsy. What You Will Do You and your child will join…

LGBTQ+ History Month celebrates LGBTQ+ culture, history, and achievements. It is also a time to think about the progress we still need to make. You may hear the word intersectionality this month. This means that some people face more than one type of discrimination. For example, someone can be both gay and disabled. CP…

I attended the Disability Sports Wales Insport event at Cwmbran Stadium in Torfaen, Wales, on Friday, 20 February 2026. It was a great opportunity to try several sports in one space. There was boccia, golf, table tennis and boxing. But the sports attracting the most interest were wheelchair rugby and curling. Attendees…

The Rosie Jones Foundation Episode 1: Same but Different Join Rosie Jones and Abbie Hills as they candidly discuss their lived experiences and explore the similarities and differences between how their ataxic cerebral palsy manifests, and what self-care looks like to them. As we continue our mission to create a world in…