Cerebral palsy

Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…

Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…

Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…

Hello, my husband is suffering with calluses and bleeding from his foot and leg where he wears his splint. I want to get him some good cream and wondered if anyone had any recommendations as it goes beyond " dry cracked heels"

Hi. I have spastic quadriplegia and am a full time power chair user. More recently, I have been having difficulty coughing (particularly when I have a cold) due to spasticity and weak muscles in the chest. I just wondered does anyone else have this problem? If so, what helps? I have briefly looked at using a cough assist…

Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…

A teenage boy who was left alone upstairs during a school fire has taken his campaign for stronger safety rules for disabled students to Parliament. Lucas Vezza-O'Brien has cerebral palsy and says he was "terrified" when smoke began to fill the corridor on the first floor of his school in Hyde, Greater Manchester, in…

What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…

Doctor tells me I have Severe bilateral facet arthrosis, basically no cartilage left between two vertebrae. Has anyone had this? What was the outcome?

Hi, I was diagnosed with Spastic Diplegia at birth? Unfortunately, I was born before the internet. I cope fairly well with the physical side but its the psychological side which has affected me the most. I think I am fully aware of the psychological side now but it has destroyed by life. Anyone else have any experiences on…

Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…

Please complete this survey for a GCSE student: Is ableism too normalised in the UK?

Hi everyone, very old soul here, fine vintage of 42 going on 92. Life long veteran of battling both mental and physical health conditions (The Acme Catalogue has proved useless 💣) Orignally from a small cotton mill town in Lancashire, now living in Middle Earth - I’ve yet to bump into the Fellowship. I am of Scottish,…

Today we had the answer to whether or not my son was going to be put back on enhanced mobility . They put my appeal letter on the wrong pile! I decided to phone after not hearing anything for five months. it was then that I was told it was on the wrong pile .the argument is because he can walk for upto 200 metres .At the…

Article by Steve Beech and Dan Hunt, BBC Derby. Full Article The founder of a charity that supports teenagers with cerebral palsy has spoken about the "nightmare" of being unable to use its Facebook page for more than a year after it was flagged as having inappropriate content. CP Teens UK, based in Chesterfield,…

Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…

Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…

It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…

We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…

Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…

Peer Support & Mentoring Project: CM have funding from the National Lottery for the following training sessions (Zoom): 'Achieving Level 1 in Mentoring Qualification' Tuesday 2nd December 2025 2.00 pm - 3.30 pm: Becky Tyler (AAC user) and Verity Elliott (CM Mentoring Project Co-ordinator) This is an opportunity to find out…

A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy

I'm 38, and i'm a mother of one and live with my partner. I joined the online community so I can chat and discuss with other members whose lives are affected with disabilities and be able to learn more.

Medical professionals need to be discussing SUDEP with their patients! The leading cause of death in epilepsy is rarely explained to patients by doctors, a grieving father has said. BBC News-SUDEP

FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…

Ellis Palmer invited me to Greenbank to play power hockey. Greenbank offers a range of inclusive sports including power football, hockey, and boccia. We know moving with cerebral palsy is essential, especially as we get older. But it can be challenging to know where to start or even to meet fellow disabled people. Clubs…

Hello everyone, I hope you’re all doing well I recently learned that it’s Invisible Disabilities Week. Back in September, I finally plucked up the courage to start writing about my Cerebral Palsy in a blog. I wanted to share it with you all, but wasn’t sure how or when to do so. I’ve incorporated Invisible Disabilities…

Please join us to learn more about the Consequences of Falls in Individuals with Cerebral Palsy Next Monday, October 27, at 1 am UK / 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This…

Last night, I watched the One Show introduce their Challenge Squad for Children in Need. All I can say, is what a great group of people to take on their challenges. I felt emotional listening to their stories. You can read more about them following the link below. Meet the Challenge Squad. Children in Need